Your young adult has graduated or is about to, and both of you want them to work. But the gap between wanting and doing feels enormous when your child has a disability that affects how they learn tasks, communicate with coworkers, or manage the unspoken social rules of a workplace. That's where job coaches come in. Job coaches aren't therapists or classroom aides. They're workplace strategists who teach the job, translate the culture, and help your young adult build the skills to succeed without someone standing next to them forever. Here's what they do, how to access them at no cost, and how job carving creates roles that match what your child can do instead of forcing them into roles they can't. What a Job Coach Does. A job coach is a trained professional who works one-on-one with your young adult at their job site. They don't do the work for them. They teach how to do the work, how to interact with supervisors and coworkers, and how to navigate the workplace culture that no one writes down. The goal is independence. The coach gradually reduces support as your young adult becomes more confident and capable. That timeline varies by person and by job complexity, but the structure is always the same: intensive support at the start, fading support as skills build, eventual independence. Here's what that looks like in practice:  Task training. The coach breaks down job tasks into steps your young adult can follow. If the job...

What job coaches do, how to access them through VR at no cost, and how job carving creates roles that fit your young adult's strengths.

How Job Coaches Help Young Adults with Disabilities Succeed in the Workplace

You're looking at your adult child and asking yourself when the housing conversation should start. Most parents I talk to think there are two options: live with us or move to a group home. The problem is everything in between gets skipped, and that middle ground is where most people land. The housing continuum for adults with disabilities runs from 24-hour staffed group homes to fully independent apartments. In between are supported living arrangements, family care homes, and independent living programs with varying levels of staff support. The right fit depends on your child's support needs, not on what you think independence should look like or what other families are doing. Here's the full continuum, how to assess which level makes sense, and how Medicaid funding works for each option. What the Housing Continuum Looks Like. Every option on the continuum exists because different people need different things, not because some placements are better than others or some adults are more deserving of independence. The only meaningful question is: what does your child need to live safely and work toward what they want?  Group homes house 4–8 residents with 24-hour staff coverage. Staff are there around the clock, handling medication management, meal preparation, personal care, and daily structure. The provider owns or leases the home, so residents don't hold the lease and have less control over household decisions. This setting fits people whose safety genuinely requires continuous oversight: medical complexity, behaviors that need trained staff intervention, or situations where...

The full housing continuum from group homes to independence, with a framework for assessing the right level of support for your child.

Housing Options for Adults with Disabilities: From Supported Living to Independence

Your child turns 18 in six months, and the school's transition coordinator has been asking whether you've "looked into guardianship." Your sister mentions it every time you see her. The developmental pediatrician brought it up at the last appointment. Everyone seems to agree: if your child needs ongoing support, guardianship is what happens next. Except that's not the only option. It's just the one most people know. Guardianship strips legal rights from the person under guardianship. It hands those rights to someone else. Supported decision-making doesn't. It builds a framework for making decisions together, with the adult with disabilities maintaining their legal autonomy. The difference matters because rights, once removed, are extraordinarily difficult to restore. What Guardianship Does. Guardianship is a court process that declares an adult legally incompetent to make their own decisions. The court appoints a guardian who has the legal authority to make decisions on their behalf. Those decisions can include where they live, what medical treatment they receive, who they see, and how their money is spent. The scope varies by state and by the type of guardianship granted. Full guardianship removes all decision-making rights. Limited guardianship restricts specific areas like finances or healthcare while preserving others. But in both cases, the mechanism is the same: the court determines the person can't make decisions, and assigns those decisions to someone else. Guardianship is permanent until a court reverses it. That reversal requires proving competence in court, often with the same judge who made the original determination....

Why supported decision-making preserves rights that guardianship removes for adults with disabilities.

