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Your First Call to a Parent Training and Information Center: What to Have Ready
Legal > Advocacy

Your First Call to a Parent Training and Information Center: What to Have Ready

By Ethan Parker

What to gather, what to say, and what to ask for when you call your state's Parent Training and Information Center for free help.

Kansas Won Federal Approval for 500 Disability Waiver Slots That Open October 1
News > Advocacy

Kansas Won Federal Approval for 500 Disability Waiver Slots That Open October 1

By Henry Peterson

Kansas has CMS approval for a new I/DD waiver. Taking one of its 500 slots means giving up your place on the comprehensive waitlist.

CMS Ended the Fast-Track Renewal Path for the Section 1115 Waivers That Fund Home Care in Seven States
News > Advocacy

CMS Ended the Fast-Track Renewal Path for the Section 1115 Waivers That Fund Home Care in Seven States

By Amelia Harper

CMS rescinded expedited review for 1115 waiver renewals. Here is who it touches and how families can weigh in.

Illinois Lawmakers Sent the Governor a Bill Requiring Private Equity to Disclose Disability Group Home Purchases
News > Advocacy

Illinois Lawmakers Sent the Governor a Bill Requiring Private Equity to Disclose Disability Group Home Purchases

By Henry Peterson

An Illinois bill awaiting Pritzker's signature would force investment firms to report when they buy IDD group homes and how they staff them.

Oregon Is Weighing Cuts to Physical Therapy, Prosthetics, and Autism Care for Medicaid Members
News > Advocacy

Oregon Is Weighing Cuts to Physical Therapy, Prosthetics, and Autism Care for Medicaid Members

By Amelia Harper

Oregon's Medicaid advisory group named PT, OT, prosthetics, and ABA oversight among 40+ cost-cutting options. The budget lands in December.

How to Document Your Disability for IEP Advocacy Without Oversharing
Global Insights > Advocacy

How to Document Your Disability for IEP Advocacy Without Oversharing

By Benjamin Thompson

How much medical detail an IEP file actually needs, and how to keep the rest out of your child's permanent record.

Parent Training and Information Centers: Free Advocacy Help in Every State
Legal > Advocacy

Parent Training and Information Centers: Free Advocacy Help in Every State

By Ethan Parker
...what's missing. They can review a draft IEP before the meeting and flag goals that are too vague to measure. Many centers will walk you through IEP advocacy step by step: what to bring, what questions to ask, and where parents typically get talked out of...
Federal Data That Tracks How Schools Serve Students With Disabilities Is Six Months Overdue. Here's What Parents Should Know.
News > Advocacy

Federal Data That Tracks How Schools Serve Students With Disabilities Is Six Months Overdue. Here's What Parents Should Know.

By Amelia Harper

Federal data on school discipline and disability services is six months overdue. Here's what parents can do while it's missing.

Medicaid Work Rules Are Forcing States to Rebuild Their Systems. Here's What Disability Families Should Know Before Coverage Terminations Begin.
News > Advocacy

Medicaid Work Rules Are Forcing States to Rebuild Their Systems. Here's What Disability Families Should Know Before Coverage Terminations Begin.

By Amelia Harper

New CMS rules are forcing states to scrap months of Medicaid system work. What disability families should do before terminations begin.

Minnesota Just Disenrolled 61% of Its Medicaid Disability Providers. Other States Are Running the Same Audit. Here's What Families Need to Do Now.
News > Advocacy

Minnesota Just Disenrolled 61% of Its Medicaid Disability Providers. Other States Are Running the Same Audit. Here's What Families Need to Do Now.

By James Williams

Minnesota cut 3,411 disability providers in a single weekend. CMS ordered all 50 states to run the same audit.

Life Skills Milestones for Children with Cerebral Palsy
Lifestyle > Independence

Life Skills Milestones for Children with Cerebral Palsy

By Nora Bloom
...toileting well into elementary school. A child with athetoid CP may struggle with precise hand movements required for buttoning but develop verbal self-advocacy skills earlier than expected. Progress doesn't follow a single path. The goal is functional independence in the areas that matter most for your child's...
Social Security Benefits Could Rise 3.9% in 2027, New Estimate Shows
News > Advocacy

Social Security Benefits Could Rise 3.9% in 2027, New Estimate Shows

By Henry Peterson

A new COLA estimate puts 2027 Social Security increases at 3.9%, up from this year's 2.8%, driven by rising inflation.

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