Stormy weather or natural disasters, such as earthquakes and tornadoes, often scare any child, but these events can be magnified for children with special needs. Most parents understand these disasters, but are you prepared? Check out these tips for disaster preparedness. 1. Plan Ahead Think about the possibility of disasters in your area, and ask yourself any possible questions you can think of. For example, you might be at work and your child at school, so you will want to answer questions like "how will we find each other?," "where will we go?," and "what will we do if we don't have water or electricity?" Write down your questions and make a checklist for disaster preparedness. Follow a checklist, such as this one, before a disaster happens: Do you have a care plan and list of medications? Do you have a two-weeks supply of medications? Do you have backups for medical equipment that requires electricity? Does your doctor have suggestions for an ideal place to keep your child during the disaster? Is there a disaster plan in place for when your child is at school, home, or other location? Do you have a disaster supply kit? Does your family have a designated meeting place should you become separated? Does your child know what emergency workers wear? Do you have smoke and carbon monoxide detectors...

For children with special needs, create a disaster plan, prepare a supply kit, practice calm, and follow safety updates in emergencies.

Disaster Preparedness Tips for Special Needs

 Stormy weather or natural disasters, such as earthquakes and tornadoes, often scare any child, but these events can be magnified for children with special needs. Most parents understand these disasters, but are you prepared? Check out these tips for disaster preparedness.    1. Plan Ahead    Think about the possibility of disasters in your area, and ask yourself any possible questions you can think of. For example, you might be at work and your child at school, so you will want to answer questions like "how will we find each other?," "where will we go?," and "what will we do if we don't have water or electricity?" Write down your questions and make a checklist for disaster preparedness. Follow a checklist, such as this one, before a disaster happens:    Do you have a care plan and list of medications?   Do you have a two-weeks supply of medications?   Do you have backups for medical equipment that requires electricity?   Does your doctor have suggestions for an ideal place to keep your child during the disaster?   Is there a disaster plan in place for when your child is at school, home, or other location?   Do you have a disaster supply kit?   Does your family have a designated meeting place should you become separated?   Does your child know what emergency workers wear?   Do you have smoke and carbon monoxide detectors...

For children with special needs, create a disaster plan, prepare a supply kit, practice calm, and follow safety updates in emergencies.

Disaster Preparedness Tips for Special Needs

You hope your child never needs to call 911. But teaching them how is an act of trust in their capability, not preparation for disaster. Children with disabilities can learn emergency response skills when those skills are broken down, practiced, and adapted to how they communicate. The hard part isn't the mechanics of dialing. It's recognizing what counts as an emergency, knowing what to say when the operator answers, and staying on the line when anxiety kicks in. All of those are teachable skills. What Counts as an Emergency. The traditional advice is "call 911 if someone is hurt or in danger." That's too abstract for many children, who need concrete categories they can recognize and remember. Start with three categories: Medical emergencies: Someone is unconscious, having trouble breathing, bleeding heavily, or having a seizure that doesn't stop. Chest pain. A fall where the person can't get up. Allergic reactions with swelling or difficulty breathing. Fire or gas: Smoke you can't find the source of. Flames. The smell of gas. Safety threats: Someone breaking into the house. A stranger trying to take you somewhere. Being lost and unable to find your way home. Then teach what doesn't count: a nosebleed that stops after a minute, a stomachache, a sibling fight, the dog throwing up. If you can wait for Mom or Dad to handle it, it's not a 911 call. Practice this distinction with scenarios. "Your brother falls off his bike and scrapes his knee. Is that...

Teaching children with disabilities to recognize emergencies and call 911 builds independence and safety through clear scripts and practice.

Emergency Response Skills: When and How to Call 911

You hope your child never needs to call 911. But teaching them how is an act of trust in their capability, not preparation for disaster. Children with disabilities can learn emergency response skills when those skills are broken down, practiced, and adapted to how they communicate. The hard part isn't the mechanics of dialing. It's recognizing what counts as an emergency, knowing what to say when the operator answers, and staying on the line when anxiety kicks in. All of those are teachable skills. What Counts as an Emergency. The traditional advice is "call 911 if someone is hurt or in danger." That's too abstract for many children, who need concrete categories they can recognize and remember. Start with three categories:  Medical emergencies: Someone is unconscious, having trouble breathing, bleeding heavily, or having a seizure that doesn't stop. Chest pain. A fall where the person can't get up. Allergic reactions with swelling or difficulty breathing.  Fire or gas: Smoke you can't find the source of. Flames. The smell of gas.  Safety threats: Someone breaking into the house. A stranger trying to take you somewhere. Being lost and unable to find your way home. Then teach what doesn't count: a nosebleed that stops after a minute, a stomachache, a sibling fight, the dog throwing up. If you can wait for Mom or Dad to handle it, it's not a 911 call. Practice this distinction with scenarios. "Your brother falls off his bike and scrapes his knee. Is that...