Supported Decision-Making vs. Guardianship: What Every Parent Should Know Before Their Child Turns 18

 Photo Credit: Freddie B. Photography™      The number of special needs adults that end up in the system is growing because they are outliving their elderly parents, who are their primary caregivers.        Special needs adults remain a prime concern for their aging parents. Patricia E. Bauer in the Atlanta Journal-Constitution says: "A growing generation of parents is now facing old age and the prospect that their children with disabilities will outlive them. As have 2006, more than 716,00 adults with developmental disabilities were living with caregivers over the age of 60 in the United States."        As a world correspondent for  SpecialNeeds.com , I've had the opportunity to cover the Special Olympic World Games LA2015. California State Senator Jeff Stone of the 28th district has recognized my work. At a presentation ceremony I was presented with a proclamation award for educating people about the coming of the Special Olympics through the "Circle of Inclusion" campaign.        Senator Stone shared with me his commitment to special need adult care. He is making it his personal mission to help put back the monies that was taken away from programs that cared for special needs adults here in California as well as throughout the nation. When I told him about my mission to create a Nationwide Special Needs Adult Care Resource Network, he invited me to present this...

As parents of special needs adults age, a nationwide resource network to provide vital care and support is proposed.

Special Needs Adults and their Aging Parents

I have had the pleasure to know mothers and fathers of special needs children who have created their own schools or their own curriculums so their children could learn life skills and social skills, two of the key building blocks for independence, for two main reasons; first many schools are not including it their programs and secondly, to help other parents on their journey to prepare their child for real life.  BUT: I have also had the not so wonderful experience watching parents drop off their son or daughter at the front door of the classroom or waving," have a great day" as the yellow bus pulls out of the drive way and expect the school team to prepare their child for real life. The parents promise, at the IEP meeting, they will have their son or daughter start doing chores, prepare his/her lunch, help out in the kitchen during meal preparation or clean up or begin learning all key grooming skills. I have witnessed parents shaking their head "yes" to the teacher who pleads with them to start now expecting their son or daughter to do their laundry, make their bed, change their sheets, help with the grocery shopping or even help dad in the back and front yard.  BUT they never execute.      I understand that cultural beliefs and values, the lack of time, wanting to avoid confrontation and/ or accepting imperfection may get in the way of parents ever starting, but...

Parents of special needs children should take active roles in teaching independence, rather than leaving it all to schools.

Getting Out of Our Own Way &#8212; Making Independence possible for my child with special needs

Making decisions for others is never easy. In fact, it's probably one of the hardest things one can do for someone, especially if that person is their child. When a family is coping with mental illness and intense special needs and a parent is charged with not only choosing interventions to support what a child's life will look like as they grow but also what their adulthood will look like long after they themselves are deceased, the challenge becomes overwhelming. The alternative to not making the decision to support the child and instead controlling them dis-empowers the child who might then lash out and become more oppositional and self destructive the more a parent insists on them conforming.  The emotional weight of making choices for someone else can cause a tremendous amount of anxiety and stress not to mention an underlying feeling of dread.  Perhaps the hardest part about making the decision about what your child's future will look like is accepting that it isn't going to even slightly resemble what you dreamed of when you fantasized about their life. If you are like me, that included typical milestones like dance recitals, graduation ceremonies, walking the wedding aisle and holding grandbabies.  Often when our children are struggling to keep their heads above water, maintain appropriate behaviors and perform in socially acceptable ways, there are rarely those extraordinary ordinary moments like congratulating them on their first job or the joys of helping them to decorate their first apartment....

Parents face immense challenges planning a future for children with special needs, ensuring their best interests amidst uncertainty.

Designing a Future for a Child with Special Needs

 Successful Transitions: Moving from Childhood into Adulthood and from Pediatrics into Adult Care   Whether your child is a toddler or a teenager, transition is a word you need to know. As the parent of a teenager with asthma, allergies, cystic fibrosis, diabetes, epilepsy, hemophilia, or any other serious medical condition, your medical professionals have probably talked with you about "transition." But don't stop reading if you have a young child! This affects you, too, even if your doctors haven't mentioned transition yet. It can take years to properly prepare a child for medical independence. The more complicated the medical regimen, the longer it takes. When a child has a complex medical condition, the transition process should start in early childhood if possible. The best time to start learning about transition is right now! So, what exactly is transition and why does it matter?
 First, let's define the lingo that is often used when discussing transition. The word "transition," as used in the medical community, is defined by the American Academy of Pediatrics as "the purposeful, planned movement of adolescents and young adults with chronic physical and medical conditions from child-centered to adult-oriented health care system.'" So, "transition" refers to the process of preparing a child (and parents) for independence and the eventual shift into adult medical care. The word "transfer" refers to the specific point in time that a patient moves into the adult medical system. These two concepts are very different but you might hear them...

