Results
Research > Clinical Trials
How to Find and Evaluate Clinical Trials for Your Child's Disability
...out where to start. ClinicalTrials.gov is the central registry....start. ClinicalTrials.gov is the central registry....right fit. How to Search ClinicalTrials.gov. Start at ClinicalTrials.gov....Search ClinicalTrials.gov. Start at ClinicalTrials.gov....ClinicalTrials.gov. Start at ClinicalTrials.gov. The basic search...Start at ClinicalTrials.gov. The basic search bar...
Research > Drug Development
Unveiling Breakthroughs in Muscular Dystrophy Treatment
...people's lives. Money from donations and the government helps pay for muscular dystrophy research....seems safe and effective, it can be tested in clinical trials with people who have the disease. Clinical trials...Clinical trials with people who have the disease. Clinical trials have different phases to check the safety and...
Research > Genetics
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
...won't qualify for personalized CRISPR therapy in the next few years. But the infrastructure being built right now, including the research centers, clinical trials, and specialized expertise at major children's hospitals, will determine which conditions move from "in development" to "available" over the next...
Research > Genetics
Understanding Genetic Testing for Autism, Cerebral Palsy, and Developmental Disabilities: A Parent's Guide
...genetic cause that could affect treatment decisions, connect you to clinical trials, or inform family planning. For some families, it provides answers....know existed. A specific genetic diagnosis may qualify your child for clinical trials testing new therapies. It can guide medical monitoring for related health...
Research > Clinical Trials
Why Children with Disabilities Are Underrepresented in Clinical Trials
Your child's disability makes them ineligible for the trial that could help them. The system was designed this way. Clinical trials systematically exclude children with disabilities through eligibility criteria, facility design, consent processes, and research protocols built...
Research > Clinical Trials
The Questions Every Parent Should Ask Before Enrolling in a Clinical Trial
Questions to ask before enrolling your child in a clinical trial—covering safety, participation requirements, withdrawal rights, and access.
Health > Alternative Medicine
Alternative Medicine for Special Needs: A Parent's Guide to Evidence, Safety, and Decision-Making
...knowing which ones have research backing, which carry real risks, and how to make decisions when the information available ranges from rigorous clinical trials to parent testimonials on forums. What the Data Shows About CAM Use. Parents turn to alternative medicine frequently. A Kennedy Krieger Institute...
Research > Clinical Trials
Advancing Care and Treatment for People with Special Needs Through Research
Why Research Matters for People with Special Needs. Research and clinical trials help doctors and scientists learn more about conditions that affect...voluntary. Participants can leave a study at any time. Learn more about clinical trials. How Research Improves Lives. Research has led to many advances in...
Research > Clinical Trials
Clinical Trials and Their Impact on Special Needs Populations
What Are Clinical Trials? Clinical...Trials? Clinical trials are research...conditions. Clinical trials often...basics of clinical trials. Why...trials. Why Clinical Trials Matter...uncovered by clinical trials. However,...participants in clinical trials is essential...diversity in clinical trials is important....Participating in Clinical Trials. Several...part in clinical trials: Lack...awareness that clinical trials are an...
Lifestyle > Recreation
The Perfect Boss on Lifetime Movie Network
...actions to hide any negativities about the miracle drug. The deadly side effects are discovered by one of the company's doctors who performed clinical trials on this new wonder drug. Dr. Renfro (Gary Hudson) is a by-the-book man and is troubled by his latest findings. When he takes the information to...
Research > Clinical Trials
UCLA Research Study Seeking Participants
UCLA study seeks siblings (ages 5-13) of children with autism/Down syndrome to explore emotional impact and family dynamics.
Health > Treatment
Is There a New Drug for Cerebral Palsy?
...well as it did for the rabbits, it could be a very promising treatment for brain damage caused by prenatal infections. There have been no human clinical trials or an examination of side effects. Researchers say the drug must be administered right after birth in order to be effective.