You're three months behind on rent because your child's medical bills took priority. You heard there's a moratorium, and you assume that means you're safe. Then you get the notice: the moratorium lifted last week, and now you owe a lump sum you still can't pay. Moratoriums don't forgive debt; they pause consequences. For families with disabilities, that pause can buy time to apply for emergency assistance, document accommodations, or find legal help. But it's a window, not a solution. Here's what these protections do, what happens when they expire, and what resources exist when housing loss is imminent. What Eviction and Foreclosure Moratoriums Are. A moratorium is a temporary prohibition on evictions or foreclosures. During a declared emergency, such as a pandemic or natural disaster, federal, state, or local governments can issue orders that prevent landlords from filing eviction proceedings or lenders from initiating foreclosure. The goal is to keep families housed during a crisis when income loss and service disruptions make payment impossible. Federal moratoriums, like those issued by the CDC during COVID-19, typically apply nationwide. State and local moratoriums vary by jurisdiction and often extend protections beyond federal deadlines. Some cover all residential tenants; others apply only to properties with federally backed mortgages or tenants receiving housing assistance. Foreclosure moratoriums work similarly but target homeowners. Lenders can't proceed with foreclosure sales or initiate new foreclosure actions during the protected period. Mortgage servicers may also be required to offer forbearance, letting homeowners pause or reduce payments temporarily. The...

Moratoriums delay housing loss but don't erase debt. Know what protections exist and what to do when they expire.

How Foreclosure and Eviction Moratoriums Affect Families with Disabilities

You're three months behind on rent because your child's medical bills took priority. You heard there's a moratorium, and you assume that means you're safe. Then you get the notice: the moratorium lifted last week, and now you owe a lump sum you still can't pay. Moratoriums don't forgive debt; they pause consequences. For families with disabilities, that pause can buy time to apply for emergency assistance, document accommodations, or find legal help. But it's a window, not a solution. Here's what these protections do, what happens when they expire, and what resources exist when housing loss is imminent. What Eviction and Foreclosure Moratoriums Are. A moratorium is a temporary prohibition on evictions or foreclosures. During a declared emergency, such as a pandemic or natural disaster, federal, state, or local governments can issue orders that prevent landlords from filing eviction proceedings or lenders from initiating foreclosure. The goal is to keep families housed during a crisis when income loss and service disruptions make payment impossible. Federal moratoriums, like those issued by the CDC during COVID-19, typically apply nationwide. State and local moratoriums vary by jurisdiction and often extend protections beyond federal deadlines. Some cover all residential tenants; others apply only to properties with federally backed mortgages or tenants receiving housing assistance. Foreclosure moratoriums work similarly but target homeowners. Lenders can't proceed with foreclosure sales or initiate new foreclosure actions during the protected period. Mortgage servicers may also be required to offer forbearance, letting homeowners pause or reduce payments temporarily. The...

The wheelchair ramp your family needs costs $4,000. The bathroom remodel to make it accessible costs another $8,000. You own your home, you're rural, and Medicaid doesn't cover construction. You're looking at financing options you can't afford, or not making the changes at all. There's a federal program most rural families don't know exists. The USDA Section 504 Home Repair program offers grants up to $10,000 and loans up to $40,000 for accessibility modifications and health-and-safety repairs. If you're 62 or older, or have a household member with a disability, and your income qualifies, this money can cover ramps, grab bars, widened doorways, accessible bathrooms, and structural fixes that make your home safe. Here's who qualifies, what the program covers, and how to apply. What the USDA Section 504 Program Covers. The official name is Single Family Housing Repair Loans and Grants. It has two components: loans and grants. You can use one or combine both. Loan: Up to $40,000 at 1% fixed interest, repaid over 20 years. You qualify if your income is below 50% of your area's median income and you can't get affordable credit elsewhere. Grant: Up to $10,000 lifetime maximum ($15,000 in FEMA-declared disaster areas). You qualify if you're 62 or older AND unable to repay a loan. Income must be below 50% area median income. Combined: You can layer both for up to $50,000 total. The money covers two categories of repairs: removing health or safety hazards, and making the home accessible...

USDA Section 504 offers grants up to $10,000 and loans up to $40,000 for rural homeowners to make accessibility modifications.

