Each child brings something into a family when he or she arrives.
Each individual is directly affected by the other members of the family
and impacts the unit as a whole. A child with special needs adds a
special dimension and provides a unique perspective for every family
member.
When a child is compromised by special needs and
challenges, the family spends time and effort searching for solutions
and providing services to help the child move towards their potential.
The family may be inundated by appointments, increased travel, missed
occasions or celebrations, having to bring siblings to therapies, etc.
The special needs child is often the focus of the family’s time and
attention. The brother or sister may have ‘waiting room syndrome’ or
want to know why they are treated differently. The parents may expect
too much of the siblings and possibly too little of the special needs
child as they try to learn how best to support the child and the family.
With all the difficulty and worries, the special needs child brings a
breath of fresh air and a chance for each human being to appreciate the
gift of life and intimacy.
A child with special needs pulls the
family together in an unspoken bond. They encourage each of us to delve
deep within our souls to become thankful for the opportunity and the
pleasure to give of ourselves to those we love. They help us see the
important things and to appreciate each moment fully. We see our own
vulnerability and are at peace with our individuality. The child with
special needs holds a mirror up to their family members to reflect the
challenges in each, making each grateful for whom they are and what they
offer to the family unit. Our perspective of life and family and
intimacy takes front seat, putting all else carefully behind.
Every
special child or young adult I have the privilege to work with offers
me an opportunity to rejoice in their specialness and appreciate their
hard work to move forward. Each special needs child offers every life
they touch a chance to be the best they can be. A very special gift
indeed!
Sharon Hensel-Cohen is a speech/language pathologist in private practice
in Tarzana and is the Director of Nicky’s World, a Center for limited
and non-verbal communicators and their families.