A while ago I posted about my daughter, Little Miss
Adorableâ€™s newest words and our struggles in Speech and Language Therapy. (Little Miss Adorable, Speech, Language and Swear Words and Toddler Speech, Language and Self Defense)
Little Miss Adorable has Prader-Willi Syndrome and
the very low muscle tone associated with it. All Little Miss Adorableâ€™s muscles
are floppy, including the muscles used for speech. Little Miss Adorable sees a
Speech Language Pathologist (SLP) to learn to speak, as well as an Occupational
Therapist (OT) to help Little Miss Adorable develop her muscles.
Normally an OT focuses on fine motor development,
but Little Miss Adorableâ€™s OT helps with fine and gross motor development. Whatâ€™s the difference between fine and gross motor ability?
You shall see.
Little Miss Adorable is 2 Â˝ years old and cannot
walk. She bum shuffles her way through life, usually holding an armful of baby
dolls. She gives them bottles, puts them to bed, changes their diapers and
wipes their bums. She holds out the (pretend-used) baby wipe at me and says,
â€śEeeew! Stinky!â€ť (Donâ€™t ask where she learned that one from.)
If I try to support Little Miss Adorable in a
standing position by holding her hips, she collapses like a wet noodle after a
minute. She clearly has weakness in her gross (full body) muscles.
Little Miss Adorableâ€™s fine motor ability is quite
good -- she can pick up tiny things in a classic pincher grip. She uses her
fingers to dress her babies, change their diapers, pinch her brother, and pick
She does not need to work on her fine motor
One morning I was busy and distracted while Little
Miss Adorable was playing on the floor. She loves to bum shuffle her way around
and empty things -- baskets, bins, and cupboards are all emptied in the name of
She shuffled into the kitchen and started to go
through the cupboards and drawers. The ones at her height are filled with craft
supplies for the children, so I wasnâ€™t too concerned.
Until I heard her call, â€śMommy, pee-pee!â€ť
Little Miss Adorable is not really potty trained,
so I rushed in ready to scoop her up and put her on the potty. I rushed into
the kitchen and paused.
There was Little Miss Adorable, sitting in the
middle of the kitchen floor, holding her pants. She was trying to hold them up, out of a huge lake, that
judging from the smell, was vinegar.
I picked Little Miss Adorable up. She was soaked,
and smelt like pickles. There was the gallon jug of white vinegar, lying on its
side. It was empty and the cap was off.
Did I mention Little Miss Adorable has very good
fine motor ability?
Looks like her gross motor ability has improved,
she pulled the full gallon jug of vinegar out of the cupboard all by herself.
Amazed, I looked at the mess and said, â€śF*ck.â€ť
What did Little Miss Adorable say?
â€śF*ck,â€ť she smiled proudly at her new word.
So why do I bother going to Speech and Occupational
Therapy? Weâ€™re doing damn fine on our
more articles about Prader-Willi Syndrome (without swear words) please see:
(aka @specialneedmom2 on Twitter)
You can also visit my blog about my super-powered,
special needs family http://halfpastnormal.wordpress.com/