There are approximately one million people living with
autism in the United States today. By the year 2050, it is predicted that this
number will increase fivefold, with 1.7 million of these people being adults.
In her book, Autism Solutions: How to
Create a Healthy and Meaningful Life for Your Child, autism expert Dr.
Ricki Robinson stresses the importance of thinking differently about how to
help children with autism follow their dreams by clarifying their interests. Once
a child’s interest is discovered and fostered, by the time they become an adult,
they feel like a productive member of society. They begin having goals and
objectives for themselves, not based on expectations of success other people
place upon them.
“You have to step back from the IEP kind of stuff where
you’re micromanaging what happens during the day,” Dr. Robinson explains. “Look
at the big picture and say, have we filled in all the gaps to what really would
become a meaningful life?” She sees her role as “the quarterback of the team,”
keeping everyone’s eyes on the prize by figuring out the key elements to
providing for a child to someday have a future. “The number one concern for all
parents is their child’s future,” says Dr. Robinson. “Unless you’re going to
have a career in mathematics, it’s not about doing math. It’s about having
friends, fitting into the community, finding out what your dream is and being
able to do what you need to do to follow your dream.”
The particularly interesting thing about children with
autism is that their interests can often be known at a young age, and once a
child finds his interest, he remains consistent. With the gift of time, Dr.
Robinson talks about how it is possible to match the educational needs of kids
with autism to their interests and therefore develop the skills they need for
the future. She mentions a boy who was nonverbal and getting ready to begin his
junior year of high school. He said, “I’m not going to go.” When she asked him
why, he replied, “There’s nothing there that I like.” When she prodded him for
what he loved to think about, the boy replied, “Bees.” Bees were his passion in
life. He wanted to be a beekeeper. Dr. Robinson said, “All right. We can focus
an entire year of high school around bees.” He learned math, science, and
literature all within the context of bees and beekeeping. “I asked his mom, are
you ready for this? Because this is a career,” she says.
“The whole idea behind the book was to give parents and
families of individuals with autism hope and help,” says Dr. Robinson, “But it
needs to be the whole village here.” She makes the point that parents who raise
children with special needs tend to be exhausted both mentally and
physically"and often financially"by the time these kids reach adulthood. This
is why an important part of helping your child reach his or her dreams is to
reach out to the community.
Four out of five individuals with autism are male. As the
boys become teenagers, Dr. Robinson asks, what are their needs? They need
models of male teen behavior. In her practice, she developed a buddy system to
help families find volunteer guys who emulate good behavior in the community.
These volunteers develop a friendship with the boys based on their interests
and hang out or play sports with them. Boys with autism should be in a group of
like-minded males, which accomplishes two things: it socializes the adolescent
male and it gives parents the opportunity to experience what it is like to have
a more typical teen and “let go” a little bit.
It does not matter how challenged the child is. “My most challenged
kid that I’ve ever seen in my 20 years has a team of six buddies,” says Dr.
Robinson. “He’s now in his mid-20s, and it’s the team who really cares for him,
with his mother on the outskirts consulting with the team. It’s the team who
provides the daily interaction in his activities and his job.” This young man’s
interest is in cooking. He and his buddies make lunches and deliver them to
several businesses in Pasadena as part of a business he started called
Christopher’s Cuisine. They make the menus, Christopher supervises what they
need in the store, he makes everything and then delivers it. In order to be one
of his select businesses, the people in the business have to interact with
Christopher. “This is a boy who is very nonverbal, with many sensory and
medical issues. If he can do it, anybody can,” Dr. Robinson says. “The key is
to know your child as an individual. It’s not one size fits all.”