Three weeks after announcing it would hand special education administration to the Department of Health and Human Services, the U.S. Department of Education finally sat down with the people asking the hardest questions. On Thursday, July 9, department officials held a private briefing call with disability advocates, and according to a recording obtained by NPR, the message came in two parts that don't quite fit together. Kelly Rogers, the acting assistant secretary overseeing special education, opened with a reassurance: "The U.S. Health and Human Services is not taking over IDEA. Period." Then she confirmed that staff at the Office of Special Education and Rehabilitative Services, the people who support states and school districts in carrying out the Individuals with Disabilities Education Act, will move to HHS. Rogers said she would continue to oversee that staff from her position at the Education Department "with additional support by HHS." Where the Law Lives vs. Who Runs It. The distinction the department is drawing comes down to this: IDEA is a statute, and only Congress can move or change it. Statutory responsibility for the law stays with the Education Department. What's moving is the workforce, the OSERS employees who review state plans, distribute guidance, answer questions from districts, and monitor whether states are meeting their obligations to students with disabilities. For a parent, the law on paper matters less than the people who make it function. When a state misapplies IDEA or a district needs technical guidance, OSERS is the office that responds....

Officials said HHS is 'not taking over IDEA' while confirming special ed staff will move there. What families should watch this month.

Education Department Confirms Special Education Staff Are Moving to HHS, With No Timeline

If your child uses a wheelchair, you have probably lived some version of this appointment: the exam happens in the chair because the table is too high, and the weight on file is a guess, a number from a home scale, or you stepping on a scale twice, once holding your child and once without. On July 8, that stopped being a limitation families are expected to work around and became a compliance failure for the provider. What Changed on July 8. The Department of Health and Human Services updated Section 504 of the Rehabilitation Act in May 2024, the first major revision in nearly 50 years. Most of the attention since has gone to the digital accessibility requirements, which HHS delayed by a year on the day they were due. The medical equipment requirements were not delayed. As of July 8, 2026, every covered provider must have at least one exam table that lowers to wheelchair transfer height and at least one weight scale a person can use without standing. The rule goes further than one table and one scale. General practices must make at least 10 percent of each type of diagnostic equipment accessible. Clinics that focus on mobility-related conditions, such as physical therapy and rehabilitation centers, must reach 20 percent. Any equipment bought or leased after July 8, 2024 already had to meet the accessibility standards until those thresholds were reached. Who Has to Comply. The requirement applies to any provider receiving federal financial assistance from HHS,...

A federal rule now requires providers that take Medicare or Medicaid to have accessible exam tables and scales. How families can use it.

Your Child's Doctor Now Has to Have an Accessible Exam Table and Wheelchair-Accessible Scale

Around 4,300 Kansans with intellectual and developmental disabilities are waiting for a Medicaid waiver slot, and the typical wait runs close to nine years. On July 9, Governor Laura Kelly announced that the Centers for Medicare and Medicaid Services had approved a second waiver designed to shorten that line. It opens with 500 slots on October 1. The Community Supports Waiver is a new 1915(c) home and community based services waiver, approved by CMS on July 1 alongside an amendment to the state's KanCare managed care waiver. Both take effect October 1, 2026. CMS signed off on a projected enrollment of 500 people for the first waiver year, which runs through September 30, 2027. What the New Waiver Pays For. The Community Supports Waiver is built for Kansans who need help but do not need round-the-clock support. Services carry an annual cap of $20,000 per participant, and the waiver does not cover day services or residential services. Those remain on the comprehensive I/DD Waiver, the program that 9,399 Kansans currently use and that everyone on the waiting list is waiting for. A $20,000 ceiling funds a meaningful package of in-home supports for a person whose needs are steady and moderate. It does not fund a residential placement, and it will not stretch to cover a situation that changes for the worse. Eligibility follows the state's existing I/DD rules. An applicant must be at least five years old, have an intellectual disability that began before age 18 or a developmental disability...

Kansas has CMS approval for a new I/DD waiver. Taking one of its 500 slots means giving up your place on the comprehensive waitlist.

