During the last twenty-five
years I’ve been part, as a parent and/or a bookseller, of more than a thousand
conferences on disabilities. They have been pretty much all over the map, both
geographically and in terms of their subjects. I can remember oneâ€"only oneâ€"that
I would just as soon have missed. And now that I think about it, I learned
something valuable even there. All the rest offered nuggets of information,
friendships and adventures that made them stand out in my memory as somewhere
between “Wonderful” and “Well worth going!”
From time to time
SpecialNeeds.com will feature particular meetings we believe you would want to
know about. In the meantime, email me at Editor@SpecialNeeds.com with events
you’d like to share.
Next week the Autism
Institute of the University of San Diego holds its annual Summer conference.
The Institute
was developed in 2005 through the vision of Dr. Anne M. Donnellan. Dr.
Donnellan has been a pioneer in the field of autism since the 1970's when she
began her career in San Diego by opening the first pre-school for children with
autism. This is not a conference about diet, legislation, or even, strictly
speaking, about “awareness.” It is about understanding the condition, in
particular from the point of view of those who have it.
The Monday
keynote is by the extraordinary Paula Kluth. On Tuesday, Kate McGinnity and
Nan Negri discuss Kate's new book/DVD about video modeling, Lights! Camera! Autism!
followed by a booksigning. With a roster of speakers you may not have heard
before, the program emphasizes communication and technologyâ€"highly appropriate
in the Age of the iPad!
The
program is below. For more information and to register,
http://www.sandiego.edu/soles/centers/autism_institute/conferences/index...
--Hod Gray, Editor
Autism Institute Summer
2011 Conference
Curriculum, Communication and Community: Full Inclusion, Participation and Supported Living
for All
June 27th â€"
June 29th, 2011
Session
1: Where to Begin
Anne M. Donnellan, Ph.D. and Marthy Leary
Where to Begin
. . .
For many years
we naively believed that we understood the experiences of children labeled with
autism. We can be forgiven for this assumption, as many learned
folks also believed that we understood and praised us for how our insights
matched the descriptions found in the professional literature. We
believed what we were prepared to believe.
Our session covers some
ground on commonly accepted assumptions and takes us on a rocky journey to
examine the theory of the Least Dangerous Assumption and the notion that people
might behave in unusual ways because that is the way their bodies are
organized.
Session
2: “We Thought You’d Never Ask”: Voices From the Spectrum
Paula
Kluth
In this
presentation, Dr. Kluth explores the gap between the dominant discourse in
autism and the stories of people on the spectrum themselves. She will share
excerpts from her documentary film on the voices of people with autism and
discuss what the messages from people with autism and Asperger syndrome mean
for our daily work in schools and communities.
Session
3: “A Land We Can Share”: 10 Ways to Support Literacy Learning in the Inclusive
Classroom
Paula
Kluth
Come and learn
about how we can give all students- including those with significant
disabilities-access to the literate community. Participants will also learn
specific strategies for including and supporting students with disabilities in
reading, writing, speaking, and listening activities. Ideas for enhancing
skills in comprehension, fluency, and vocabulary will be highlighted.
Session
4: Sorting out Speech: Understanding multiple methods of communication for
people with autism
Christi
Kasa
For many people
with autism speech can be an tangled for of communication; at times clear with
intent and meaning and at other times seemingly out of context, repetitive, and
difficult to follow. During this presentation participants will learn
about multiple forms us reliable and unreliable communication. Through
the use of video clips and activities participants will learn many strategies to
support useful speech in the classroom and the community.
Session
5: Just Give Him the Whale: Using Passions, Areas of Expertise, and Strengths to
Support Students with Autism
Paula
Kluth
Too often, the passions or favorites of students with autism are seen as
problematic. In this presentation, Dr. Kluth will explore how honoring
fascinations and using them as tools can help teachers calm, comfort, teach, inspire,
and connect with their students with autism labels.
Session
6: The Past and Future of Autism Advocacy
Ari
Ne’eman
Over the course
of the last twenty years, there has been an unprecedented amount of public
attention to the autism spectrum, ranging from star-studded fundraisers to
"very special episodes" to congressional hearings and multi-part news
specials. Yet, despite this unprecedented rise in public attention there has
been very little practical progress in the community inclusion of Autistic adults.
This lecture, given by the President of the Autistic Self Advocacy Network, and
the first openly Autistic presidential appointee, will explore the reasons
behind these challenges and identify potential solutions to help improve the
relevance of our national conversation on autism to the lives of Autistic
people and their families.
