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News > Advocacy
Pennsylvania Just Signed Three Executive Orders to Protect Disability Families. Here's What It Means and What Other States Can Do.
...collect and share disability data, create a new advisory...autism and disability data from states, requests Pennsylvania...new limits on disability data collection. State agencies...limits on disability data collection. State agencies can only...only collect the minimum data necessary for their work....necessary for their work. That data won't be shared with federal...
Research > Clinical Trials
Why Children with Disabilities Are Underrepresented in Clinical Trials
...conditions are excluded because they introduce variables that complicate data collection. A child with autism who also has epilepsy. A child with cerebral...conditions are excluded because they introduce variables that complicate data collection. A child with autism who also has epilepsy. A child with cerebral palsy...
Assistive Tech > Virtual Assistants
Privacy and Safety Settings for Smart Speakers in Homes with Vulnerable Adults
...on Alexa and Google Home protect the general population from corporate data collection. They don't address the specific risks facing adults with dementia,...Alexa and Google Home protect the general population from corporate data collection. They don't address the specific risks facing adults with dementia, intellectual...
Legal > Government Benefits
Medicaid Waiver Waiting Lists: How to Join and What to Expect
...disability services case manager, they can identify the right waiver and help you apply. The Kaiser Family Foundation publishes state-by-state waiver data...
Career > Interviewing
Skills Assessments and Work Sample Tests: Requesting Testing Accommodations
...might think. If the employer is using it to evaluate whether you're qualified, it's a test, and accommodation rights under the ADA apply: Typing or data entry speed tests Timed coding assessments or technical challenges Work sample demonstrations (live presentations, mock client calls) Personality or...
Career > Finding Jobs
Work Incentives Planning and Assistance: Benefits Counseling Before Returning to Work
...instead of guessing. What WIPA Counselors Analyze. A WIPA counselor doesn't give you generic advice about work incentives. They pull your actual benefits data (what you're receiving now, what programs you're enrolled in, what your state's Medicaid rules are) and run the numbers for the job you're considering....
Career > Finding Jobs
Customized Employment: Creating Jobs That Match Your Abilities
...works when employers have unmet needs that don't justify a full-time hire but would benefit from someone performing specific functions. Examples include data entry for a medical practice that's behind on records, inventory organization for a retail store that lacks dedicated staff, or routine maintenance...
Career > Advancement
Documenting Achievements When Performance Metrics Don't Capture Your Contributions
You prevented a project from going off the rails because you caught a data inconsistency no one else noticed. You mentored three junior team members who are now running their own workstreams. You created documentation that...
Assistive Tech > Virtual Assistants
Smart Speakers for Blind Users: Reading Text, Identifying Objects, and Navigation
...reminders function through voice alone. You don't need to open an app or scan a barcode. You ask Alexa where your package is, and it pulls tracking data from Amazon. You tell Google to add milk to your shopping list, and it does. Where Fixed-Position Cameras Fall Short. Echo Show devices include cameras...
Education > Special Education
IEP Services Can't Be Cut by a Budget Crisis. Here's How to Hold Your School Accountable.
...billion annually for special education services like speech therapy, OT, PT, and assistive technology, are under pressure from federal cuts. And survey data shows 80% of school leaders expect staff layoffs, 70% anticipate mental health service cuts, and 62% foresee reductions in assistive technology and...
News > Research
The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.
...Science for NGLY1 Deficiency. The designation was based on early clinical data from an ongoing Phase 1/2/3 trial showing improvements in motor function...address issues faster and keep the trial moving forward. Second, if the trial data continues to show benefit, GS-100 may qualify for accelerated approval based...
News > Education
New Hampshire's Open Enrollment Bill Would Force Schools to Accept Students with Disabilities. Here's What Families with IEPs and 504 Plans Need to Know.
...rates two to three times higher than their non-disabled peers, according to data from Wisconsin, Nebraska, and Oklahoma. New Hampshire's bill would make that...states, where cost ambiguity creates an easy excuse for rejection. The National Data Shows a Pattern. Wisconsin rejected 40% of open enrollment applications from...