Kansas Won Federal Approval for 500 Disability Waiver Slots That Open October 1

If your family's home care, respite hours, or day supports arrive through Medicaid, there is a piece of paper somewhere in your state capital with an expiration date on it. Most families never see it. On July 7, CMS made that paper harder to renew. In an informational bulletin, CMS rescinded the 2015 guidance that let states use a "fast track" review when they wanted to extend an existing Section 1115 demonstration without changing much about it. Under the old path, a state submitting a straightforward extension could expect a federal answer in a little over three months. With that guidance withdrawn, every 1115 extension now goes through the standard review process, which takes longer and looks harder at the details. Why CMS Made the Change. The 2025 reconciliation law, Public Law 119-21, added budget neutrality as a statutory requirement for Section 1115 demonstrations. Starting January 1, 2027, CMS cannot approve, renew, or amend a demonstration unless the agency's Chief Actuary certifies that the project costs the federal government no more than it would have spent without it. That certification applies to every state, the District of Columbia, and the territories. CMS said the expedited path could not coexist with that requirement. A three-month review does not leave room for an actuarial certification of a program that may cover a million people. So the agency withdrew the 2015 guidance and its application templates, and told states to plan for full reviews and longer timelines. Who This Touches. Here is the...

CMS rescinded expedited review for 1115 waiver renewals. Here is who it touches and how families can weigh in.

CMS Ended the Fast-Track Renewal Path for the Section 1115 Waivers That Fund Home Care in Seven States

When an investment firm buys the company that runs your adult son's group home, nothing on the building changes. Same address, same front door, often the same staff for a while. The purchase agreement is private, the new owner's plans are private, and in most states no one is required to tell the family anything at all. Illinois is close to changing that for its own residents. A bill passed by the General Assembly this spring and sent to Gov. JB Pritzker in late June would require providers serving people with intellectual and developmental disabilities to notify the state when an asset management company buys them. What the Bill Requires. The measures originated as SB3118 and HB4728, introduced in January by Sen. Javier Cervantes and Rep. Laura Faver Dias of Grayslake, and they passed both chambers with bipartisan support. Under the legislation, a licensed IDD provider that is acquired by an asset management company, meaning a private equity fund, hedge fund, or venture capital firm, has to report the transaction to the state. The new owner then reports financial activity and staffing levels on an ongoing basis, and must give the state notice before selling the operation to someone else. Providers that skip those filings face fines. The enforcement mechanism reaches past the licensing system. A violation is treated as an unlawful practice under the Illinois Consumer Fraud and Deceptive Business Practices Act, which brings the attorney general into a system that has historically been policed only by licensing inspectors....

An Illinois bill awaiting Pritzker's signature would force investment firms to report when they buy IDD group homes and how they staff them.

Illinois Lawmakers Sent the Governor a Bill Requiring Private Equity to Disclose Disability Group Home Purchases

If your child gets occupational therapy through the Oregon Health Plan, or your family relies on a prosthetic limb, a wheelchair seating evaluation, or an ABA program, those services now appear by name on a state document about where Oregon might spend less money. Nothing has been cut. No bill has passed. What happened is that a panel Gov. Tina Kotek convened to find savings finished its work and handed her a list, and the services disability families depend on are on it. What the Advisory Group Delivered. Oregon faces an estimated $421 million general fund gap in its 2027-29 Medicaid budget, according to reporting by OPB published July 8 and updated July 9. The gap traces to H.R.1, the federal law that made the deepest reductions to Medicaid since the program began. Oregon also projects roughly $2.5 billion in lost federal matching funds as enrollment drops under new work requirements and more frequent eligibility checks. Kotek asked an 18-member advisory group to find a way through with the least harm. The group met privately every two weeks for six months. It did not reach consensus, and it did not rank anything. Instead it produced more than 40 separate options for reducing spending and left the choosing to the governor and the legislature. "Ultimately, the governor and the legislature are going to have very difficult choices to make," former Oregon Health Authority director Bruce Goldberg told OPB. Kotek's own assessment was shorter: "We shouldn't be in this situation." Her budget...

