You've heard ABLE accounts mentioned in passing. Maybe at an IEP meeting, maybe from a benefits counselor, maybe in a Facebook group. The phrase stuck because it sounded like something that might apply to your family, but the eligibility rules felt opaque and the mechanics unclear. Here's what changed on January 1, 2026, and what it means for you. What Changed in 2026. The ABLE Age Adjustment Act took effect at the start of this year. Before January 1, 2026, you could only open an ABLE account if your disability began before age 26. That age-of-onset limit is now 46. This isn't a minor adjustment. It expands eligibility to roughly 14 million more Americans, a figure that includes approximately 1 million veterans. If you're an adult with a disability that began before you turned 46, or if you're the parent of an adult child whose disability onset falls within that window, you now qualify, even if you didn't six months ago. The age-of-onset requirement is the only eligibility threshold that changed. The disability itself still needs to meet the Social Security Administration's definition: a condition that is severe, expected to last at least 12 months, and results in marked and severe functional limitations. If you're already receiving SSI or SSDI, you meet that standard automatically. If you're not, a physician can certify that your disability meets the criteria and that onset occurred before age 46. Who Qualifies. You qualify for an ABLE account if:  Your disability began before you...

The ABLE Age Adjustment Act expanded eligibility to age 46. Who qualifies, contribution limits, and how to open an account.

ABLE Accounts in 2026: Who Now Qualifies, Contribution Limits, and How to Open One

Most parents spend months setting up a Special Needs Trust and drafting a will. They meet with attorneys, organize financial documents, and make decisions about guardianship. Then they file everything away, confident the legal work is done. What they often don't realize: the most important document in their special needs plan isn't a legal document at all. It's a Letter of Intent, and many families never write one. What a Letter of Intent Is. A Letter of Intent is a personal document that describes how your child lives day-to-day. Some planners call it a Letter of Instruction. It's written for the people who will step into caregiving or decision-making roles after you: trustees, guardians, case managers, extended family members. The letter answers questions that legal documents don't address. What does your child eat for breakfast? Who are their doctors? What helps them calm down when they're overwhelmed? What are their routines, preferences, and goals? Legal documents define authority and allocate resources. A Letter of Intent defines a life. Many special needs planners consider it the most important part of the planning process, even though it carries no legal weight. The reason is simple: trustees and guardians can follow legal instructions without understanding the person those instructions are meant to serve. The Letter of Intent closes that gap. Why Families Skip It and Why That Matters. Families delay writing a Letter of Intent for a few common reasons. First, they don't know it exists. Estate planning conversations focus on wills, trusts,...

A Letter of Intent tells future caregivers about your child's life, routines, and care. What to include and how to write it.

The Letter of Intent: How to Write the Most Important Document in Your Special Needs Plan

Your child turns 18 in six months, and your attorney has started the guardianship conversation. You've heard the term for years. You know it means you retain legal authority to make decisions on your child's behalf. What you may not know is that guardianship also means your child loses nearly every legal right they have: the right to choose where they live, who they see, what medical care they receive, and whether they can marry. For many families, that trade-off is necessary. But for many others, it's not. There's a spectrum of options between full guardianship and no legal support at all, and disability advocates now recommend starting with the least restrictive option first. That option is called supported decision-making. What Supported Decision-Making Is. Supported decision-making (SDM) is a formal agreement in which your child appoints a team of supporters to help them make decisions. The supporters don't make decisions for your child. They help your child weigh options, understand consequences, and arrive at their own choices. It's the same process most adults use when they consult friends, family, or professionals before making a big decision. The difference is that SDM formalizes it. Your child retains all their legal rights. The supporters are there to assist, not to override. Under an SDM agreement, your child can appoint you, a sibling, a trusted friend, or a professional to help with specific areas: healthcare, education, finances, or daily living decisions. Your child decides who helps and in what capacity. If your child...

Explore the legal differences between guardianship and supported decision-making, and why advocates recommend SDM as a first step.

Guardianship vs Supported Decision-Making: How to Choose the Right Option When Your Child Turns 18

Analysis of expenses related to raising children presented in a visual at 'http://www.earlychildhoodeducation.com/cost-of-a-child'.

The Cost of a Child

Special needs trusts generally fall into one of two categories, and the treatment and effect of any given trust varies depending on which kind of trust is involved. This has led to a tremendous amount of confusion and, in some cases, a significant loss of assets. Many (but not all) practitioners use the same language to describe the distinction: a types of special needs trust is either a “self-settled” or a “third-party” trust. Why is the distinction important? Because the rules surrounding the two kinds of trusts are very different. For example, a “self-settled” types of special needs trust:  Must include a provision repaying the state Medicaid agency for the cost of Medicaid benefits received by the beneficiary upon the death of the beneficiary. May have significant limitations on the kinds of payments the trustee can make; these limitations may vary significantly from county to county. Must be for the sole benefit of the person with disabilities during his lifetime. Will require an annual accounting to the state Medicaid agency of trust expenditures. May, if the rules are not followed precisely, result in the beneficiary being deemed to have access to trust assets and/or income, and thereby cost the beneficiary his Supplemental Security Income (SSI) and Medicaid eligibility. Will be taxed as if its contents still belonged to the beneficiary — in other words, as what the tax law calls a "grantor" trust.  By contrast, a “third-party” types of special needs trust:  May pay for food and...

