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A Parent's Guide to Supporting Your Teen with Special Needs in Their First Relationships
Social Engagement > Dating and Relationships

A Parent's Guide to Supporting Your Teen with Special Needs in Their First Relationships

By Isabella Lewis
...relationships are no different. Most of those other frameworks had guidebooks: pediatricians covered the milestones, schools covered the curriculum, the internet...public behavior: these concepts take longer to internalize for kids with developmental disabilities, and they need repetition across contexts before they stick....
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
Global Insights > Healthcare

The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care

By Ivy Sullivan
Your child turns 21 and loses their pediatrician. That's expected. What isn't expected: the outcomes gap that follows....pediatric specialists who understood their baseline. Those doctors knew what developmental milestones looked like in context, what medication side effects mattered...
Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports
Special Needs > Cancer

Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports

By Aiden Moore
...school called about attention problems, or the pediatrician flagged developmental delays, or you noticed...attention problems, or the pediatrician flagged developmental delays, or you noticed your child can't run...transition to a different kind of medical and developmental management, one that most families enter without...
Understanding Genetic Testing for Autism, Cerebral Palsy, and Developmental Disabilities: A Parent's Guide
Research > Genetics

Understanding Genetic Testing for Autism, Cerebral Palsy, and Developmental Disabilities: A Parent's Guide

By Aiden Moore
...cerebral palsy, global developmental delay. The pediatrician...developmental delay. The pediatrician mentions genetic testing....Genetic testing after a developmental diagnosis isn't about confirming...your child's symptoms and developmental pattern. It doesn't always...36-53% of unexplained global developmental delay or intellectual disability...
When and How to Seek a Second Opinion for Your Child's Diagnosis
Parenting > Diagnosis

When and How to Seek a Second Opinion for Your Child's Diagnosis

By Dr. Fiona Maddox
Your child's pediatrician just delivered a diagnosis. You nodded through the explanation, asked...opinion is reasonable. The diagnosis came unusually fast. A thorough developmental evaluation takes time. If your child's assessment lasted less than an...
Genetic Testing for Developmental Delays: What the New AAP Guidelines Mean for Your Family
Parenting > Diagnosis

Genetic Testing for Developmental Delays: What the New AAP Guidelines Mean for Your Family

By Oliver Smith
Your child's pediatrician just said "we're recommending genetic...testing for children with global developmental delay and intellectual disability....(called variants) that might explain developmental delays or intellectual disability....About 40% of children with global developmental delay or intellectual disability...
Supported Decision-Making vs. Guardianship: What Every Parent Should Know Before Their Child Turns 18
Parenting > Adulthood

Supported Decision-Making vs. Guardianship: What Every Parent Should Know Before Their Child Turns 18

By Nora Bloom
...into guardianship." Your sister mentions it every time you see her. The developmental pediatrician brought it up at the last appointment. Everyone seems to...guardianship." Your sister mentions it every time you see her. The developmental pediatrician brought it up at the last appointment. Everyone seems to agree: if your...
The Hidden Mental Health Crisis: Why Teenagers with Disabilities Need Psychiatric Care (And How to Access It)
Medical > Psychiatry

The Hidden Mental Health Crisis: Why Teenagers with Disabilities Need Psychiatric Care (And How to Access It)

By Chloe Davis
...to go to therapy appointments. She cries when you mention school. Her pediatrician says it's "typical teenage stuff" and suggests waiting to see if it passes....The 5× rate isn't random. Teenagers with disabilities face the same developmental stressors as any adolescent: identity formation, peer relationships,...
When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs
Medical > Pediatrics

When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs

By Dr. Opal Stenson
...a gastroenterologist, a neurologist, and a developmental pediatrician. Each specialist orders tests,...gastroenterologist, a neurologist, and a developmental pediatrician. Each specialist orders tests, adjusts medications,...adjusts medications, and sends notes to the pediatrician's office. But when you call with a question...
Executive Function in Neurodevelopmental Conditions: The Brain System That Connects ADHD, Autism, and Learning Challenges
Medical > Neurology

Executive Function in Neurodevelopmental Conditions: The Brain System That Connects ADHD, Autism, and Learning Challenges

By Andrew Donovan
...describe your child's challenges in three completely different ways. The developmental pediatrician talks about ADHD and executive function. The neurologist...child's challenges in three completely different ways. The developmental pediatrician talks about ADHD and executive function. The neurologist mentions autism...
How to Fight an Insurance Denial for Your Child's Autism or ADHD Evaluation
Health > Diagnosis

How to Fight an Insurance Denial for Your Child's Autism or ADHD Evaluation

By Daniel Evans
...didn't meet. You called the pediatrician who recommended the evaluation,...Insurers compare that to a developmental screening at the pediatrician's...developmental screening at the pediatrician's office or a school-based...authorization request included the pediatrician's referral but no description...request from a routine developmental check. The DSM-5 criteria...
Navigating Healthcare for Children with Special Needs: Medical Homes, Care Coordination, and Insurance Strategies
Global Insights > Healthcare

Navigating Healthcare for Children with Special Needs: Medical Homes, Care Coordination, and Insurance Strategies

By Ivy Sullivan
...physical therapist, an occupational therapist, a developmental pediatrician, and a pulmonologist, the real...an occupational therapist, a developmental pediatrician, and a pulmonologist, the real work isn't making...sure nothing falls through the cracks. Most pediatricians already function as medical homes without calling...

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