Special Needs

Articles

When a son is diagnosed with Duchenne muscular dystrophy, the genetic counseling that follows almost always turns to his mother. She may learn that she carries the mutation,...

...change gets discussed. At Diagnosis, or by Age 6 if Diagnosed...Diagnosis, or by Age 6 if Diagnosed Earlier. The first cardiac...cardiac workup happens at diagnosis, regardless of how old your...old your child is when that diagnosis lands. If diagnosis comes...that diagnosis lands. If diagnosis comes earlier than age 6,...

...for, what follow-up matters, or how to access early intervention before a diagnosis even exists. The Research Behind the Numbers. The 2025 systematic review,...2019. Researchers found that 18.8% of these extremely preterm infants were diagnosed with cerebral palsy by age two. The rate increased by an average of 11%...

...pathway. NGLY1 Deficiency is a serious, life-threatening genetic condition with no approved treatment. Approximately 100 individuals worldwide have been diagnosed with the condition, though the calculated U.S. incidence suggests around 12 children are born with it each year. The disease affects multiple body...

...determine whether your child qualifies for services under IDEA Part C, the federal program serving infants and toddlers with developmental delays or diagnosed conditions. It's comprehensive, it's free, and it happens in your home. Every step is designed to understand your child as a whole, not just the concern...

...write one that stands out. Lead with Impact, Not Diagnosis. The opening line "I was diagnosed with cerebral...Impact, Not Diagnosis. The opening line "I was diagnosed with cerebral palsy at age two" tells the committee...changed, what you learned, or what you built. The diagnosis can come later, if it needs to come at all. The...

...Means. Twice exceptional means a child qualifies as both gifted and disabled. They have above-average intellectual ability in one or more areas AND a diagnosed disability that impacts learning or daily functioning. The disability can be a learning disability (dyslexia, dyscalculia, dysgraphia), ADHD, autism,...

When a child is diagnosed with cancer, siblings don't experience a less intense version of the crisis....disruption is about them. Information gets filtered. Parents explain the diagnosis to the child with cancer in age-appropriate detail. Siblings often get...

When your child is diagnosed with multiple sclerosis, the road ahead can feel...long haul, not just the first few months after diagnosis. Understanding Pediatric MS. Multiple sclerosis...More frequent relapses in the first years after diagnosis Higher inflammatory activity on MRI Better initial...

When a child is diagnosed with hearing loss, the first question most families ask is: how will my child communicate? What follows is often a flood of recommendations that don't...

Your baby was just diagnosed with Down syndrome. The pediatric cardiologist...defect, and surgical repair while processing a diagnosis you didn't expect. Approximately 50% of infants...common heart defects in Down syndrome, how they're diagnosed, what the surgical timeline looks like, and what...

Your child was diagnosed with Type 1 diabetes three weeks ago. You've learned carb counts, correction factors, and how to change pump sites in the dark. Now the school wants...