Results
Medical > Cardiology
Cardiomyopathy Monitoring Schedule for Duchenne Muscular Dystrophy
The age-by-age cardiac testing calendar for DMD, from diagnosis through the transition to adult cardiology care.
Financial > Financial Planning
Long-Term Care Insurance and Disability: Planning for Future Care Costs
...long-term care insurance...catastrophic care costs. But...long-term care insurance...match the care model your...families start care planning....long-term care insurance...disability care planning,...Long-Term Care Insurance...Long-term care insurance...custodial care when you...nursing home care, assisted...in-home care, and adult...care, and adult day programs....doesn't cover medical treatment....
Special Needs > Spina Bifida
Teaching Bowel and Bladder Independence in Spina Bifida: A Guide for Parents
...all the caths, all the bowel care, and the idea of handing that...bowel management aren't just medical tasks. They're the foundation...participation, employment, and adult relationships. A teenager who...day for the nurse. A young adult who handles their bowel program...participating in their own care by age 8 to 10 have higher rates...
Special Needs > Cystic Fibrosis
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
...teen's CF care has been...transition to adult CF care...adult CF care is a documented...aren't medical. They're...structural. Adult clinics...derail care. Parents...arrive at adult clinics...pediatric care to 21 if...if the adult clinic...with the care team. What...Changes in Adult CF Care....Adult CF Care. Pediatric...Pediatric CF care is family-centered....clinic. Adult CF care...Adult CF care assumes...their own care. Your presence...
Parenting > Adulthood
Housing Options for Adults with Disabilities: From Supported Living to Independence
You're looking at your adult child and asking yourself...housing continuum for adults with disabilities runs...living arrangements, family care homes, and independent...better than others or some adults are more deserving of...preparation, personal care, and daily structure....continuous oversight: medical complexity, behaviors...
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
...coordinates bladder and bowel care, tracks orthopedic concerns....2023 Spina Bifida Clinical Care Guidelines say you should have...four-year gap creates preventable care crises. Transition planning...to manage their own complex medical needs, navigate insurance, advocate...about them taking over their care immediately. It's about moving...
Special Needs > Cancer
Supporting Siblings When a Child Has Cancer: A Family Guide
...information, less control, and often less adult attention at the exact moment their...around them. Research shows that 84% of adult siblings of childhood cancer survivors...shrinks, not because parents don't care, but because the child in treatment...the child in treatment has immediate medical needs that consume available attention....
Special Needs > Diabetes
Managing Diabetes When Your Child Has Another Disability: A Dual Diagnosis Guide
...physical disability isn't just standard diabetes care with extra steps. The entire approach changes because...skills that may not match your child's profile. The medical system treats the two diagnoses separately, but...confusion, and hunger, then communicate them to an adult and cooperate with testing and treatment. That...
Social Engagement > Support Groups
Finding Your People: A Complete Guide to Support Groups for Special Needs Families
...understands the medical nuances, not just...emotional context. Caregiver support groups...anyone providing care: spouses, adult children...providing care: spouses, adult children caring for...Association and Family Caregiver Alliance run...national programs for caregivers managing burnout,...logistics of long-term care. If you're not a...you're shouldering caregiving responsibilities,...
Lifestyle > Travel
The Complete Air Travel Guide for Families with Special Needs
Flying with a child or adult who has a disability can feel like navigating a...practice. The TSA website lists exceptions for medical equipment, but the language is dense and procedural....aisle seats give you more room for transfers, medical equipment, or a child who needs space to regulate....
Health > Exercise
Yoga for People with Disabilities
...realize it's not your typical adult yoga class. Yoga instruction...instruction for children and adults with disabilities is increasingly...catching the attention of parents, caregivers, and medical professionals....of parents, caregivers, and medical professionals. Parents and...professionals. Parents and caregivers of individuals with special...
Parenting > Adulthood
Successfully Transitioning Special Needs Kids
...into Adult Care...Adult Care Whether...serious medical condition,...your medical professionals...child for medical independence....complicated the medical regimen,...complex medical condition,...in the medical community,...young adults with chronic...physical and medical conditions...child-centered to adult-oriented...health care system.'"...into adult medical...adult medical care....medical care. The word...into the adult medical...adult medical system....