Three and a half years ago, Diane Solomon was at the end of
her rope. Her son Adam was in second grade and nobody knew what was wrong with
him. When Adam was 18 months old, he had been diagnosed with a rare childhood
inflammatory disease called Kawasaki syndrome. After six months he improved,
but he had sensitivities they later learned were sensory integration problems.
When Adam was five, he became a one in two million kid and got Kawasaki
syndrome a second time, this time ending up with a coronary aneurysm. When he
recovered, he couldn’t hold a pencil for six months. Diane says they started
him in school, but they soon realized something else was wrong.
"He couldn’t pay attention for more than five seconds," Diane recalls. "Whenever the teacher called for everyone to line up for snacks,
my son was still sitting there. He didn’t even know anyone had left." Other
children did not want to be around Adam because his motor skills were so severe
and he could not understand the rituals of kindergarten. "They didn’t want to
play with him because he didn’t know how to play," says Diane. She and her
husband saw moments of brilliance in Adam, but they saw some OCD, too. The
pediatrician said he was “quirky” and recommended that Adam see a psychiatrist.
The psychiatrist thought he might have ADD and wanted to put him on medication,
but they couldn’t because that would speed up his brain and his heart and he
already had an aneurysm. Diane demanded that Adam be given a CAT scan to see if
he had a tumor. Nothing was wrong.
By the time he got to second grade, Adam’s desk was five
inches lower than the other kids’. He had to sit in a corner. Things were taped
all around desk in case something rolled onto the floor, because if it did he
would spend five minutes looking for it. He sat on a ball instead of a chair,
with the hopes that it could help him. Diane remembers walking into the
classroom and bursting into tears because Adam looked like a child who belonged
in special education. She thought, "My God, what’s going to happen to him?"
Adam was in pull-outs for four hours every day at school. He
was getting occupational therapy. By the end of second grade, Adam was reading
at a kindergarten level and he never passed math. He could not even ride a bike
or walk up the stairs one foot in front of the other. His parents began to
wonder, "Will he ever be able to live alone? Will he be able to take care of
himself?"
At this point, Diane learned about something called
Interactive Metronome from a co-worker whose child had used it. Interactive
Metronome (IM) is a computer-based program that helps people with a variety of
conditions affecting their cognitive and physical abilities. It has a game-like
interface that appeals to kids and makes training with IM fun. Those who
participate in training are challenged to synchronize hand and foot exercises
to a rhythmic beat that plays through headphones. They get real-time feedback
as their scores are logged into the computer after each session.
Diane had no idea that Interactive Metronome would prove to
be life changing, not only for Adam but for her whole family. Adam began
training with in-home IM provider Sherrie Hardy in June of 2008 and continued
all through the summer. He began with his brain timing being 400 milliseconds
off the beat, and by the end of the summer he was only 70 ms off the beat,
which is in the average to above-average range. Other things began to click for
Diane: "He was a chronic bed wetter for as long as I could remember who stopped
wetting the bed two weeks into training." Transitions also became easier.
In the beginning of third grade, Diane received a phone call
from Adam’s new teacher who wanted to know why he was in pull-outs four hours a
day. Diana started to apologize and explain that she had meant to talk to the
teacher about all of Adam’s problems. The teacher told her that based on the
beginning of the year exams, Adam was at third grade level in everything. Diana
fell off her chair. "My son had grown three grade levels over the summer." His
reading lexicon had doubled.
Adam himself talks about what happened to him: “I never knew
anything was wrong with my brain timing until third grade. It really did help
me. If it wasn’t for metronome, I don’t know what I’d be doing right now. I
just can’t imagine it.” Adam can’t even recall what life was like before he
started training. "I had no idea what I was doing when they first told me to
clap my hands," he says. "I didn’t know any of this was happening to me until third
grade."
One thing he does remember is the day he got the news he was
no longer required to be in special education. "When I was in third grade,
around the middle of the year, my name was called on the PA to proceed to the
front office, and I just knew what was going to happen," he recalls. "I went up
there with a smile on my face. I went inside this room in the office. In there
was my RSP teacher, my OT teacher, my third grade teacher, my mom was there,
and the principal and assistant principal. They said I no longer qualify for
special education because I didn’t test in the average range. I tested in the
superior range."
Now Adam helps Sherrie Hardy with her other
clients. He gives them advice about training, telling them to "imagine like it's a video game and you're trying to get to the next level." He tells them the story of what happened to him. "After the first few
months of metronome, they’ll show a lot of progress," he says. "That’s what
happened with me." Diane says the change in her son is so profound that she now
volunteers all her free time, almost equal to a full-time job, to helping
Sherrie and getting the word out about Interactive Metronome.
As for Adam, he loves school, especially science. He wants
to be a doctor or a scientist some day. He’s in the gifted program, "an expert
clarinet player" in the school band, a member of the chess club and the boy
scouts, and is learning to read and speak Hebrew. "I’m just really happy," he
says, "I wanted to be like everyone else."
As Diane says, "We just wanted him to fit in. We just wanted
him to be average and have a happy life. What we didn’t know was he had a high IQ, but he
had this cloud over him. The Interactive Metronome product lifted that cloud
and let him be who he really is."
For more information about Interactive Metronome, visit
their website or watch a demo video here.