Results
Legal > Advocacy
Guardianship and Developmental Disabilities
Surrogate Decision Making for People...attend a special course of study at a local community...high-functioning, she can sign a power of attorney and a health...power of attorney and a health care proxy designating...attorney and a health care proxy designating her...and a health care proxy designating her parents as agents...
Global Insights > Healthcare
Navigating Healthcare for Children with Special Needs: Medical Homes, Care Coordination, and Insurance Strategies
...Not from lack of effort, but because...with a special designation on the door. It's...the door. It's a care model, an organizing...at the center of your child's healthcare...of your child's healthcare and makes that...American Academy of Pediatrics defines...defines it as care that is accessible,...has a primary care provider who knows...maintains the overall care plan, and makes...
News > Technology
Congress Just Declared a National Assistive Technology Awareness Day. Here's What Families Need to Know About Getting AT Devices.
...S.Res.685 on April 22, 2026, designating April 22 as National Assistive...technology is essential for millions of Americans with disabilities...disabilities to access education, healthcare, employment, and community...insurance barriers put devices out of reach, but state AT programs...most families haven't heard of. What the Senate Resolution...
News > Advocacy
RFK Jr.'s Autism Panel Just Voted to Create a 'Profound Autism' Federal Category. Here's What Families Need to Know.
...adopt a "profound autism" designation covering approximately...covering approximately 25% of autistic individuals....individuals. If the Department of Health and Human Services...individuals. If the Department of Health and Human Services accepts...the recommendation, the designation could reshape how more...replaced all 21 members of the IACC, installing new...
Research > Drug Development
Fragile X Drug Trials: The First Real Breakthroughs and What They Mean for Families
...Fragile X drug research for any length of time, you've probably learned to hold...absorbing disappointment. They built a healthy skepticism into the way they read trial...time, SPG601 received FDA Fast Track designation in December 2024, a status reserved...been waiting deserve a clear account of what it means. Why Those Earlier Trials...
Education > Special Education
Special Education Programs Are Moving to HHS. What Does It Mean for Your Child's IEP?
...the Department of Education. They're...the Department of Health and Human...Department of Health and Human Services,...day. HHS is the destination, not the Department...the Department of Labor, which...Changing. The office of Special Education...the Department of Education, where...work under a health-focused agency...agency instead of an education-focused...the Department of Education. Moving...
Health > Nutrition
Where to Purchase GFCF Foods and Some Favorite Brands
...especially in the land of fruits and nuts, where...Foods, Sprouts and health food stores all within...tiny town, hundreds of miles from any large,...an incredible array of GFCF foods to choose...guides in each store of the brands of GFCF foods...store of the brands of GFCF foods that can...an upper case, "V" designating gluten free and Vegan....
News > Research
The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.
...Advanced Therapy (RMAT) designation to GS-100 on April...NGLY1 Deficiency. The designation was based on early...weeks. For families of children with this...crying. What RMAT Designation Means in Practice....in Practice. RMAT designation is not approval. It's...development and review of regenerative medicine...clinical evidence of addressing serious...
Lifestyle > Travel
Sensory-Friendly Vacation Destinations for Families with Autism and SPD
...destinations, you'll find lists of theme parks with wheelchair...news: a growing network of destinations has been designed..."Sensory-Friendly" Means at a Destination. Sensory-friendly isn't...venues. They're the result of intentional training, design,...The International Board of Credentialing and Continuing...Certified Autism Center (CAC) designation to attractions, hotels,...
Special Needs > General Special Needs
Life Not Otherwise Specified (NOS)
...real or am I part of some sort of made-for-television...part of some sort of made-for-television...initials that most of us earn through...wonderful world of special needs labels...was my favorite designation of all time! These...favorite designation of all time! These...family. This was a designation that allowed us...the laundry list of “Not Otherwise...challenge that many of my friends’ families...
News > Advocacy
Trump's Budget Would Eliminate All 67 University Disability Research Centers. Here's What Families Need to Know.
...calling for the elimination of all federal funding for the...families to contact their members of Congress to oppose the cuts...centers as "DEI programs," a designation the Association of University...designation the Association of University Centers on Disabilities...and targeted under the guise of eliminating so-called 'DEI'...
News > Technology
The FDA Just Gave a Brain-Computer Interface a Breakthrough Designation for Stroke Rehab. Here's What Disability Families Need to Know.
...Breakthrough Device Designation for its Brain...receive this designation for stroke motor...the University of Washington in...leading cause of acquired long-term...Approximately 50% of survivors remain...disability, this designation signals that...Breakthrough Device Designation Means. Breakthrough...Breakthrough Device Designation is not FDA approval....options. The designation gives CorTec...