Parents should start early preparing special needs kids for medical transition to adult care and independence.

Successfully Transitioning Special Needs Kids

Whether single or married, raising biological children or other adopted children, potential adoptive families are guided by their desire to make a difference in a child's life, which is a wonderful starting point. Successfully parenting a child with special issues requires the attributes that all parents need: love, patience, a commitment to nurture your child, and a stable home, among others. However, in addition, successfully parenting a child with special issues may well require extra time to meet the child's needs, the ability to advocate for the child and access to medical care, early intervention, and other services. The term "special needs" can cover a broad range of conditions from medically fragile children with complicated syndromes to those at risk for developmental, behavioral, or learning issues due to pre-natal exposure to drugs or alcohol or having birth parents with heritable psychiatric illnesses. It is important for each family to consider what special needs they feel equipped to help with and which are the best match for their family. Often family members draw upon their own personal experiences when making this decision. They may be raising a biological child with special challenges or they may have grown up with a special needs child as a sibling, close relative, or family friend. An individual's occupation may also impact on their decision, e.g. a nurse may feel comfortable with a child with medical issues, while a teacher feels prepared to parent a child who was drug-exposed and at risk for learning and behavior...

Adoption guide for children with special needs, including preparation, costs, and maintaining birth family ties.

Adopting a Child with Special Needs

 On an unusually cold day in Hong Kong, China my husband and I walked into an orphanage to meet a four year old child who would soon become our son. Hours later we walked out of the orphanage not only with a new family member in our presence, but with a new title as well–special needs family.    At the time of adoption, our son had been diagnosed in Hong Kong with severe Autism and significant cognitive delay. We weren't entirely sure what to expect once we were home. We knew that outside of the orphanage he would be able to reach his full potential and that his diagnoses might change. As weeks turned into months, we realized that our son not only had significant special needs, but that he was deeply traumatized by his past four years of institutionalization. The first year home was a challenging time of growth and adjustment for us all. Now we are approaching the 1.5 year mark home and life seems to finally be reaching a new level of normal. Our son's diagnosis remains, but he has made remarkable progress.    The most frequent question we get from others is "why?" Why would we adopt an older, special needs child with very difficult behavior who will most likely need life-long care? The answer is not simple nor is it easy to explain. My husband and I always knew that we would grow our family through adoption instead of the...

A couple shares their journey of adopting a special needs child from Hong Kong, embracing the challenges and joys along the way.

Adopting the Special Needs Child

For young adults with special needs, the transition from high school to adult life brings a new set of opportunities and challenges. Your child must have a transition plan by age 16. Beginning to plan early will increase his opportunity to achieve the greatest independence. As challenging as the day-to-day can be raising a special needs child, planning can't wait. The first step is to form a transition team. The team includes you (the parent or guardian), your child, educators, employers (if your child is employed) and administrators. It incorporates many areas of your child's life–vocational and employment, post-secondary education, life skills, life plan and legal and financial planning. Your child should have the central role in planning, expressing his desires for his future. You, the parent, are the lead advocate in helping your child become independent. As you create your child's transition plan, there are many factors to consider. Consider what experiences your child has had, and create opportunities for new experiences. For example, if your child has not had a job, help him find a part-time job or volunteer opportunity. Engage her in community activities so that she is comfortable in a variety of situations with different people. Keep in mind quality-of-life issues. Does your child have a social network or the skills to build one? Consider a service club at school, or Boy or Girl Scouts, or a youth program at your church or temple. Learn what housing services are available and what will be the best...