Oregon's Medicaid advisory group named PT, OT, prosthetics, and ABA oversight among 40+ cost-cutting options. The budget lands in December.

Oregon Is Weighing Cuts to Physical Therapy, Prosthetics, and Autism Care for Medicaid Members

Every other year, one federal dataset does something no individual family can: it shows whether a school's treatment of disabled students is an isolated incident or a pattern. The Civil Rights Data Collection covers every public school in the country, tracking discipline rates, restraint and seclusion, bullying complaints, and how students get identified for special education. It has run for more than 50 years. This year, it's six months late, and the Education Department hasn't explained why. The numbers covering the 2023-24 school year were due out last December. NPR reported this week that repeated requests for an explanation went unanswered. A former staffer who worked on the collection said the team is still intact, but its future is unclear. The Office for Civil Rights, which houses the CRDC, is one of several offices the administration is moving out of the Education Department under a set of interagency agreements signed in June, this time shifting civil rights enforcement to the Department of Justice. Why This Data Matters for Disabled Students. The CRDC is the tool advocates use to show that Black and Hispanic students get identified for special education, and disciplined once they're in it, at higher rates than white peers with comparable needs. It's also the record that surfaces which schools restrain or seclude disabled students most often, and how bullying complaints get handled once a child is flagged as different. Lindsay Kubatzky of the National Center for Learning Disabilities pointed to a second, related move: the administration has...

Federal data on school discipline and disability services is six months overdue. Here's what parents can do while it's missing.

Federal Data That Tracks How Schools Serve Students With Disabilities Is Six Months Overdue. Here's What Parents Should Know.

The June 1 regulations from the Centers for Medicare & Medicaid Services were supposed to give states the clarity they needed. Instead, health policy experts and state officials say the new rules deviated so sharply from earlier guidance that 42 states and Washington, D.C. are now scrapping months of computer system preparation and starting over. For families with disabled members, the disruption matters even for those who are legally exempt from the new Medicaid work requirements. Exemptions have to be processed by the same systems now being rebuilt under deadline pressure. Why States Are Starting Over. The One Big Beautiful Bill Act, signed in July 2025, required states to implement Medicaid community engagement requirements by January 2027. Most states spent the following months working with contractors, including Deloitte, Accenture, and Optum, to build eligibility systems that could verify employment, volunteer hours, or other qualifying activities. The CMS final rules, published June 1, changed the terms of that work. Most significantly, they tightened the documentation requirements for the "medically frail" exemption. Under the new standard, states must assess "the severity of an individual's condition" rather than accept a simple attestation from the enrollee or a physician's note. That change alone invalidated significant portions of what states had already built. Nebraska launched early implementation on May 1, before the final rules were published, and is reworking its eligibility system in real time. Federal officials have acknowledged the implementation pressure but maintain the January 2027 deadline stands. What This Means for Disability Families....

New CMS rules are forcing states to scrap months of Medicaid system work. What disability families should do before terminations begin.

Medicaid Work Rules Are Forcing States to Rebuild Their Systems. Here's What Disability Families Should Know Before Coverage Terminations Begin.

Minnesota's Department of Human Services completed a court-ordered Medicaid provider revalidation on June 1, 2026. Of 5,583 providers spanning 13 high-risk program types, the state revalidated 2,061 (37%) and disenrolled 3,411 (61%). The deadline was midnight Sunday. Families woke up Monday morning to find that their child's ABA therapist, adult day program, or in-home caregiver could no longer bill Medicaid. About 2,491 providers had incomplete paperwork. Another 916 failed site visits. Some were listed as "pending" when the deadline passed and were disenrolled anyway. Roughly 800 have filed appeals. Some are pursuing legal action. This is not a Minnesota story. The Centers for Medicare & Medicaid Services (CMS) ordered all 50 states to run the same revalidation process. Minnesota went first. Your state is next. Who Was Affected. The revalidation targeted 13 "high-risk" Medicaid program types across all 87 Minnesota counties. That includes ABA therapy providers, adult day services, mental health programs, and Integrated Community Supports (ICS) for people with spinal cord injuries and disabilities. Matthew Barry's daughter was receiving full-time ABA therapy at Superior Steps, an autism treatment facility in Rochester. "We decided to enroll her full-time in ABA therapy, which was transformative for our family," Barry told the Post Bulletin. Superior Steps was disenrolled. Josh Berg runs Accessible Space Inc., which provides Integrated Community Supports (in-unit assistance for people with spinal cord injuries and disabilities). DHS terminated funding to five of his seven locations. Two got the green light. Five were cut. Disability advocates worry many legitimate providers...

