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Global Insights > Advocacy
Teaching Your Child to Self-Advocate: Age-by-Age Strategies from Elementary Through High School
Self-advocacy doesn't start at...navigating college disability services or workplace...college disability services or workplace accommodations,...start teaching self-advocacy. The answer is earlier...transition from parent advocacy to self-advocacy...advocacy to self-advocacy isn't a single handoff....At this age, self-advocacy means understanding...
Special Needs > Rare Disorders
IEP Advocacy for Children with Rare Disorders: When No One Has Done This Before
...before. This is not a valid reason to delay or deny services. IDEA (the Individuals with Disabilities Education...School districts evaluate children based on how a disability affects their ability to access education. They...a 90-minute block without support. IDEA's 13 disability categories include "Other Health Impairment,"...
Special Needs > Learning Differences
College with a Learning Difference: A Four-Year High School Preparation Guide
...think about college disability services find themselves...college disability services find themselves scrambling...trying to teach self-advocacy skills that needed...Freshman Year: Name the Disability and Build the Foundation....contexts. Add self-advocacy to the IEP as a transition...post-secondary goals. Self-advocacy is a measurable,...the plan. A self-advocacy goal for freshman...
Legal > Advocacy
When Your Child's School Breaks the Rules: A Parent's Guide to Filing Complaints
...know your child's school violated disability law. Maybe they refused an evaluation...available to parents when schools violate disability law: state complaint, due process...parent consent Refusing to provide services listed in the IEP Failing to provide...corrective action, require compensatory services...
Global Insights > Laws
How to Be a More Effective Advocate for Your Child with a Disability
...right. You couldn't articulate why the proposed services felt inadequate. You didn't know what alternatives...failure of love or commitment. It's a skill gap. Advocacy is a set of learnable practices, and most parents...Before any meeting about your child's education or services, read the relevant sections of IDEA or Section...
Health > Treatment
What to Do If Your Child Is on a Medicaid Waiver Waiting List
...Home and Community-Based Services (HCBS) waiting lists right...Waiting lists for developmental disability waivers grew by a median of...facilities or institutions. The services covered vary by state but...First. Zoe Gross, Director of Advocacy at the Autistic Self Advocacy...Advocacy at the Autistic Self Advocacy Network, explained it plainly...
Parenting > General
How to Use Developmental Disabilities Awareness Month to Advocate at Your Child's School
...families raising a child with a developmental disability, it can be something else: a moment where the...returned a little faster, and where the word "advocacy" feels slightly less like swimming upstream. If...Different For most of the year, pushing for services, requesting evaluations, or trying to get a meeting...
Education > Accommodations
Special Education Advocacy and Charter Schools
...education and related services to the same extent such...the same extent such services are provided in district...all areas of suspected disability and a student cannot...because he or she has a disability. Once a child has been...identified as eligible for services, the charter school must...for special education services. When a charter school...
Special Needs > Autism Spectrum
Agency Spotlight: Special Needs Network–Reaching Out to Families Dealing With Autism
...the funding for school support, education and services is decreasing. Raising a child with autism is...number of families they serve through education, advocacy and public policy…and they need your help. Special...underserved communities and mainstream developmental disability organizations and governmental institutions, which...
Legal > Government Benefits
Maryland's $250 Million Disability Cut Is Locked In. What DDA Waiver Families Should Do Now.
...legislative votes early next week. The advocacy window is closed. This article covers...2025, 19,100 Marylanders received services through DDA waivers: personal care,...with thousands waiting years for services. The new cuts reduce what's available...of 2 percent or more across most services. Self-directed care programs are hit...
Research > Funding
How to Find and Apply for Research Grants in Special Needs and Rare Disorders
...condition-specific foundations, and regional disability councils fund research families can...$250,000 are accessible to family-led advocacy organizations, nonprofit collaborations,...quality-of-life interventions. State disability councils fund innovation grants for...grants for projects addressing gaps in services or data. The Colorado Developmental...
Research > Funding
Private Foundations Funding Disability Research: A Guide for Advocates and Families
...Philanthropy chronically overlooks disability funding for identifiable reasons....before making investment decisions on disability research. This lag reflects institutional...prestige doesn't cluster around disability research the way it does around oncology...Now. Private foundation funding in disability research splits into condition-specific...