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The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
Global Insights > Healthcare

The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care

By Ivy Sullivan
...intellectual disabilities grew up seeing pediatric specialists who understood their baseline. Those doctors...understood their baseline. Those doctors knew what developmental milestones looked like in context, what medication...providers (internists, family medicine doctors, specialists in adult systems) were trained on adult-onset...
Ending the Diagnostic Odyssey: How Whole Genome Sequencing Is Changing Rare Disease Diagnosis
Special Needs > Rare Disorders

Ending the Diagnostic Odyssey: How Whole Genome Sequencing Is Changing Rare Disease Diagnosis

By Isabella Lewis
...targeted gene panels and exome sequencing miss. Until recently, most specialists ordered WGS only after exhausting every other diagnostic option. That's...test rather than a last resort, particularly when a child presents with developmental delays, congenital anomalies, or neurological symptoms that don't fit...
How to Get a Federal Job with a Disability: A Complete Guide to Schedule A Hiring
News > Employment

How to Get a Federal Job with a Disability: A Complete Guide to Schedule A Hiring

By Emily Roberts
...three categories of disability: Intellectual disabilities, including developmental disabilities Severe physical disabilities: conditions that substantially...nurse practitioner, or psychiatrist A licensed vocational rehabilitation specialist Any federal, state, or local agency...
When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs
Medical > Pediatrics

When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs

By Dr. Opal Stenson
...neurologist, and a developmental pediatrician. Each specialist...pediatrician. Each specialist orders tests, adjusts...coordination across specialists, therapies, equipment,...home doesn't replace specialists. It coordinates them....results from every specialist, identifies conflicts...from three or more specialists, use medical technology...
Executive Function in Neurodevelopmental Conditions: The Brain System That Connects ADHD, Autism, and Learning Challenges
Medical > Neurology

Executive Function in Neurodevelopmental Conditions: The Brain System That Connects ADHD, Autism, and Learning Challenges

By Andrew Donovan
You've heard three different specialists describe your child's challenges in three completely different ways....describe your child's challenges in three completely different ways. The developmental pediatrician talks about ADHD and executive function. The neurologist...
Navigating Healthcare for Children with Special Needs: Medical Homes, Care Coordination, and Insurance Strategies
Global Insights > Healthcare

Navigating Healthcare for Children with Special Needs: Medical Homes, Care Coordination, and Insurance Strategies

By Ivy Sullivan
...sees a neurologist, a physical therapist, an occupational therapist, a developmental pediatrician, and a pulmonologist, the real work isn't making it to the...has a primary care provider who knows the full picture, tracks all the specialists, maintains the overall care plan, and makes sure nothing falls through...
UCLA Research Study Seeking Participants
Research > Clinical Trials

UCLA Research Study Seeking Participants

By SpecialNeeds.com Editor
...Dr. Ted Hutman, a research specialist in autism at UCLA. Editor:...Dr. Hutman and myself are developmental psychologists. I also am...Developing Mind. The Center specializes in the assessment, diagnosis...of children impacted by developmental/regulatory disorders like...of children impacted by developmental delays, I have become a...
Family Coaching Improves the Well-Being of the Whole Family
Parenting > School Years

Family Coaching Improves the Well-Being of the Whole Family

By SpecialNeeds.com Editor
Everyone is affected when a child has significant developmental, social or emotional challenges. Whatever the diagnosis–or even if you...unified team. Navigating institutions: Working with teachers, doctors and specialists, or choosing the best school or provider, can be challenging. Coaches...
Family Coaching Improves Well-Being of the Whole Family
Education > Tutoring

Family Coaching Improves Well-Being of the Whole Family

By SpecialNeeds.com Editor
Everyone is affected when a child has significant developmental, social or emotional challenges. Whatever the diagnosis – or even if...unified team.Navigating institutions: Working with teachers, doctors and specialists, or choosing the best school or provider, can be challenging. Coaches...
Educational Remediation From the Brain Stem Up: An Interview With Anna Buck
Education > Tutoring

Educational Remediation From the Brain Stem Up: An Interview With Anna Buck

By SpecialNeeds.com Editor
...Anna: We treat using Neuro-Developmental Delay (NDD) therapy. We believe...brain stem, which blocks normal development. If these blockages are removed,...systematic progression of normal developmental growth. Paula: You became...Paula: You became a remediation specialist because of experiences with your...
Study Says Autism Missed in Cases of Epilepsy
Special Needs > Autism Spectrum

Study Says Autism Missed in Cases of Epilepsy

By SpecialNeeds.com Editor
...percent of the children screened positive for developmental delays. Of the 77 percent, 36 percent were diagnosed...speech, and physical therapists; or educational specialists. Still, many questions about the link between...there at the beginning to help improve cognitive development." Source: http://www.medscape.com
Is it ADHD or Could it Be FASD?
Special Needs > Attention Deficit Disorders

Is it ADHD or Could it Be FASD?

By SpecialNeeds.com Editor
...9-year-old son could see yet another specialist, get yet another evaluation, have...diagnoses were ADHD and PDD (Pervasive Developmental Disorder, although NOT the PDD that...spectrum — more of a child-wide developmental delay), his behavior, his reaction...were taking him to a clinic that specializes in FASD, or Fetal Alcohol Spectrum...

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