Results
News > Advocacy
Governor Cuomo: Protecting the Disabled
...are cause for concern regarding the disability care system. Governor Andrew Cuomo...concern regarding the disability care system. Governor Andrew Cuomo says...for the next several weeks is to reform the system to better protect individuals...can get support from parents and disability advocates; he believes their rally...
Research > Funding
Private Foundations Funding Disability Research: A Guide for Advocates and Families
...intervention and pediatric care. Private foundations working...Philanthropy chronically overlooks disability funding for identifiable reasons....making investment decisions on disability research. This lag reflects...prestige doesn't cluster around disability research the way it does around...Private foundation funding in disability research splits into condition-specific...
Global Insights > Healthcare
Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed
...and still can't afford the care your child needs. This is the...children with special health care needs, according to KFF. But...child who needed hospital-level care but could be treated at home....works: if your child has a disability or chronic condition that would...would require institutional care without home-based support,...
Legal > Government Benefits
Maryland Is Cutting $250 Million in Disability Services. Families Have Days to Push Back.
...Marylanders received services through DDA waivers. Services include personal care, residential support, day programs, job coaching, and respite care. Unlike...personal care, residential support, day programs, job coaching, and respite care. Unlike other Medicaid programs, waivers are not entitlements. States control...
Special Needs > Cancer
Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports
...know about recognizing late effects, accessing disability benefits, and building the support system your...is high enough that surveillance is standard of care. If your child's oncology team hasn't discussed...child's oncology team hasn't discussed a survivorship care plan, ask...
Special Needs > Respiratory Health
Respiratory Health for Children with Disabilities: A Complete Family Guide
When your child has both a disability and a respiratory condition, you're...just need an inhaler. They need a care plan that accounts for muscle tone,...ventilator-dependent child with a developmental disability needs a school team that understands...in daily life, and how to build a care team that works together instead of...
Special Needs > General Special Needs
Supporting Your Other Children: A Family Guide When One Child Has Special Needs
...to talk about her brother's disability at school because kids ask...asks if she'll have to take care of her sister when you die....of a child with significant care needs, and it signals something...their brother or sister's disability was a major issue. The stress...issue. The stress wasn't the disability itself but the questions no...
Special Needs > Diabetes
Managing Diabetes When Your Child Has Another Disability: A Dual Diagnosis Guide
...developmental, cognitive, or physical disability isn't just standard diabetes care...disability isn't just standard diabetes care with extra steps. The entire approach...diabetes intersects with another disability. Why Dual Diagnosis Diabetes Management...child also has autism, intellectual disability, cerebral palsy, or another...
Special Needs > Diabetes
Your Child's 504 Plan for Diabetes: A Complete Guide for School Management
...child's access to the medical care they need during the school...Act of 1973, which prohibits disability discrimination in programs...specify: Who provides diabetes care (school nurse, trained staff,...Where supplies are stored and care happens (nurse's office, classroom,...vague reassurances. "We'll take care of...
Social Engagement > Discrimination
When Care Becomes Bias: Navigating Disability Discrimination in Healthcare
...didn't get needed care as a result. This...pattern where disability status affects...whether you receive care, how you're treated...treated during care, and whether providers...embedded in how care is delivered or...Strategic denial of care. A practice says...someone without a disability that same week....complexity is your disability, not the procedure...Substandard care based on perceived...
Social Engagement > Friends and Family
How to Help Your Child with Special Needs Build and Keep Friendships
...trains. Shared interest is the engine of childhood friendship regardless of disability. A LEGO club, a model railroad group, a gaming community, an art class focused...ambiguity because the script is already written: you're here because you both care about this thing. Ask what they talk about unprompted. What do they return...
Social Engagement > Discrimination
Understanding Disability Discrimination: Your Rights and How to Take Action
...experience disability discrimination...covers what disability discrimination...Counts as Disability Discrimination....Discrimination. Disability discrimination...of their disability, a history...history of disability, or a perceived...perceived disability. It shows...accommodations, or disability-based harassment....harassment. Disability discrimination...based on disability, harassment,...Denial of care, substandard...