Results
Lifestyle > Relationships
Maintaining Friendships When Your Child Has Chronic Illness
...not because kids asked. Chronic illness doesn't just change...because kids asked. Chronic illness doesn't just change medical...Friendships Fade During Chronic Illness. The absences...Friendships Fade During Chronic Illness. The absences create distance...always understand what chronic illness looks like day...understand what chronic illness looks like day to day....
Social Engagement > Support Groups
Online vs. In-Person Support Groups: Which Format Is Right for Your Family?
...improvements in mental health outcomes for caregivers and parents navigating chronic illness and disability. The difference isn't whether they work. It's how...in mental health outcomes for caregivers and parents navigating chronic illness and disability. The difference isn't whether they work. It's how they work....
Parenting > Self-Care
The Respite Care Blueprint: How to Find, Fund, and Use Backup Care
...relief caregiving for families who care for someone with a disability, chronic illness, or complex medical needs. The goal is straightforward: give primary...caregiving for families who care for someone with a disability, chronic illness, or complex medical needs. The goal is straightforward: give primary caregivers...
Medical > Psychiatry
The Hidden Mental Health Crisis: Why Teenagers with Disabilities Need Psychiatric Care (And How to Access It)
...mental health care. That gap is the crisis. Not the prevalence of mental illness in this population, which is well-documented, but the fact that the majority...academic pressure, physical changes. Then add disability-specific layers: chronic pain, social isolation, medical trauma from repeated procedures, awareness...
Health > Mental Health
When Medical Care Becomes Traumatic: PTSD in Disabled Children and Their Families
...touches them. These are not isolated bad days. For families navigating chronic illness or disability, medical settings become a recurring landscape. And...them. These are not isolated bad days. For families navigating chronic illness or disability, medical settings become a recurring landscape. And for some,...
Career > Accommodations
Is Remote Work a Reasonable Accommodation? Your Rights Under the ADA
...severe anxiety that makes shared office environments genuinely unworkable, chronic pain that makes commuting medically inadvisable, immune disorders that make...inadvisable, immune disorders that make regular contact with colleagues during illness seasons dangerous, or mobility disabilities where commute logistics create...
News > Advocacy
Amazing Race Host Bikes across U.S. for MS
...that affects approximately 400,000 Americans. Multiple sclerosis (MS) is a chronic, debilitating illness that attacks the central nervous system and can appear...approximately 400,000 Americans. Multiple sclerosis (MS) is a chronic, debilitating illness that attacks the central nervous system and can appear in children as well...
Parenting > Adulthood
Successful Transitions: Focusing on Medical Tasks
...Tasks There are many medical details around managing a long-term, serious, chronic illness including nuances that can only be learned over time. Even medical...are many medical details around managing a long-term, serious, chronic illness including nuances that can only be learned over time. Even medical professionals...
Career > Advancement
Managing Energy and Chronic Illness While Pursuing Promotions
...you're managing a chronic illness or disability,...managing a chronic illness or disability,...ambition and chronic illness are not...ambition and chronic illness are not mutually...someone with chronic pain, chronic...chronic pain, chronic fatigue, or other...energy people with chronic illness have...with chronic illness have each day....colleagues without chronic conditions might....
Legal > Government Benefits
Medicaid's 'Medically Frail' Exemption Is Still Undefined. Here's How to Protect Your Coverage Before CMS Draws the Line on June 1.
...sickle cell disease, HIV, and other chronic conditions are actively lobbying CMS...If you have a family member with a chronic condition that isn't covered by the...whether conditions like fibromyalgia, chronic pain, long COVID, or serious mental...pain, long COVID, or serious mental illness qualify for automatic exemption or...
Legal > Government Benefits
Massachusetts Reports 300,000 Medicaid Enrollees Are at Risk Even with Serious Health Conditions. Here's What to Do If You Fall in the Gray Zone.
...population: approximately 300,000 MassHealth enrollees who have serious chronic health conditions that prevent them from meeting the 80-hour monthly requirement...Security Act (SSI/SSDI recipients) Substance use disorder Disabling mental illness Physical, intellectual, or developmental disability that significantly impairs...
Legal > Government Benefits
CMS Just Published the Rule That Defines Medicaid's 'Medically Frail' Exemption. Here's What Disability Families Need to Do Now.
...qualifies. Disabling mental disorder: Serious mental illness that substantially impairs daily functioning, including...accommodation. Serious or complex medical condition: Chronic conditions requiring ongoing treatment and substantially...complications, congestive heart failure, COPD, epilepsy, chronic kidney disease, and cancer. The rule also includes...