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When Your Medicaid Provider Stops Taking Patients: What Families Can Do
Legal > Government Benefits

When Your Medicaid Provider Stops Taking Patients: What Families Can Do

By James Williams
...letter arrives by mail or email: your child's occupational therapist, the dental...committee introduced a new health and welfare budget that cuts $21 million from disability...Here's the critical distinction: your child's Medicaid benefits haven't been cut....family's benefits being terminated. Your child still has Medicaid coverage. The challenge...
Understanding Reactive Attachment Disorder
Special Needs > General Special Needs

Understanding Reactive Attachment Disorder

By SpecialNeeds.com Editor
...Misunderstood Conditions Affecting Child Welfare A few years ago, I spent...Misunderstood Conditions Affecting Child Welfare A few years ago, I spent a good...single biggest issue confounding the child welfare system. I still think that's...biggest issue confounding the child welfare system. I still think that's true....
How to Request a School Evaluation for Dyslexia: Your Rights and the Step-by-Step Process
Special Needs > Dyslexia

How to Request a School Evaluation for Dyslexia: Your Rights and the Step-by-Step Process

By Leslie Turner
You've noticed your child struggling with reading,...identify whether your child qualifies for support....protects both you and your child. Your request should include:...should include: Your child's full name, grade, and...evaluation to determine if my child is eligible for special...need to say "I think my child has dyslexia." You're requesting...
Hip Surveillance for Children with Cerebral Palsy: A Parent's Guide to the Monitoring Schedule
Special Needs > Cerebral Palsy

Hip Surveillance for Children with Cerebral Palsy: A Parent's Guide to the Monitoring Schedule

By Dr. Harper Clark
If your child has cerebral palsy, there's...about this pathway until their child is already experiencing discomfort...schedule looks like based on your child's GMFCS level. What Hip Surveillance...is staying in place as your child grows. It's not treatment. It's...progress silently. By the time a child is in pain or has visible gait...
Navigating Spasticity Treatments in Cerebral Palsy: Botox, SDR, and Orthotics Explained
Special Needs > Cerebral Palsy

Navigating Spasticity Treatments in Cerebral Palsy: Botox, SDR, and Orthotics Explained

By Dr. Harper Clark
...selective dorsal rhizotomy. The orthotist fitted your child for new braces. Each specialist was confident. None...left trying to piece together which treatment your child needs, whether these options work together or replace...affected, how severe the tightness is, and what your child is trying to do functionally. Botox, selective dorsal...
Sleep and Autism: Evidence-Based Help for Children Who Can't Fall Asleep or Stay Asleep
Special Needs > Autism Spectrum

Sleep and Autism: Evidence-Based Help for Children Who Can't Fall Asleep or Stay Asleep

By Ms. Charlotte Perkins
You put your child to bed at 8:30. At 10:00 they're still awake, humming or rocking or asking...the day can become overwhelming at night when the house is quiet and the child's awareness of textures, sounds, and light intensifies. Anxiety and difficulty...
A Parent's Guide to Supporting Your Teen with Special Needs in Their First Relationships
Social Engagement > Dating and Relationships

A Parent's Guide to Supporting Your Teen with Special Needs in Their First Relationships

By Isabella Lewis
...anatomical terms for body parts when your child is young. No cutesy nicknames. Penis,...Penis, vulva, breasts. This gives your child the language to name what's happening...them if someone crosses a boundary. A child who knows the correct words can report...abuse precisely, and be understood. A child who only knows family-specific euphemisms...
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
Research > Genetics

CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know

By Aiden Moore
...breaking down ammonia. The treatment was designed specifically for that child's genetic mutation, built from scratch as a one-time intervention outside...diagnoses, that news raises the question everyone asks: does this apply to my child? The short answer is that most children with rare disorders won't qualify...
Chromosomal Microarray vs. Whole Genome Sequencing: Which Genetic Test Is Right for Your Child?
Research > Genetics

Chromosomal Microarray vs. Whole Genome Sequencing: Which Genetic Test Is Right for Your Child?

By Aiden Moore
Your child's neurologist just recommended genetic...syndrome or Angelman syndrome when a child has autism, developmental delays, or...the protein-coding portions of your child's genome, about 1-2% of the total....in DNA) that cause disease. If your child has a rare genetic condition caused...
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
Research > Drug Development

Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework

By Dr. Jenna Collins
Your child's specialist just mentioned a clinical trial. Or...sent an email about a study recruiting for your child's condition. You've got a packet of information,...obvious when you're being asked to enroll your child in research you don't fully understand, for a drug...
Neuroplasticity Across Disabilities: The Science of Brain Change in Children with Cerebral Palsy, Down Syndrome, and Stroke
Research > Brain Science

Neuroplasticity Across Disabilities: The Science of Brain Change in Children with Cerebral Palsy, Down Syndrome, and Stroke

By Emily Thompson
You've heard the term before. Neuroplasticity. Your child's neurologist mentions it. The physical therapist brings it up. Someone in...timing work across conditions. But how those principles show up in your child's life, and what you can realistically expect, differs by diagnosis. The...
Brain Connectivity and Cerebral Palsy: Why More Isn't Always Better
Research > Brain Science

Brain Connectivity and Cerebral Palsy: Why More Isn't Always Better

By Emily Thompson
...pathways would eventually get your child to better motor outcomes. A...standardized assessments of each child's motor function. Children with...as the original pathway. The child is doing more work to get less..."Compensatory" Means for Your Child's Experience. This is the part...often misunderstand. When a child with CP works extraordinarily...

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