Results
Research > Funding
Private Foundations Funding Disability Research: A Guide for Advocates and Families
...supplemental support. That's critical infrastructure. For families navigating cerebral palsy, fragile X syndrome,...Philanthropy chronically overlooks disability funding for identifiable reasons. Program officers at major foundations...innovators. Simons Foundation SFARI remains the anchor for autism research. Their grants range from exploratory...
Research > Drug Development
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
...mentioned a clinical trial. Or an advocacy organization sent an email about...email about a study recruiting for your child's condition. You've...you don't fully understand, for a drug that may or may not work,...whether this trial makes sense for your family. Here's how to think...people. Researchers are looking for a signal that the drug does...
Global Insights > Advocacy
Teaching Your Child to Self-Advocate: Age-by-Age Strategies from Elementary Through High School
Self-advocacy doesn't start at...they need and ask for it in situations...start teaching self-advocacy. The answer is earlier...the foundation for the bigger ones....transition from parent advocacy to self-advocacy...advocacy to self-advocacy isn't a single handoff....this age, self-advocacy means understanding...Practice asking for accommodations in...
Global Insights > Advocacy
Beyond the IEP: Legal Rights Parents of Children with Disabilities Should Know
...knowledge is the foundation for advocacy in every other...knowledge is the foundation for advocacy in every other domain of...procedural protections for disputes. Parents learn...federal agencies: the EEOC for employment, HUD for housing,...EEOC for employment, HUD for housing, or the Department...the Department of Justice for public accommodations and...
News > Advocacy
The R-Word Spiked 200% Online. A Disney Actor With Down Syndrome Made a 91-Second Response Parents Need to See.
...CoorDown (an Italian Down syndrome rights nonprofit) released a 91-second video for World Down Syndrome Day 2026 featuring Noah Matthews Matofsky, the first person...Syndrome Society, and five other international orgs. Noah's 91-second case for retiring the R-word doesn't lecture. It lists absurd things humanity used...
Education > Higher Education
College Programs for Students with Intellectual and Developmental Disabilities: What CTPs Offer
For years, the assumption...formal education for most students...education for most students with intellectual...as eligible for Pell Grants...post-secondary options for a student with...instruction. Students aren't pursuing...traditional students, participating...literacy and self-advocacy. The emphasis...businesses. Students practice job...neurotypical students learn informally:...
Special Needs > Respiratory Health
Respiratory Health for Children with Disabilities: A Complete Family Guide
...need a care plan that accounts for muscle tone, positioning, and...respiratory condition in children. For kids with disabilities, it often...trouble breathing. You're watching for behavioral changes instead: increased...to create it. You're looking for retractions (skin pulling in...cold air, and strong emotions. For children with sensory processing...
Special Needs > Rare Disorders
IEP Advocacy for Children with Rare Disorders: When No One Has Done This Before
...you they don't know how to write accommodations for something they've never seen before. This is not...fatigues after 30 minutes of cognitive work qualifies for accommodations based on that functional limitation....health problems. This category exists specifically for conditions that don't fit neatly into other buckets....
Special Needs > Multiple Sclerosis
Living with Pediatric MS: A Complete Guide for Families
...need to know: recognizing symptoms, understanding treatment options, advocating at school, and supporting your child's emotional wellbeing. It's built for the long haul, not just the first few months after diagnosis. Understanding Pediatric MS. Multiple sclerosis is an autoimmune disease where the immune...
Special Needs > Learning Differences
College with a Learning Difference: A Four-Year High School Preparation Guide
...school to college for students with...to college for students with learning...themselves scrambling for documentation...to teach self-advocacy skills that needed...campus unprepared for a system that...contexts. Add self-advocacy to the IEP as...post-secondary goals. Self-advocacy is a measurable,...plan. A self-advocacy goal for freshman...self-advocacy goal for freshman year...
Special Needs > Hearing Impairments
Communication Options for Deaf and Hard of Hearing Children: A Family Decision Guide
...walks through the major communication approaches for deaf and hard of hearing children: what each one...what families need to know before choosing. No advocacy. No single path presented as best. Just the information...language and express themselves. It's the foundation for how they'll learn to read, participate in school,...
Research > Funding
Where Research Dollars Go: Understanding Funding Gaps Across Disability Conditions
You search for new treatments, better...clinical trial results for your child's condition....That's a 13-to-1 ratio for two conditions affecting...capacity. Larger patient advocacy organizations generate...correlates more closely with advocacy infrastructure than...million annual average for cerebral palsy, only...pediatric outcomes. For families planning long-term...