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News > Advocacy
Self-Advocacy for Adults with Disabilities: How to Speak Up in Medical Work and Daily Life
Self-advocacy is the skill of communicating your needs, making...accommodations that allow you to work, whether your doctor listens when you describe pain, whether you're...matter most. Know What You're Entitled To. Self-advocacy starts with understanding your legal rights. You...
Lifestyle > Independence
Teaching Self-Advocacy: How to Help Your Child Speak Up for Their Needs
...explain their diagnosis to a new doctor. Self-advocacy isn't something that...their diagnosis to a new doctor. Self-advocacy isn't something that happens on its...accommodation" at twenty-seven. Why Self-Advocacy Starts Early. Most parents focus on...else to fight their battles. Self-advocacy has three parts: understanding your...
Parenting > Early Intervention
Strategies for Supporting Children with Special Needs
...Every child with special needs is unique. It's important to understand your child's specific diagnosis, strengths, and challenges. Talk to your child's doctor, therapists, and teachers to gather information. Learn about your child's condition by reading books, articles, and connecting with other parents....
Parenting > Adulthood
Advice on Transition from Pediatrics to Adult
...transitioned and it was a huge shock. My peds doctors were amazing, my mom was usually with...clinic was awful. I felt that my new doctor didn't care about me as a person and...her. . . and it really kills me every doctor's appointment. My peds docs were like.... . and I was hoping that my adult doctor would be the same, especially since...
Legal > Advocacy
Special Needs Advocacy 101
...all he does is make noises, I've never heard any words come out of his mouth. I've mentioned this to the pediatrician on numerous occasions and the doctor just tells me not to worry. He says my son will talk when he is ready. What does that mean?" "My daughter is in third grade and she is reading at a...
Global Insights > Advocacy
Professional Organization for Special Needs
...paperwork, toys, and so forth. Below are some tips to help reduce stress. Keeping a calendar is vital for the special needs child because of important doctor's appointments and IEP meetings you do not want to miss. It does not matter if it is an electronic calendar or paper calendar, just choose your method...
Health > Treatment
Transitioning to Adult Healthcare: Preparing Your Young Adult with Special Needs for the Move
...and you realize you don't know a single adult doctor who treats people with cerebral palsy. Or autism....who will take your call. Start at 14: Build Self-Advocacy Skills Before You Need Them. The work of transition...14 to 16, the priority isn't finding an adult doctor yet. It's building the skills your young adult...
News > Advocacy
Your Doctor's Patient Portal Has 18 Days to Become Accessible. Here's What Disability Families Need to Know Before It Gets Delayed.
The May 11 HHS Section 504 deadline requires accessible patient portals and telehealth. Unlike the ADA rule, it hasn't been delayed.
News > Advocacy
The Healthcare Accessibility Deadline Is 6 Days Away. Here's What Disability Families Should Do If Their Provider's Site Still Isn't Accessible.
...Guidelines (WCAG) 2.1 Level AA standards. That means websites must work with screen readers, keyboard navigation, and other assistive technologies. If your doctor's patient portal still can't be navigated with a screen reader, or your child's telehealth platform doesn't support keyboard-only navigation, you're...
News > Education
Conference Watch: International Dyslexia Association Reading and Learning Conference in Chicago, November 9-12
...100 sessions in four different tracks: Research, Clinical, Parent/ Family/Advocacy, and Research to Practice. All of the presenters, speakers, and chairs...members of the dyslexia community and include world renowned educators, doctors, and researchers in the field of dyslexia. A wide variety of material...
News > Advocacy
The FDA Is About to Finalize Its Ban on Shock Devices Used on Disabled People. Here's What Families Need to Know.
...first banned GEDs in March 2020, but a federal appeals court overturned that ban in July 2021, ruling the agency lacked authority to regulate how doctors use medical devices. Congress responded by amending the Food, Drug, and Cosmetic Act through the Consolidated Appropriations Act of 2022, clarifying...
News > Technology
Your Child's Doctor Now Has to Have an Accessible Exam Table and Wheelchair-Accessible Scale
A federal rule now requires providers that take Medicare or Medicaid to have accessible exam tables and scales. How families can use it.