Minnesota cut 3,411 disability providers in a single weekend. CMS ordered all 50 states to run the same audit.

Minnesota Just Disenrolled 61% of Its Medicaid Disability Providers. Other States Are Running the Same Audit. Here's What Families Need to Do Now.

On May 20, 2026, Cerebral Palsy Guide released a public advisory drawing fresh attention to a research-confirmed link many NICU families never hear about. Preterm birth sharply increases cerebral palsy risk. A systematic review published in December 2025 found that preterm infants have approximately 2.8 times higher odds of developing CP compared to full-term babies. For the most vulnerable group, infants born before 28 weeks, the odds jump to 12.45 times higher. The problem isn't just the risk itself. It's that families are often discharged from the NICU without being told what to watch for, what follow-up matters, or how to access early intervention before a diagnosis even exists. The Research Behind the Numbers. The 2025 systematic review, published in Neurology Research International, analyzed observational studies from multiple databases and revealed a clear dose-response pattern: the earlier the birth, the higher the risk.  Cerebral palsy odds by gestational age:   Extremely preterm (under 28 weeks): 12.45x higher odds Very preterm (28–31 weeks): 5.67x higher odds Moderate to late preterm (32–36 weeks): 1.89x higher odds All preterm births (under 37 weeks): 2.77x higher odds  A separate study from the NICHD Neonatal Research Network, led by Dr. Sara DeMauro at Children's Hospital of Philadelphia, tracked nearly 7,000 children born before 27 weeks across 25 academic centers from 2008 to 2019. Researchers found that 18.8% of these extremely preterm infants were diagnosed with cerebral palsy by age two. The rate increased by an average of 11% per year over that...

New research confirms preterm infants face 2.8x higher CP risk. Here are 3 questions to ask before NICU discharge.

Premature Birth Nearly Triples the Risk of Cerebral Palsy. Here's What to Ask Before NICU Discharge.

 The Senior Citizens League released a new estimate on May 12, 2026 projecting next year's Social Security cost-of-living adjustment at 3.9%. That's a significant jump from this year's 2.8% increase and from the 2.8% estimate that held steady for months before this revision. The estimate affects all Social Security beneficiaries, including the millions of families who rely on Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). According to reporting by Disability Scoop, the projection represents a 1.1 percentage point increase in just one month, driven by rising inflation tied to energy costs and tariff-related price pressures. What COLA Is and Why It Matters. The cost-of-living adjustment is the annual increase applied to Social Security benefits to account for inflation. It's calculated using the Consumer Price Index for Urban Wage Earners and Clerical Workers (CPI-W) from July through September. The Social Security Administration announces the official COLA each October, and the increase takes effect in January checks. For families of people with disabilities, COLA increases matter because SSI and SSDI often represent the primary or only income. In 2026, the maximum federal SSI benefit is $994 per month for an individual and $1,491 for a couple. The average SSDI payment for a disabled worker is $1,630 per month. A 3.9% adjustment would add roughly $39 to the maximum SSI payment and $64 to the average SSDI check. Those aren't life-changing amounts, but they matter when housing, medical equipment, and therapy costs rise faster than general inflation. What's Driving...

A new COLA estimate puts 2027 Social Security increases at 3.9%, up from this year's 2.8%, driven by rising inflation.