Breakout
Sessions:
IMPROV Your Communication
JD
Walsh (Part 1)
This session
will use the art of Improv/Comedy to develop and enhance your communication
skills when living or working with individuals with severe communication
impairments. Communication is a two way street and we usually spend a
great deal of time writing goals for the individual with the needs. This
session will help us look at ourselves as communication partners. As
communication partners we can and do influence the conversation. Come and
learn how to expand your skills as a communication partner, and expand the
communication skills of those you live and work with. This will be fun
and different that we can guarantee!
The "Why" of Inclusion
Diana
Pastora Carson
Explore many
reasons why inclusion is critical. What is the impact of inclusion on overall
life quality? What is the impact of not facilitating inclusion? Learn from the
life experience of one man, Joaquin Carson, who was not included as a child,
and has lived in institutions twice as an adult. If you strive for inclusion,
but have ever lost sight of why you are putting forth the effort, or simply
want a refresher, this session will offer you solid grounding in the “why.”
Sensitivity
and Awareness
Nan
Negri and Kate McGinnity
Participants
will have the opportunity to hear, through video tape, from writings and
directly, firsthand accounts of the experience of autism. They will also have
the opportunity to experience and explore activities designed to simulate the
experience of being on the autism spectrum. They will learn how to use these
activities in their own settings and will learn a process for developing
activities that are specific to their settings and students/children.
Supported
Communication
Martha Leary, Anne Donnellan
Many people
with communication differences struggle to fit in and find ways to understand
and be understood by others. At the same time, supporters have struggled with
how to assist a person to use a communication system that can be understood by
others; how to accommodate for a variety of social situations, personal needs,
behavior expectations and cultural prejudices. Our session considers aspects of
communication such as: the reasons why people communicate; interpreting and
responding to a person’s own communication methods; ways to consider content
for an augmentative system; and ways for supporting communication while
promoting a presumption of competence for others to share.
Making
your Technology Communicative
Darlene
Hanson, MA, CCC
We often find
ourselves with technology that we don’t know how to use ourselves or are
overwhelmed with as we start to use it. In most situations the communication
partner has to be comfortable with the needs that come with technology as well
as the communicator. This session will discuss programming design, goal
writing, and creating natural opportunities to use the technology we have today
for communication.
Mac OS
X and Apple's iOS for Special Education and Accessibility
Sandy Brenner
Apple
products reach all learners by including accessibility in their design from the
ground up. Whether it's the latest revision of Apple’s iOS for mobile devices,
or Mac OS X, the operating systems include voice over, closed captioning, zoom,
mono audio and supports hundreds of apps to assist special needs learners.
Learn about Apple's unique products to engage special needs learners and help
those who work with them.
"Freedom at the Keyboard": Strategies for Typing Independently to Communicate
Christi
Kasa
This
presentation will describe the best practice strategies used to teach people
with autism to point and eventually type independently to communicate.
Systematic strategies of providing communicative, physical, and emotional
support will be demonstrated through the use of video analysis. Steps
getting started and practicing will be shared.
Breakout Sessions:
IMPROV
Your Communication
JD Walsh
This session
will use the art of Improv/Comedy to develop and enhance your communication
skills when living or working with individuals with severe communication
impairments. Communication is a two way street and we usually spend a
great deal of time writing goals for the individual with the needs. This
session will help us look at ourselves as communication partners. As
communication partners we can and do influence the conversation. Come and
learn how to expand your skills as a communication partner, and expand the
communication skills of those you live and work with. This will be fun
and different that we can guarantee!
Let's Create! Inclusion through Song and Dance
Diana
Pastora Carson
Bring
curricular standards, concepts, ideas, and vocabulary for this make-it, take-it
style session. Together we will collaborate, share, and create songs, chants,
poems, and kinesthetic activities geared toward your students’ learning styles.
Bring laptops, flash drives, note paper, and cameras to help you preserve
ideas.
Let’s
Have a Conversation: Learning to Listen to Autistic Voices
Bev
Harp
This
presentation, by a self-advocate on the autism spectrum, will focus on the
value of immediate and delayed echolalia, metaphorical speech, gesturing, and
other often ignored or misunderstood forms of communication. Practical
strategies for listening will be offered, and time will be allotted for
questions and discussion. Discussion points will be taken from Square 8 blog
posts, as well as from new material. Squawk!
Clinic
for Making AAC an Attractive and Useful Option for People who Have Communication Differences
Darlene
Hanson, Martha Leary, Nan Negri and Kate McGinnity
This session
provides opportunities for hands-on use of the iPad and iPod Touch with
communication programming as examples of practical, functional communication on
common and affordable Augmentative and Alternative Communication (AAC devices).
