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Lifestyle > Independence
Building Independence: A Life Skills Roadmap for Children with Special Needs
...out until you stop doing it for them. That's the core tension...instinct to help is faster, cleaner, and kinder in the moment. But...round-the-clock support or can be alone for hours. Household management...families. Communication and self-advocacy are the skills that protect...you're not in the room. Asking for help, explaining needs to strangers,...
News > Advocacy
Children with Disabilities Are Getting Stuck in Hospitals After Being Cleared for Discharge
...country after being medically cleared for discharge. The practice,...after being medically cleared for discharge. The practice, called...reimbursed 19 hospitals $16.3 million for 9,943 boarding days last year,...runs as high as $3,932 per day for children with complex medical...don't have training or resources for medically complex children....
News > Advocacy
Medicaid Work Rules Are Forcing States to Rebuild Their Systems. Here's What Disability Families Should Know Before Coverage Terminations Begin.
...regulations from the Centers for Medicare & Medicaid Services...preparation and starting over. For families with disabled members,...the disruption matters even for those who are legally exempt...the documentation requirements for the "medically frail" exemption....deadline stands. What This Means for Disability Families....
News > Advocacy
Minnesota Just Disenrolled 61% of Its Medicaid Disability Providers. Other States Are Running the Same Audit. Here's What Families Need to Do Now.
...is not a Minnesota story. The Centers for Medicare & Medicaid Services (CMS) ordered...Integrated Community Supports (ICS) for people with spinal cord injuries and...ABA therapy, which was transformative for our family," Barry told the Post Bulletin....Community Supports (in-unit assistance for people with spinal cord injuries and...
Lifestyle > Independence
Life Skills Milestones for Children with Cerebral Palsy
...age-based norms for dressing independently....None of it accounts for cerebral palsy. Life...skills development for children with CP...CP. Life skills for children with cerebral...adaptive equipment for toileting well into...movements required for buttoning but develop...develop verbal self-advocacy skills earlier than...that matter most for your child's daily...
News > Advocacy
Social Security Benefits Could Rise 3.9% in 2027, New Estimate Shows
...that held steady for months before this...benefits to account for inflation. It's calculated...Consumer Price Index for Urban Wage Earners...in January checks. For families of people...is $994 per month for an individual and...individual and $1,491 for a couple. The average...average SSDI payment for a disabled worker...they matter when housing, medical equipment,...
News > Advocacy
Colorado Is Halving Paid Family Caregiver Hours. Ohio and Pennsylvania Are Next. What Families on Medicaid Waivers Need to Do Now.
...year, Colorado's Medicaid waiver program paid him for over 100 hours a week as her primary caregiver. That...is the first state to publish an exact timeline for caregiver hour reductions. Ohio and Pennsylvania...Beautiful Bill Act," which reduced federal funding for Medicaid by shifting more costs to states. Because...
Career > Skills Training
Pre-ETS for Students with IEPs: Workplace Skills Before Graduation
...skills while school supports are still in place. Pre-ETS isn't a replacement for IEP transition services. It's a parallel track. Your school district develops...experiences, postsecondary education counseling, and instruction in self-advocacy. Both systems work together. Accessing Pre-ETS early means your student...
Career > Interviewing
Behavioral Interview Questions and Disability: Reframing Work Experience
...start mentally scanning for a corporate example that...questions aren't asking for proof you've held a traditional...traditional job. They're asking for proof you can do the work....they need. STAR stands for Situation, Task, Action,...specialists, advocated for accommodations in an educational...follow a specific structure for a reason. The hiring manager...
Career > Finding Jobs
Transferable Skills Assessment: Identifying What You Bring to New Careers
...skills online, or coordinated services for a family member. When someone asks...development Community involvement or advocacy For each item, write down the specific...Community involvement or advocacy For each item, write down the specific...If you managed medical appointments for a family member, that included scheduling,...
News > Advocacy
Congress Just Reintroduced a Bill That Would Require Streaming Services and Video Apps to Work Better for People with Disabilities. Here's What Families Need to Know.
...It required closed captioning for broadcast television content...audio description requirements for a small percentage of TV programming....The Coalition of Organizations for Accessible Technology reports...but shows created exclusively for streaming platforms face no such...most devices remains difficult for users. What the CVTA Would Require....
News > Advocacy
Pennsylvania Just Signed Three Executive Orders to Protect Disability Families. Here's What It Means and What Other States Can Do.
...orders strengthening protections for people with disabilities. The...Disabilities Council to continue advocacy work across the state. The timing...directly to federal requests for autism and disability data from...the minimum data necessary for their work. That data won't...access to him, creating a formal advocacy channel that didn't previously...