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The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
Special Needs > Cystic Fibrosis

The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management

By Franklin Morris
...Transition Happens. Most pediatric CF centers transition patients between ages 18 and 21. Some transition as early as 16 for patients who are developmentally ready. Others extend pediatric care to 21 if the adult clinic has capacity constraints. Your teen's CF center should initiate transition planning...
To Worry or Not to Worry: Your Child’s Development
Parenting > The Early Years

To Worry or Not to Worry: Your Child’s Development

By SpecialNeeds.com Editor
...Reputable checklists, resources, and practical information, some of which are included in this article, will help you evaluate your child. Developmentally, as an infant, it is important that a child gazes at his parents' face and as the child gets older, smiles. The smile should not be random or primarily...
Medical Professionals Share Transition Advice
Career > Accommodations

Medical Professionals Share Transition Advice

By SpecialNeeds.com Editor
...et al.) Researchers may recommend that the formal transition process start in the preteen years but child development experts recommend that a developmentally-based transition process ideally starts much younger. Preschoolers can learn to label medical equipment, body parts and medications. They can...
Can Occupational Therapy Help Your Child?
Therapies > Occupational

Can Occupational Therapy Help Your Child?

By SpecialNeeds.com Editor
...gross, fine, and visual motor skills. They typically use play rather than exercises to involve children in activities that are motivating and developmentally appropriate. Children may experience motor delays for a variety of reasons, although common findings are difficulty with motor planning (dyspraxia),...
Sexuality Education for People with Disabilities: Why It Matters and Where to Find It
Social Engagement > Dating and Relationships

Sexuality Education for People with Disabilities: Why It Matters and Where to Find It

By Isabella Lewis
...isn't theoretical. Research from UC Davis showed that after completing the Relationships Decoded curriculum, participants with intellectual and developmental disabilities improved their understanding of healthy relationships by 22%. That matters because people with IDD face disproportionate rates of sexual...
A Parent's Guide to Supporting Your Teen with Special Needs in Their First Relationships
Social Engagement > Dating and Relationships

A Parent's Guide to Supporting Your Teen with Special Needs in Their First Relationships

By Isabella Lewis
...then, you're behind. Body autonomy, appropriate touch, private versus public behavior: these concepts take longer to internalize for kids with developmental disabilities, and they need repetition across contexts before they stick. If you start teaching consent when your 15-year-old expresses interest...
Chromosomal Microarray vs. Whole Genome Sequencing: Which Genetic Test Is Right for Your Child?
Research > Genetics

Chromosomal Microarray vs. Whole Genome Sequencing: Which Genetic Test Is Right for Your Child?

By Aiden Moore
...identify most chromosome disorders. CMA is the test that finds conditions like 22q11.2 deletion syndrome or Angelman syndrome when a child has autism, developmental delays, or unexplained intellectual disability. Whole exome sequencing (WES) reads the protein-coding portions of your child's genome, about 1-2%...
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
Global Insights > Healthcare

The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care

By Ivy Sullivan
...autism, Down syndrome, or intellectual disabilities grew up seeing pediatric specialists who understood their baseline. Those doctors knew what developmental milestones looked like in context, what medication side effects mattered for this population, and how to adjust care plans for cognitive or communication...
Ending the Diagnostic Odyssey: How Whole Genome Sequencing Is Changing Rare Disease Diagnosis
Special Needs > Rare Disorders

Ending the Diagnostic Odyssey: How Whole Genome Sequencing Is Changing Rare Disease Diagnosis

By Isabella Lewis
...changing. More hospitals and geneticists now order WGS as a first-line test rather than a last resort, particularly when a child presents with developmental delays, congenital anomalies, or neurological symptoms that don't fit a recognizable pattern. What Whole Genome Sequencing Tests. WGS sequences...
Maryland Is Cutting $250 Million in Disability Services. Families Have Days to Push Back.
Legal > Government Benefits

Maryland Is Cutting $250 Million in Disability Services. Families Have Days to Push Back.

By James Williams
...budget on March 13 cutting $126 million from the Developmental Disabilities Administration (DDA) in fiscal...outcome. What the DDA Is and Who It Serves. The Developmental Disabilities Administration runs Maryland's...waiver programs for people with intellectual and developmental disabilities. In fiscal 2025, 19,100 Marylanders...
Idaho Passed $22M in Medicaid Disability Cuts. Here's What Families Can Do Before the Governor Signs.
Legal > Government Benefits

Idaho Passed $22M in Medicaid Disability Cuts. Here's What Families Can Do Before the Governor Signs.

By James Williams
...in fiscal year 2027. Residential habilitation includes group homes, supported living arrangements, and day programs for adults and children with developmental disabilities. The math is straightforward. A provider receives a set reimbursement rate for each hour of service delivered. If that rate doesn't...
Early Warning Signs Your Baby or Toddler May Need Early Intervention
Education > Early Intervention

Early Warning Signs Your Baby or Toddler May Need Early Intervention

By Dr. Eileen Hart
...something just feels off, but you can't name it. Developmental milestones aren't strict deadlines, but they...The American Academy of Pediatrics recommends developmental screenings at 9, 18, and 30 months - but you...from birth through 36 months across all five developmental areas: physical development, cognitive skills,...

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