Special Needs

Articles

...teen's CF care has been...transition to adult CF care...adult CF care is a documented...aren't medical. They're...structural. Adult clinics...derail care. Parents...arrive at adult clinics...pediatric care to 21 if...if the adult clinic...with the care team. What...Changes in Adult CF Care....Adult CF Care. Pediatric...Pediatric CF care is family-centered....clinic. Adult CF care...Adult CF care assumes...their own care. Your presence...

You're looking at your adult child and asking yourself...housing continuum for adults with disabilities runs...living arrangements, family care homes, and independent...better than others or some adults are more deserving of...preparation, personal care, and daily structure....continuous oversight: medical complexity, behaviors...

...coordinates bladder and bowel care, tracks orthopedic concerns....2023 Spina Bifida Clinical Care Guidelines say you should have...four-year gap creates preventable care crises. Transition planning...to manage their own complex medical needs, navigate insurance, advocate...about them taking over their care immediately. It's about moving...

...information, less control, and often less adult attention at the exact moment their...around them. Research shows that 84% of adult siblings of childhood cancer survivors...shrinks, not because parents don't care, but because the child in treatment...the child in treatment has immediate medical needs that consume available attention....

...physical disability isn't just standard diabetes care with extra steps. The entire approach changes because...skills that may not match your child's profile. The medical system treats the two diagnoses separately, but...confusion, and hunger, then communicate them to an adult and cooperate with testing and treatment. That...

...understands the medical nuances, not just...emotional context. Caregiver support groups...anyone providing care: spouses, adult children...providing care: spouses, adult children caring for...Association and Family Caregiver Alliance run...national programs for caregivers managing burnout,...logistics of long-term care. If you're not a...you're shouldering caregiving responsibilities,...

Flying with a child or adult who has a disability can feel like navigating a...practice. The TSA website lists exceptions for medical equipment, but the language is dense and procedural....aisle seats give you more room for transfers, medical equipment, or a child who needs space to regulate....

...realize it's not your typical adult yoga class. Yoga instruction...instruction for children and adults with disabilities is increasingly...catching the attention of parents, caregivers, and medical professionals....of parents, caregivers, and medical professionals. Parents and...professionals. Parents and caregivers of individuals with special...

...into Adult Care...Adult Care Whether...serious medical condition,...your medical professionals...child for medical independence....complicated the medical regimen,...complex medical condition,...in the medical community,...young adults with chronic...physical and medical conditions...child-centered to adult-oriented...health care system.'"...into adult medical...adult medical care....medical care. The word...into the adult medical...adult medical system....

...expenses are actually for adult care. While many medical...are actually for adult care. While many medical and...adult care. While many medical and social advances have...The cost and toll of caregiving for a special needs...interaction experiences for adults with special needs is...available for the growing adult special needs population,...

...into the adult medical...the adult medical system is...needs. The medical care models...medical care models are...and young adults express...comments from adults with cystic...pediatrics to adult-oriented...adult-oriented medical care:...medical care: I had...pediatric to the adult clinic because...with my adult doctor because...are more adult health concerns...talking to an "adult" doctor...doctor about "adult" problems....

...going from a pediatric clinic to an adult clinic. This patient explains to us...affected my CF). Transitioning to the adult clinic was awful. I felt that my new...awful. I felt that my new doctor didn't care about me as a person and that I was...family. . . and I was hoping that my adult doctor would be the same, especially...