Special needs trusts vary as 'self-settled' or 'third-party'. Each type has different rules, benefits, and tax implications.

Navigating Types of Special Needs Trusts

 Planning for the future well-being of your children is a daunting task for any parent. Add the complexity of adequately providing for the future care of a son or daughter with special needs and the process becomes exponentially more challenging.   Any special needs plan requires thoughtful dedication by the parents and often involves the utilization of multiple resources and professionals. The question for most parents is where to even start? The answer of course varies based on the child's diagnosis, age, family situation and numerous other factors. There is however a core guide that I believe can be provided to any parent of a child with special needs to help work through the process (a process I might stress is accomplished over time).    The keys to a sound special needs plan are complicated and vary according to each situation. The list below is not meant to be a comprehensive checklist, but instead a series of nine core issues that I believe every parent must address. The actual creation of a special needs plan will take time, focus and creativity. Don't be afraid to ask for help. Include your child's educators, family, friends and professionals that can offer support and guidance through the process.    Step 1 — Understand the Process is Different    The initial step should be a full understanding that traditional planning advice will not work for your family. You should not engage the corner financial advisor, a...

9 steps to plan for a special needs child's future care, involving guardianship, financial adjustments, legal trusts, and support education.

A Special Needs Planning Timeline: 9 Steps to a Sound Family Plan

What is special needs planning? The focus of special needs planning is to protect and secure the future of our loved ones with disabilities. Through special needs planning, we work to preserve and maximize needs-based public benefits, such as Supplemental Security Income (SSI) and state programs, such as California's Medi-Cal, and protect our loved ones from those who could potentially take advantage of an individual with special needs. We work to ensure the greatest quality of life for our loved ones, now and in the future, and, in particular, in our absence. Unsure of where to begin? Start with these first five steps:  1. Write a Memorandum of Intent/Letter of Intent: A letter of intent is a document prepared by you, the primary caretaker of a special needs child/loved one, giving direction to future caretakers about the care of your loved one in your absence. You should provide instruction regarding the specific emotional, physical, and medical needs of your loved one, as well as your hopes and desires for your loved one's future. 2. Establish a Special Needs Trust: A special needs trust is a special type of trust that allows a person under a physical or mental disability to have an unlimited amount of resources secured for his or her benefit, without disqualifying the individual from needs-based governmental benefits. In addition, a special needs trust can protect assets from potential predators or others that might take advantage of a person with special needs. A special needs trust should...

Special needs planning secures disabled loved ones' futures and protects assets with steps like establishing trusts.

First Five Steps in Special Needs Planning

Merrill Lynch has developed a financial calculator exclusively designed for families of children with special needs. This tool helps families structure their finances by factoring the costs of assistive equipment for homes, such as wheelchair ramps, roll-in showers, and adapted vehicles for transport. The calculator also considers a child's ongoing needs, including replacement costs for equipment, physical therapy and even travel expenses for medical care. The interactive calculator uses families' anticipated income and expense information based on data that they gather ahead of time. There are helpful tips at the bottom of each screen to clarify the process. Three screens divide the calculator into annual income, monthly expenses, and summary of results sections. The results project how much a family would have to save and invest in order to meet the demands of special needs expenses. Families can then print out the results and bring them to a financial advisor for further assistance in developing a strategy for planning. Read more here.


Merrill Lynch introduces a calculator for families with special needs children, helping to plan for expenses like equipment and therapy.

Merrill Lynch Debuts Special Needs Calculator

 The Hidden Financial Costs of Having a Child with Special Needs: Part Two   It costs around $15,000 a year to raise the average child in the United States. You can expect this number to nearly double if you have a child with complex medical needs and typical insurance coverage. How can families survive and prevent bankruptcy or foreclosure when dealing with such high costs? While financial ruin due to your child's medical condition is not always preventable, it can be minimized with proper planning. This article will provide some general tips to decrease current expenses and prepare for future expenses for children with special needs. The best strategy for preserving your financial security is to plan ahead. Consider contacting a special needs financial planner or check out a book such as The Special Needs Planning Guide by John W. Nadworny and Cynthia R. Haddad. Another useful strategy is to "audit" your child's monthly expenses, evaluating your child's costs in a checklist like the one found below to help prepare for future expenses.  Medical-Financial Audit Checklist         Monthly Cost      Insurance Premium       Insurance Deductible       Physician Copays       Coinsurance       Prescription Copays       Therapy Copays       Home Health Copays      ...

Parents of children with special needs can double expected costs, but planning and maximizing benefits can help avoid financial ruin.

