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Research > Genetics
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
...one-time intervention outside any clinical trial. For families navigating rare...intervention outside any clinical trial. For families navigating rare pediatric...now, including the research centers, clinical trials, and specialized expertise...including the research centers, clinical trials, and specialized expertise at major...
Research > Drug Development
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
...specialist just mentioned a clinical trial. Or an advocacy organization...specialist just mentioned a clinical trial. Or an advocacy organization...way to evaluate whether this trial makes sense for your family....decision. What Phase Is the Trial, and What Does That Mean? Trials...Trial, and What Does That Mean? Trials move through three phases...
Research > Genetics
Understanding Genetic Testing for Autism, Cerebral Palsy, and Developmental Disabilities: A Parent's Guide
...treatment decisions, connect you to clinical trials, or inform family planning....decisions, connect you to clinical trials, or inform family planning. For some...diagnosis may qualify your child for clinical trials testing new therapies. It can...may qualify your child for clinical trials testing new therapies. It can guide...
Research > Funding
Where Research Dollars Go: Understanding Funding Gaps Across Disability Conditions
You search for new treatments, better therapies, or hopeful clinical trial results for your child's condition. The list is short. Then you search... You search for new treatments, better therapies, or hopeful clinical trial results for your child's condition. The list is short. Then you search autism...
Research > Clinical Trials
Why Children with Disabilities Are Underrepresented in Clinical Trials
...ineligible for the trial that could help...designed this way. Clinical trials systematically...this way. Clinical trials systematically...appears frequently in trial exclusion lists....we designed this trial for the easiest...edge cases. But trials exclude them because...Phase 1 and Phase 2 trials exclude medically...participants, Phase 3 trials follow the same...
Research > Clinical Trials
The Questions Every Parent Should Ask Before Enrolling in a Clinical Trial
You've found a trial. The eligibility...designed to filter out trials. They're the framework...specific risks of this trial compared to standard...face without the trial. If the trial involves...the trial. If the trial involves a new medication,...If it's a device trial, ask about failure...invasive are the trial procedures compared...already doing? Some trials require only what...
Research > Clinical Trials
How to Find and Evaluate Clinical Trials for Your Child's Disability
...heard about a clinical trial that...clinical trial that might...to start. ClinicalTrials.gov is the...registry. Every trial in the U.S....what the trial phases mean...whether a trial is the right...to Search ClinicalTrials.gov. Start...Start at ClinicalTrials.gov. The...nothing, try the clinical name rather...recruiting." Trials marked "Completed"...Pediatric trials often have...
Research > Assistive Tech
The State of Assistive Technology Research in 2026: What's Real, What's Coming, and What Parents Should Watch
...prototype, university trial, FDA review, insurance...review, insurance approval, clinical availability. Most research...AT research coverage. Clinical trial. The device works...research coverage. Clinical trial. The device works reliably...real users outside a lab. Trials enroll participants -...years after successful trials. FDA-approved and market-ready....
Health > Alternative Medicine
Alternative Medicine for Special Needs: A Parent's Guide to Evidence, Safety, and Decision-Making
...how to make decisions when the information available ranges from rigorous clinical trials to parent testimonials on forums. What the Data Shows About CAM Use....decisions when the information available ranges from rigorous clinical trials to parent testimonials on forums. What the Data Shows About CAM Use. Parents...
Assistive Tech > Apps
ADHD Apps That Help Kids Focus: What Works and What Doesn't
...environment to specifically target the attention networks in the brain, and the clinical evidence behind it is more rigorous than what supports most consumer ADHD...is more rigorous than what supports most consumer ADHD apps. Children in trials showed measurable improvement in attention function after four weeks of...
Special Needs > Epilepsy
A New Epilepsy Treatment Reports Over 90% Seizure Reduction in Initial Patients
...needed. That backdrop matters for understanding why a therapy currently in clinical trial is drawing real attention from the epilepsy research community. Early...backdrop matters for understanding why a therapy currently in clinical trial is drawing real attention from the epilepsy research community. Early data...
Research > Drug Development
Unveiling Breakthroughs in Muscular Dystrophy Treatment
...and effective, it can be tested in clinical trials with people who have the disease....effective, it can be tested in clinical trials with people who have the disease....with people who have the disease. Clinical trials have different phases to check...people who have the disease. Clinical trials have different phases to check the...