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News > Advocacy
Governor Cuomo: Protecting the Disabled
...are cause for concern regarding the disability care system. Governor Andrew Cuomo...concern regarding the disability care system. Governor Andrew Cuomo says...for the next several weeks is to reform the system to better protect individuals...can get support from parents and disability advocates; he believes their rally...
Financial > Financial Planning
Special Needs Planning for Sudden Wealth: Settlements, Inheritances, and Windfalls
...waiting. During that gap, medication costs resume, therapy stops, and home care disappears. This is fixable with advance planning. The key is keeping the...funds for future needs without sacrificing the benefits that cover current care. The 9-Month Spend-Down Window. When someone on SSI receives a lump sum,...
Legal > Government Benefits
Medicaid Waiver Waiting Lists: How to Join and What to Expect
...Medicaid doesn't: personal care attendants, respite care, home...personal care attendants, respite care, home modifications, adaptive...disabilities, brain injury, elderly care). Start with your state's Medicaid...waitlist?" If you're working with a care coordinator, social worker,...coordinator, social worker, or disability services case manager, they...
Legal > Government Benefits
Understanding Representative Payees: Who Manages Your Child's Disability Benefits
...your child receives Supplemental Security Income (SSI) or Social Security Disability Insurance (SSDI), you're likely managing those funds on their behalf. What...SSA defines "current needs" broadly: food, shelter, clothing, medical care, and personal items. You can use benefits for education expenses, therapy...
Financial > Financial Planning
Leaving Money to a Child with a Disability in Your Will: Common Mistakes to Avoid
...protect your child. You named them as a beneficiary because you want them taken care of after you're gone. That's what any parent would do. Here's the problem:...receive it. It doesn't matter if they need the money for housing, medical care, or long-term support. The program sees the asset and terminates eligibility....
Financial > Financial Planning
Long-Term Care Insurance and Disability: Planning for Future Care Costs
...long-term care insurance...catastrophic care costs. But...long-term care insurance...match the care model your...families start care planning....long-term care insurance...doesn't fit disability care planning,...disability care planning,...Long-Term Care Insurance...Long-term care insurance...custodial care when you...nursing home care, assisted...living, in-home care, and adult...
Career > Interviewing
Behavioral Interview Questions and Disability: Reframing Work Experience
...like what you think they're expecting: gaps from disability-related leave, years spent managing your own health...proof you can do the work. The STAR method doesn't care whether your example comes from a Fortune 500 office...came of it. If you've coordinated your own medical care across multiple specialists, advocated for accommodations...
News > Advocacy
The Federal Agency That Funds Independence for People with Disabilities Is Being Eliminated. Here's What Families Need to Know.
...support programs, disability research, and civil...regardless of age or disability, should be able to...families navigate disability services, access assistive...Provides respite care, counseling, and training...family members who care for older adults and...National Institute on Disability, Independent Living,...Including the Long-Term Care Ombudsman Program...
Financial > Financial Planning
Families Provide $1 Trillion in Unpaid Care Each Year. Here's What Medicaid Cuts Mean for That Burden.
...adult with a disability, you already...trillion in unpaid care looks like:...billion hours of care each year, valued...problem. Home care costs have surged...losing paid home care. You're at risk...Numbers Mean for Disability Families. AARP's...billion hours of care per year is...out-of-pocket health care spending nationwide...spending. For disability families, this...the cost of care you're absorbing...
Research > Funding
Private Foundations Funding Disability Research: A Guide for Advocates and Families
...intervention and pediatric care. Private foundations working...Philanthropy chronically overlooks disability funding for identifiable reasons....making investment decisions on disability research. This lag reflects...prestige doesn't cluster around disability research the way it does around...Private foundation funding in disability research splits into condition-specific...
Global Insights > Healthcare
Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed
...and still can't afford the care your child needs. This is the...children with special health care needs, according to KFF. But...child who needed hospital-level care but could be treated at home....works: if your child has a disability or chronic condition that would...would require institutional care without home-based support,...
Legal > Government Benefits
Maryland Is Cutting $250 Million in Disability Services. Families Have Days to Push Back.
...Marylanders received services through DDA waivers. Services include personal care, residential support, day programs, job coaching, and respite care. Unlike...personal care, residential support, day programs, job coaching, and respite care. Unlike other Medicaid programs, waivers are not entitlements. States control...