Improve Your Special Needs Financial Planning

Estate planning and lifetime planning for parents with a child with a disability present special challenges. The goals of the parents are to utilize their assets in such away to enrich their child's life while, at the same time, preserving the child’s public benefits.   Estate Planning Options  Parents of a child with a disability have four options with respect to estate planning:  Disinherit the child;  Distribute the assets directly to the child;  Distribute the assets to a sibling with the understanding that the siblings will use the assets for the benefit of the child with a disability; or Distribute the assets to a trust for the benefit of the child with a disability.    Disinherit the Child  The first estate planning option is to simply disinherit the child. If the parent's estate is relatively modest, and the child's needs are great, this may be the best approach, because any legacy from the parents would be inadequate to meet the significant needs of the child.  Distribute the Assets Directly to the Child with a Disability  The second option is to make the gift to the child with a disability. The problem with this option is that distributing the assets to the child with a disability will disqualify the child for any means tested public benefits. This may render the child ineligible for supplemental security income (SSI), Medicaid, or federally-assisted housing, as well as for supported employment and vocational rehabilitation services,...

Estate planning for a child with a disability can either disinherit them, give assets directly, to a sibling, or use a Special Needs Trust.

Protecting Assets for Child with a Disability

  The Road to Homeschooling      I could feel like a failure as a mom. For 6 years I raised a child with special needs without realizing it.   I knew he was a bit different; challenging and special, but even having a friend with a child with autism, I didn't add up the sums for a long time.    Lightbulb Moments    I don't beat myself up, though, because he was my first child, and as an inexperienced mother with no previous understanding of Asperger's, there was no real reason I would pick up the signs. After all, he was just delightfully quirky ... and maybe just a tad tiring...   In the end, it was a conversation with the same friend whose children were on the spectrum, which finally put the pieces together in my head. It had been brewing for a while subconsciously I'm sure — my son's odd social behavior, his other quirks — and one day after coffee and nodding over the characteristics of ASD my friend was noticing in her second child and age-mate of my son, the light bulb lit, and I drove home and Googled more information. My son fit all the characteristics of Asperger's, and I could look back through his brief history and say "oh....." I had assumed initially that because my boy was an only child for a long time, he had not had the opportunity to pick...

Mom shares journey on homeschooling her son with Asperger's, leading to his improved learning and eventual return to mainstream school.

Weighing Up the Options

 No one likes to think about the circumstances that can take their life, especially when they have young children at home. Sadly, situations can occur, and if the proper procedures are not taken while you were still alive, it can cause a lot of grief and even harm to your children after you are gone. This idea is especially true if you have a child with special needs.     What is a Special Needs Living Revocable Trust? How is it Different from a Will?    All of us are acquainted with wills. A living revocable trust, also known as a revocable living trust (RLT) is similar to a will, yet it is different. When deciding between the two, a living revocable trust is the better option, especially if you have children with special needs. A will can only benefit beneficiaries after the creator of the will has passed away. However, a living revocable trust can benefit your child while you are still alive.     Advantages of Setting Up a Revocable Living Trust    Since this trust is revocable, it means that you can change it any time or upon any circumstances. There are many advantages of setting up a living revocable trust. The most notable advantage is that the trustee, the person or entity you appoint to delegate your trust according to the documents, does not have to pay many costly fees.   For example, with a living...

A Living Revocable Trust is changeable, avoids probate, minimizes disputes, and helps manage assets for children with special needs.

What is a Living Revocable Trust?

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Special Needs
Articles

ABLE Accounts in 2026: Who Now Qualifies, Contribution Limits, and How to Open One

The Letter of Intent: How to Write the Most Important Document in Your Special Needs Plan

Guardianship vs Supported Decision-Making: How to Choose the Right Option When Your Child Turns 18

The Cost of a Child

Navigating Types of Special Needs Trusts

A Special Needs Planning Timeline: 9 Steps to a Sound Family Plan

First Five Steps in Special Needs Planning

Merrill Lynch Debuts Special Needs Calculator

Improve Your Special Needs Financial Planning

Protecting Assets for Child with a Disability

Weighing Up the Options

What is a Living Revocable Trust?

Find Providers Near You

Special Needs Articles

ABLE Accounts in 2026: Who Now Qualifies, Contribution Limits, and How to Open One

The Letter of Intent: How to Write the Most Important Document in Your Special Needs Plan

Guardianship vs Supported Decision-Making: How to Choose the Right Option When Your Child Turns 18

The Cost of a Child

Navigating Types of Special Needs Trusts

A Special Needs Planning Timeline: 9 Steps to a Sound Family Plan

First Five Steps in Special Needs Planning

Merrill Lynch Debuts Special Needs Calculator

Improve Your Special Needs Financial Planning

Protecting Assets for Child with a Disability

Weighing Up the Options

What is a Living Revocable Trust?

Find Providers Near You

Special Needs
Articles