How to Get a USDA Section 504 Grant or Loan to Make Your Home Accessible

The wheelchair ramp your family needs costs $4,000. The bathroom remodel to make it accessible costs another $8,000. You own your home, you're rural, and Medicaid doesn't cover construction. You're looking at financing options you can't afford, or not making the changes at all. There's a federal program most rural families don't know exists. The USDA Section 504 Home Repair program offers grants up to $10,000 and loans up to $40,000 for accessibility modifications and health-and-safety repairs. If you're 62 or older, or have a household member with a disability, and your income qualifies, this money can cover ramps, grab bars, widened doorways, accessible bathrooms, and structural fixes that make your home safe. Here's who qualifies, what the program covers, and how to apply. What the USDA Section 504 Program Covers. The official name is Single Family Housing Repair Loans and Grants. It has two components: loans and grants. You can use one or combine both.  Loan: Up to $40,000 at 1% fixed interest, repaid over 20 years. You qualify if your income is below 50% of your area's median income and you can't get affordable credit elsewhere.  Grant: Up to $10,000 lifetime maximum ($15,000 in FEMA-declared disaster areas). You qualify if you're 62 or older AND unable to repay a loan. Income must be below 50% area median income.  Combined: You can layer both for up to $50,000 total. The money covers two categories of repairs: removing health or safety hazards, and making the home accessible...

When a frightening and tragic event such as a the Boston marathon bombing, school shooting, terrorist attack, or a natural disaster occurs, children may understandably have lots of questions and concerns. In some cases, they may experience some anxiety , and worry that something similar could happen to them or to their loved ones. Here are some tips to keep in mind when talking to kids about a tragic event or scary news development: As a general rule, it's a good idea to turn off the TV and radio and not read too much internet news coverage after a tragedy. It's to be expected that headlines will be blaring with updates on a big news event like a school shooting or a natural disaster, and many of the images and conversations can potentially be graphic or emotionally wrenching. Try to find another family activity — such as playing a board game or reading a book together — to take your child's mind, and your own, off of the news event or at least put it in the background. Try to minimize your own exposure to the news coverage. Remember that kids are very good at picking up your stress levels and knowing when you feel anxious. Constant updates on the news can also create stress and anxiety in adults, so parents should be mindful about controlling how much they are tuned in to the news. Check in periodically to scan headlines, either...

Discuss tragedies with kids calmly, minimize news exposure, address concerns, and encourage coping strategies.

How to Talk with Kids About Tragic Events in the News

When a frightening and tragic event such as a the Boston marathon bombing, school shooting, terrorist attack, or a natural disaster occurs, children may understandably have lots of questions and concerns. In some cases, they may experience some anxiety  , and worry that something similar could happen to them or to their loved ones.  Here are some tips to keep in mind when talking to kids about a tragic event or scary news development:   As a general rule, it's a good idea to turn off the TV and radio and not read too much internet news coverage after a tragedy. It's to be expected that headlines will be blaring with updates on a big news event like a school shooting or a natural disaster, and many of the images and conversations can potentially be graphic or emotionally wrenching. Try to find another family activity — such as playing a board game   or reading a book together — to take your child's mind, and your own, off of the news event or at least put it in the background.   Try to minimize your own exposure to the news coverage. Remember that kids are very good at picking up your stress levels and knowing when you feel anxious. Constant updates on the news can also create stress and anxiety in adults, so parents should be mindful about controlling how much they are tuned in to the news. Check in periodically to scan headlines, either...

Oh, man. There goes the bell for the end of 4th period. I hate this bell. It means I have to go to my locker and unload all my stuff from the first four periods and pick up everything else I need through the end of the day. I only go to my locker once a day and have to cram everything I need in my backpack, because my stupid lock combination has the number "6" in it. Six is a terrible number – it's associated with the dev... well, you know what I mean. And it's right up there with "9" – which is 6, flipped around. I get stuck on the 6 every single time I do my lock combination and have to say a bunch of good numbers, like "2" or "8," to feel better. And all of this takes up a lot of the passing period. On top of this, there's this really weird kid who walks down the hall every day at this time. No way do I want to bump into him, because if I do, I'm afraid I'll get contaminated and become like him. Now THAT just can't happen. So I have to hide out around the corner until he passes by. There goes some more time. I'm late to 5th period so much that my teacher says she's going to drop me a grade if I'm tardy one more time. And that would be a disaster. Fifth period...

OCD in kids disrupts school, affecting academics and social skills, but collaboration between parents and schools can support them.

The Impact of OCD on Kids in a School Setting

 Oh, man. There goes the bell for the end of 4th period. I hate this bell. It means I have to go to my locker and unload all my stuff from the first four periods and pick up everything else I need through the end of the day. I only go to my locker once a day and have to cram everything I need in my backpack, because my stupid lock combination has the number "6" in it. Six is a terrible number – it's associated with the dev... well, you know what I mean. And it's right up there with "9" – which is 6, flipped around. I get stuck on the 6 every single time I do my lock combination and have to say a bunch of good numbers, like "2" or "8," to feel better. And all of this takes up a lot of the passing period. On top of this, there's this really weird kid who walks down the hall every day at this time. No way do I want to bump into him, because if I do, I'm afraid I'll get contaminated and become like him. Now THAT just can't happen. So I have to hide out around the corner until he passes by. There goes some more time.    I'm late to 5th period so much that my teacher says she's going to drop me a grade if I'm tardy one more time. And that would be a disaster. Fifth period...

