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Minnesota Just Disenrolled 61% of Its Medicaid Disability Providers. Other States Are Running the Same Audit. Here's What Families Need to Do Now.
News > Advocacy

Minnesota Just Disenrolled 61% of Its Medicaid Disability Providers. Other States Are Running the Same Audit. Here's What Families Need to Do Now.

By James Williams
...the state revalidated 2,061 (37%) and disenrolled 3,411 (61%). The deadline was midnight Sunday. Families woke up Monday morning to find that their child's ABA therapist, adult day program, or in-home caregiver could no longer bill Medicaid. About 2,491 providers had incomplete paperwork. Another 916...
Life Skills Milestones for Children with Cerebral Palsy
Lifestyle > Independence

Life Skills Milestones for Children with Cerebral Palsy

By Nora Bloom
Your child's pediatrician hands...isn't when your child masters buttoning...same domains as any child: self-care, mobility,...realistic given the child's CP type and severity...severity level. A child with spastic diplegia...elementary school. A child with athetoid CP...develop verbal self-advocacy skills earlier than...matter most for your child's daily life, supported...
Teaching Life Skills for Independence: A Parent's Roadmap
News > Lifestyle

Teaching Life Skills for Independence: A Parent's Roadmap

By Benjamin Thompson
Teaching your child life skills is an act of sustained,...trying to expand what your child can do, who they can become,...clear picture of where your child is right now. Life skills organize...appointments. Communication and self-advocacy: Asking for help, stating preferences,...through each domain with your child in mind. Which tasks can they...
After High School: What Families Need to Know About Transition Planning
News > Advocacy

After High School: What Families Need to Know About Transition Planning

By Amelia Harper
...reports. Then one day you look up and your child is 16, and someone mentions "transition...transition planning is the section of your child's IEP that prepares them for life after...the school isn't just teaching your child to read or do math anymore. They're...real questions: What skills does my child need to hold a job? What supports will...
Supported Decision-Making: An Alternative to Guardianship
Legal > Advocacy

Supported Decision-Making: An Alternative to Guardianship

By Ethan Parker
You've probably been helping your child make decisions for years. Walking through medical...your role as a supporter without stripping your child of their decision-making rights. Many parents approaching...decision-making rights. Many parents approaching their child's 18th birthday face what feels like a binary choice:...
Transition Planning Through K-12: Preparing Your Child for School Changes
Education > K-12

Transition Planning Through K-12: Preparing Your Child for School Changes

By James Peterson
Your child's IEP follows them from school to school....again in 8th, and requires the same advocacy muscle each time. When to Start Elementary-to-Middle...new social expectations. For your child, this isn't just a logistical adjustment....why accommodations exist, what your child needs on a hard day, what works and...
Teaching Self-Advocacy Skills for College: A Transition Checklist
Education > Higher Education

Teaching Self-Advocacy Skills for College: A Transition Checklist

By Diana Foster
...twelve years, your child had a team. Teachers...exactly what your child needed before they...replaces it is self-advocacy. And here's what...schools provide self-advocacy instruction in...news is that self-advocacy is a skill, not...it before your child ever leaves home....leaves home. Self-Advocacy Is Procedural Knowledge....parents treat self-advocacy as something you...
IEP or 504: Which Plan Does Your Child with a Learning Difference Need?
Special Needs > Learning Differences

IEP or 504: Which Plan Does Your Child with a Learning Difference Need?

By Isabella Johnson
You've been told your child needs "a plan" to succeed in...has explained which one your child qualifies for, what the difference...require different kinds of advocacy from you. Choosing the wrong...understanding it can leave your child without the services they need....dyscalculia, and dysgraphia. But your child doesn't qualify simply by having...
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
Research > Drug Development

Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework

By Dr. Jenna Collins
Your child's specialist just mentioned a clinical...mentioned a clinical trial. Or an advocacy organization sent an email about a...about a study recruiting for your child's condition. You've got a packet of...you're being asked to enroll your child in research you don't fully understand,...
Teaching Your Child to Self-Advocate: Age-by-Age Strategies from Elementary Through High School
Global Insights > Advocacy

Teaching Your Child to Self-Advocate: Age-by-Age Strategies from Elementary Through High School

By Benjamin Thompson
Self-advocacy doesn't start...school, when your child learns to name...teaching self-advocacy. The answer is...transition from parent advocacy to self-advocacy...advocacy to self-advocacy isn't a single...back as your child steps forward....this age, self-advocacy means understanding...simple terms. Your child isn't negotiating...self-awareness. Help your child notice what helps...
Beyond the IEP: Legal Rights Parents of Children with Disabilities Should Know
Global Insights > Advocacy

Beyond the IEP: Legal Rights Parents of Children with Disabilities Should Know

By Benjamin Thompson
...realize the same legal structure that governs their child's education also covers discrimination at work,...everyday spaces. That knowledge is the foundation for advocacy in every other domain of life. The Gap Most Parents...pediatrician's office or the camp that turned their child away. The difference matters because the enforcement...
Respiratory Health for Children with Disabilities: A Complete Family Guide
Special Needs > Respiratory Health

Respiratory Health for Children with Disabilities: A Complete Family Guide

By Samantha Kay
When your child has both a disability and a...managing how they interact. A child with cerebral palsy and asthma...airways. A ventilator-dependent child with a developmental disability...typically developing children. A child with limited verbal ability...changes in sleep patterns. A child with low muscle tone may not...

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