Social Security Benefits Could Rise 3.9% in 2027, New Estimate Shows

Casey Barrett is 43 years old. His 15-year-old daughter Olivia has an extremely rare genetic disorder and requires round-the-clock care. Until this year, Colorado's Medicaid waiver program paid him for over 100 hours a week as her primary caregiver. That income kept the family housed and fed in Westminster. On July 1, 2026, his hours drop to 84. On January 1, 2027, they drop to 70. By July 1, 2027, they'll be capped at 56 hours a week. Barrett told KUNC that the cuts will eliminate more than half his income. "The finances that we would need to just maintain would be gone." Colorado is the first state to publish an exact timeline for caregiver hour reductions. Ohio and Pennsylvania have signaled similar cuts are coming by mid-2026. Indiana is following. This isn't a local budget problem. It's the result of the federal Medicaid cuts in HR 1, the "One Big Beautiful Bill Act," which reduced federal funding for Medicaid by shifting more costs to states. Because home and community-based services are optional under federal law, they're the first thing states cut when federal funding falls. If your family member receives Medicaid-funded home care through a waiver program, here's what you need to know and what you can do right now. Why States Are Cutting Home Care First. Medicaid is jointly funded by states and the federal government. When federal funding drops, states face a gap they have to fill with their own budgets or close by cutting services. HR...

Colorado published the timeline for caregiver hour cuts. Ohio and Pennsylvania are next. What families can do now.

Colorado Is Halving Paid Family Caregiver Hours. Ohio and Pennsylvania Are Next. What Families on Medicaid Waivers Need to Do Now.

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Articles

Education Department Confirms Special Education Staff Are Moving to HHS, With No Timeline

Your Child's Doctor Now Has to Have an Accessible Exam Table and Wheelchair-Accessible Scale

Kansas Won Federal Approval for 500 Disability Waiver Slots That Open October 1

CMS Ended the Fast-Track Renewal Path for the Section 1115 Waivers That Fund Home Care in Seven States

Illinois Lawmakers Sent the Governor a Bill Requiring Private Equity to Disclose Disability Group Home Purchases

Oregon Is Weighing Cuts to Physical Therapy, Prosthetics, and Autism Care for Medicaid Members

Federal Data That Tracks How Schools Serve Students With Disabilities Is Six Months Overdue. Here's What Parents Should Know.

Medicaid Work Rules Are Forcing States to Rebuild Their Systems. Here's What Disability Families Should Know Before Coverage Terminations Begin.

Minnesota Just Disenrolled 61% of Its Medicaid Disability Providers. Other States Are Running the Same Audit. Here's What Families Need to Do Now.

Premature Birth Nearly Triples the Risk of Cerebral Palsy. Here's What to Ask Before NICU Discharge.

Social Security Benefits Could Rise 3.9% in 2027, New Estimate Shows

Colorado Is Halving Paid Family Caregiver Hours. Ohio and Pennsylvania Are Next. What Families on Medicaid Waivers Need to Do Now.

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Special Needs Articles

Education Department Confirms Special Education Staff Are Moving to HHS, With No Timeline

Your Child's Doctor Now Has to Have an Accessible Exam Table and Wheelchair-Accessible Scale

Kansas Won Federal Approval for 500 Disability Waiver Slots That Open October 1

CMS Ended the Fast-Track Renewal Path for the Section 1115 Waivers That Fund Home Care in Seven States

Illinois Lawmakers Sent the Governor a Bill Requiring Private Equity to Disclose Disability Group Home Purchases

Oregon Is Weighing Cuts to Physical Therapy, Prosthetics, and Autism Care for Medicaid Members

Federal Data That Tracks How Schools Serve Students With Disabilities Is Six Months Overdue. Here's What Parents Should Know.

Medicaid Work Rules Are Forcing States to Rebuild Their Systems. Here's What Disability Families Should Know Before Coverage Terminations Begin.

Minnesota Just Disenrolled 61% of Its Medicaid Disability Providers. Other States Are Running the Same Audit. Here's What Families Need to Do Now.

Premature Birth Nearly Triples the Risk of Cerebral Palsy. Here's What to Ask Before NICU Discharge.

Social Security Benefits Could Rise 3.9% in 2027, New Estimate Shows

Colorado Is Halving Paid Family Caregiver Hours. Ohio and Pennsylvania Are Next. What Families on Medicaid Waivers Need to Do Now.

Find Providers Near You

Special Needs
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