This session will have a flexible format tailored to the needs of participants.
Customized
Support Services: The Ingredients for a Life Worth Living
Beth
Gallagher
This session
will take a look at strategies and tools that will help the participants to
understand that it is possible to support all people in the community
successfully. Through methods such as Person Centered Planning and
creative strategies to design support teams, the presenter will demonstrate the
possibilities. This presenter will share ideas and case stories of how
thinking outside of the box is imperative to well developed supports.
Session
7: Lights! Camera! Autism! Using
video technology to promote competence and enhance lives
Nan
Negri and Kate McGinnity
Video
modeling! Video social stories! Power Point Social Stories! Power Point
Portfolios! Movie clips to teach social skills! Video Practice sequences as
memory support! Video Relaxation
support! Applications for electronic devices such as iPad, IPod Touch, Droids,
MP3 Players, etc! There is no end to the creative support that can be provided
through the use of video technology. This presentation, based on the soon to be
released book of the same name, will review the research support for this
technology and then introduce ways of using video technology to address skill
development, maintenance of skill, transition planning, employment, support
staff training, and self advocacy, all with an emphasis on supporting
independence.
Session
8:
Marching to the Beat of Your Own Drum: Rhythmic Accommodations for
Movement and Independence
Michelle
Hardy
This session
will look at rhythm as an accommodation for movement differences in individuals
on the autism spectrum. It will address movement differences in autism based on
a model of cerebellar dysfunction, specific movement disturbances identified in
autism research, and a theoretical and clinical understanding of the influence
of rhythm on movement. Practical application and hands-on experiences will be
integrated in the session.
Breakout Sessions:
Self-Advocate
Priorities in Public Policy
Ari
Ne’eman
As Congress
considers significant changes in disability programs relating to education,
employment, long term services and supports and other areas, it is important to
consider: what do people with disabilities think about these issues? Although
many of the loudest voices in the disability advocacy world come from the
parent and provider community, increased efforts on the part of groups run by
people with disabilities from a wide variety of different backgrounds have
helped to diversify the disability policy conversation in Washington, DC. This
presentation will unpack some of the issues that have emerged in these
discussions.
Let’s
Create! Inclusion through Song and Dance
Diana
Pastora Carson
Bring
curricular standards, concepts, ideas, and vocabulary for this make-it, take-it
style session. Together we will collaborate, share, and create songs, chants,
poems, and kinesthetic activities geared toward your students’ learning styles.
Bring laptops, flash drives, note paper, and cameras to help you preserve
ideas.
The
Hidden Curriculum: Social Understanding, Social Skills, and Belonging in K-12
Settings
Jodi
Robledo and Stephen Hinkle
This
session will focus on the importance of inclusion, social skills, friendships,
and relationships for individuals with autism. Stephen Hinkle, an individual
with autism, will highlight his personal experiences in this session.
Strategies and discussion will focus on how as we can build social supports for
individuals with autism in K-12 settings.
Yoga,
Regulation & Relaxation
Nan
Negri and Kate McGinnity
Stress in any
of our lives can impact how we feel, how we relate, and how we perform. Given
the additional levels of stress often reported by individuals with autism, it
is helpful to consider
relaxation,
regulation and coping strategies. In this session participants will be able to
see
how yoga,
regulation and a variety of relaxation strategies can positively impact the
individuals we support, and ourselves! Come dressed comfortably for practice!
We
Belong in the Community!
Colleen
Harmon, Judee Chambliss and Shirley Hesche
This session will focus on
the importance of people with disabilities to be actively involved and included
in their community. We will demonstrate a model program for young adults
(18-22) that is completely community based and serves all individuals with
personalized supports. Session will also include young adults with autism and
other disabilities who will share their story.
Customized
Support Services: The Ingredients for a Life Worth Living
Beth
Gallagher
This session
will take a look at strategies and tools that will help the participants to
understand that it is possible to support all people in the community
successfully. Through methods such as Person Centered Planning and creative
strategies to design support teams, the presenter will demonstrate the
possibilities. This presenter will share ideas and case stories of how thinking
outside of the box is imperative to well developed supports.
Neurologic
Music Therapy: The Application of Rhythm in Autism
Michelle
Hardy
This session
will provide an overview of Neurologic Music Therapy and the use of rhythm in
therapy for persons with autism, specifically looking at movement differences.
Video examples and live demonstrations will be incorporated as well as opportunities
for individual problem solving.