Parents must create a transition plan by age 16 for children with special needs, involving a team to support independence and future goals.

Support for the Transition to Adulthood

 After beginning our   Transition article series  , we received a question from a reader telling us about her experience going from a pediatric clinic to an adult clinic. This patient explains to us her common concern that so many others experience. Lisa Greene responds with some very helpful advice.   Question:  “I was 19 when I transitioned and it was a huge shock. My peds doctors were amazing, my mom was usually with me but even then my peds doc spoke directly to me and helped prepare me for what was coming. She took so much interest in my life outside of cystic fibrosis (CF) as well (she knew that what was going on at home affected my CF). Transitioning to the adult clinic was awful. I felt that my new doctor didn't care about me as a person and that I was just another patient to her…I'm naturally a shy person and after that first disaster of an appointment, I just retreated into myself. After a few more appointments, we have slowly started to get to know each other and I've relaxed a bit more, but its still not the same. I still have the feeling that I'm such an inconvenience to her. . . and it really kills me every doctor's appointment. My peds docs were like family. . . and I was hoping that my adult doctor would be the same, especially since I'm always up there and always having to...

Transition from peds to adult care can be tough; patient advocacy and understanding different medical models are key.

Advice on Transition from Pediatrics to Adult

  It is all well and good to be told, as a parent, you must be ready for when your child with a developmental disability is no longer in special ed full time. Yet, to me that time crept up in 2000. When my son with autism, now 31, was out of school I thought it would all be very easy. I was optimistic, sure that a local developmental disability related nonprofit (NPO) would agree to work with him since he had been at work sites starting at 14 by his school. I was unrealistic. I hope I can give other parents ideas on what to do and/or expect for supported work services, Social Security, Medicaid and Medicare for such children.            After I applied for him, the nearest NPO did not agree to give my son supported work services. Yet, I had done paperwork and two staff from his school attended the open house. Nothing prepared me for the setback. I again sought a willing agency so my son, with no meds, was productively occupied, ideally working with transportation. I got adult lifetime child support for my son so he had other income, though it lowered his SSI payments for years.            Doing paperwork, visiting job sites, meeting NPOs and coordinating it all with my other son took time. What I learned–and what you must know is–there is...

A parent shares challenges and insights on transitioning a child with developmental disabilities from special ed to adult life.

When Your Child Grows Up &#038; Out of Special Ed

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Special Needs
Articles

How Job Coaches Help Young Adults with Disabilities Succeed in the Workplace

Housing Options for Adults with Disabilities: From Supported Living to Independence

Supported Decision-Making vs. Guardianship: What Every Parent Should Know Before Their Child Turns 18

Special Needs Adults and their Aging Parents

Getting Out of Our Own Way — Making Independence possible for my child with special needs

Designing a Future for a Child with Special Needs

Successfully Transitioning Special Needs Kids

Adopting a Child with Special Needs

Adopting the Special Needs Child

Support for the Transition to Adulthood

Advice on Transition from Pediatrics to Adult

When Your Child Grows Up & Out of Special Ed

Find Providers Near You

Special Needs Articles

How Job Coaches Help Young Adults with Disabilities Succeed in the Workplace

Housing Options for Adults with Disabilities: From Supported Living to Independence

Supported Decision-Making vs. Guardianship: What Every Parent Should Know Before Their Child Turns 18

Special Needs Adults and their Aging Parents

Getting Out of Our Own Way &#8212; Making Independence possible for my child with special needs

Designing a Future for a Child with Special Needs

Successfully Transitioning Special Needs Kids

Adopting a Child with Special Needs

Adopting the Special Needs Child

Support for the Transition to Adulthood

Advice on Transition from Pediatrics to Adult

When Your Child Grows Up &#038; Out of Special Ed

Find Providers Near You

Special Needs
Articles

Getting Out of Our Own Way — Making Independence possible for my child with special needs

When Your Child Grows Up & Out of Special Ed