Results
Global Insights > Healthcare
Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed
...doesn't come close to covering your child's...can't afford the care your child needs....with special health care needs, according...needs, according to KFF. But most working...needed hospital-level care but could be treated...in an institution to receive coverage...though some refer to it as the TEFRA option...require institutional care without home-based...
Special Needs > Muscular Dystrophy
Muscular Dystrophy in 2026: What Families Need to Know About Gene Therapy and Daily Life
...headlines, respiratory care milestones, positioning...guide covers both: how to evaluate gene therapy...as an option, and how to manage the realities...narrow: boys ages 4 to 5 with confirmed DMD...FDA expanded approval to include boys ages 4...include boys ages 4 to 7 who are still ambulatory....more families now have access, but the eligibility...
Special Needs > Visual Impairments
Braille and Technology: Why Your Child with Visual Impairment Needs Both
...everything Braille used to do, and they're...from people who care about your child's...you're left trying to choose between...tools that seem to serve the same...convert digital text to speech. They're...visual impairments access to the same content...impairments access to the same content...unmatched. Listening to a textbook chapter...teaches children to read actively,...
Financial > Government Benefits
Medicaid Waiver Waiting Lists: How to Access Services While You Wait (and How to Jump the Line)
...When you call to check your...was supposed to fund personal...fund personal care, respite,...rely on aging caregivers working...three ways to access services...three ways to access services faster,...ways applies to 80% of people...disabilities to live at home...Personal care assistance...toileting) Respite care for family...for family caregivers Supported...require states to offer waivers,...is willing to fund, waiting...
Education > Higher Education
College Programs for Students with Intellectual and Developmental Disabilities: What CTPs Offer
...offer a pathway to college experiences...structured alternative to traditional four-year...They're designed to build independent...living skills, career readiness, and...program, usually two to four years, that...academic coursework, career training, and...participating in career-focused classes,...practical knowledge. Career training often...not just exposure to the idea of work....
Special Needs > Cancer
Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports
...can't run like they used to. Late effects are the...phase is not a return to normal. It's a transition...normal. It's a transition to a different kind of...Here's what you need to know about recognizing...developing systems were to permanent change. The...surveillance is standard of care. If your child's oncology...discussed a survivorship care plan, ask...
Special Needs > Down Syndrome
Your Early Intervention Roadmap for Down Syndrome: Therapy Options from Birth to Age Three
...old enough to sit up. You...up. You need to know what those...start, and how to access them...and how to access them without...for someone to call you back....from birth to age three at...at no cost to your family....alone is enough to qualify in...processing, and self-care tasks like...transitioning to solids. The...transition to finger foods....builds on. How to...
Special Needs > Diabetes
Your Child's 504 Plan for Diabetes: A Complete Guide for School Management
...and how to change pump...school wants to meet about...supposed to know what...know what to ask for....child's access to the medical...child's access to the medical...medical care they need...what needs to be in it,...and how to push back...child needs access to blood...needs access to blood glucose...diabetes care (school...stored and care happens...administration, when to call 911)..."We'll take care of...
Social Engagement > Discrimination
Understanding Disability Discrimination: Your Rights and How to Take Action
...according to a 2022 Urban...knowing what to call it, which...applies, or where to file a complaint....you, and how to file complaints...practices, refusal to provide required...work: Failure to provide reasonable...termination, refusal to hire based...denying equal access to benefits...equal access to benefits and...employed compared to 65.5% of people...plus failure to accommodate...Denial of care, substandard...treatment compared to non-disabled...
Research > Clinical Trials
The Questions Every Parent Should Ask Before Enrolling in a Clinical Trial
...was designed to obscure rather...they've agreed to. The consent process...the pressure to say yes can feel...answers. Here's what to ask before you...questions designed to filter out trials....trial compared to standard care?...compared to standard care? The consent...What you need to know is how those...risks compare to what your child...procedures compared to what my child...
Parenting > Self-Care
The Respite Care Blueprint: How to Find, Fund, and Use Backup Care
...where to turn...backup care, even..."respite care" mentioned...where to find...how to pay for...Respite care isn't...in-home care, facility-based...Respite Care Program...vouchers up to $500...respite care available,...how to access...how to access each...how to prepare...backup care works...Respite Care Is. Respite...Respite care is temporary...relief caregiving...who care for someone...primary caregivers...time to rest,...safety or care quality....prevents caregiver...family caregiving...
Parenting > General
The 2026 Child Care Crisis: What Parents of Children with Disabilities Need to Know
...child needs child care now, not in two...three days later to say they don't...you're failing to solve. It's a structural...Plan Act child care stabilization grants...require lower child-to-staff ratios. Many...ratios. Many need one-to-one support. That...licensed child care centers operate...4:1 or 6:1 child-to-staff ratio, depending...The program needs to hire additional...