After beginning our Transition article series , we received a question from a reader telling us about her experience going from a pediatric clinic to an adult clinic. This patient explains to us her common concern that so many others experience. Lisa Greene responds with some very helpful advice. Question: “I was 19 when I transitioned and it was a huge shock. My peds doctors were amazing, my mom was usually with me but even then my peds doc spoke directly to me and helped prepare me for what was coming. She took so much interest in my life outside of cystic fibrosis (CF) as well (she knew that what was going on at home affected my CF). Transitioning to the adult clinic was awful. I felt that my new doctor didn't care about me as a person and that I was just another patient to her…I'm naturally a shy person and after that first disaster of an appointment, I just retreated into myself. After a few more appointments, we have slowly started to get to know each other and I've relaxed a bit more, but its still not the same. I still have the feeling that I'm such an inconvenience to her. . . and it really kills me every doctor's appointment. My peds docs were like family. . . and I was hoping that my adult doctor would be the same, especially since I'm always up there and always having to...

Transition from peds to adult care can be tough; patient advocacy and understanding different medical models are key.

Advice on Transition from Pediatrics to Adult

 After beginning our   Transition article series  , we received a question from a reader telling us about her experience going from a pediatric clinic to an adult clinic. This patient explains to us her common concern that so many others experience. Lisa Greene responds with some very helpful advice.   Question:  “I was 19 when I transitioned and it was a huge shock. My peds doctors were amazing, my mom was usually with me but even then my peds doc spoke directly to me and helped prepare me for what was coming. She took so much interest in my life outside of cystic fibrosis (CF) as well (she knew that what was going on at home affected my CF). Transitioning to the adult clinic was awful. I felt that my new doctor didn't care about me as a person and that I was just another patient to her…I'm naturally a shy person and after that first disaster of an appointment, I just retreated into myself. After a few more appointments, we have slowly started to get to know each other and I've relaxed a bit more, but its still not the same. I still have the feeling that I'm such an inconvenience to her. . . and it really kills me every doctor's appointment. My peds docs were like family. . . and I was hoping that my adult doctor would be the same, especially since I'm always up there and always having to...

You can't schedule a caregiving crisis. When your backup falls through at the last minute, when you're facing burnout that can't wait for a six-month waitlist, or when a medical emergency means you need respite care immediately, emergency respite vouchers exist for exactly these moments. Lifespan Respite programs in most states offer emergency vouchers up to $500 to cover urgent, unplanned respite needs. These aren't the standard respite programs with intake processes and waiting lists. They're designed to get help in place fast when you're out of options. What Counts as an Emergency. Emergency respite vouchers cover situations where you need immediate care and can't access your usual support system. Your regular caregiver is hospitalized. Your child's school closes unexpectedly for a week and you have no backup plan. You're facing physical or emotional exhaustion that's affecting your ability to provide safe care. A family member dies and you need to travel for the funeral but have no one to stay with your child. The program isn't looking for a definition of "emergency" that matches a disaster declaration. It's built around caregiver reality: the moments when your usual system breaks down and you need help now, not next month. Most state coalitions define emergency as any unplanned, urgent situation where the primary caregiver can't continue without immediate support. If you're unsure whether your situation qualifies, call your state coalition. They can tell you in one conversation whether emergency funds apply. How Much You Can Get. Emergency vouchers typically max out...

Emergency respite vouchers up to $500 are available through Lifespan Respite programs when urgent caregiving crises hit.

Lifespan Respite Vouchers: $500 Emergency Grants

You can't schedule a caregiving crisis. When your backup falls through at the last minute, when you're facing burnout that can't wait for a six-month waitlist, or when a medical emergency means you need respite care immediately, emergency respite vouchers exist for exactly these moments. Lifespan Respite programs in most states offer emergency vouchers up to $500 to cover urgent, unplanned respite needs. These aren't the standard respite programs with intake processes and waiting lists. They're designed to get help in place fast when you're out of options. What Counts as an Emergency. Emergency respite vouchers cover situations where you need immediate care and can't access your usual support system. Your regular caregiver is hospitalized. Your child's school closes unexpectedly for a week and you have no backup plan. You're facing physical or emotional exhaustion that's affecting your ability to provide safe care. A family member dies and you need to travel for the funeral but have no one to stay with your child. The program isn't looking for a definition of "emergency" that matches a disaster declaration. It's built around caregiver reality: the moments when your usual system breaks down and you need help now, not next month. Most state coalitions define emergency as any unplanned, urgent situation where the primary caregiver can't continue without immediate support. If you're unsure whether your situation qualifies, call your state coalition. They can tell you in one conversation whether emergency funds apply. How Much You Can Get. Emergency vouchers typically max out...

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