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Research > Genetics
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
...specifically for that child's genetic mutation, built...question everyone asks: does this apply to my child?...asks: does this apply to my child? The short answer...does this apply to my child? The short answer is that...with rare disorders won't qualify for personalized CRISPR...announcement. What CRISPR Does and What It Doesn't Fix....
Therapies > Physical
Physical Therapy for Children with Special Needs: A Complete Parent's Guide
...wait." Your school-age child trips constantly and struggles...moments when parents wonder: does my child need physical...when parents wonder: does my child need physical therapy?...parents wonder: does my child need physical therapy?...is, how to know if your child needs it, what happens...most, and how to find a qualified therapist you can trust....
Lifestyle > Independence
Ying / Yang – Balance Your Child With The Outside World
...want your child to be truly...Quantity over quality is never...solution. Your child would be...Introducing your child to several...time!! Think quality when you...introduce your child to activities,...activities: Does my child...activities: Does my child possess...Does my child possess...benefit my child in...benefit my child in a meaningful...address my child's...address my child's needs?...needs? Does the program...conflict with my child's...with my child's primary...
Assistive Tech > Mobility
Standing Frames for Children with Cerebral Palsy: Medical Benefits Beyond Walking
Your child's physical therapist...your head: if my child isn't going...your head: if my child isn't going to...going to walk, why does standing matter?...the body when a child bears weight....Standing Frame Does. A standing frame...that supports a child in an upright,...frame holds the child's trunk, hips,...Developmental Medicine & Child Neurology...
News > Advocacy
After High School: What Families Need to Know About Transition Planning
...day you look up and your child is 16, and someone mentions...is the section of your child's IEP that prepares them...isn't just teaching your child to read or do math anymore....questions: What skills does my child need to hold a...questions: What skills does my child need to hold a job?...questions: What skills does my child need to hold a job? What...
Education > K-12
The Special Education Evaluation Process: What Parents Need to Know
...evaluation for your child, or the school...answers: What does this mean for my...this mean for my kid? This is what...specific questions: Does your child have...questions: Does your child have a disability?...a disability? Does that disability...based on your child's suspected needs....suspected needs. A child referred for reading...different tests than a child referred for behavioral...
Therapies > Music
Music Therapy at Home: Best Instruments and Activities for Children with Special Needs
Your child's music therapist...part of what your child's therapy is trying...know what your child is working on...a drum. For a child working on bilateral...create sound. For a child who needs proprioceptive...matches what the child's nervous system...home. Not "what does my child enjoy"...Not "what does my child enjoy" but..."what does my child enjoy" but "what...
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
Your child's pediatric spina bifida...years. The team knows your child's history, manages their...orthopedic concerns. Then your child turns 18, ages out of pediatrics,...process of teaching your child to manage their own complex...have. What their shunt does and why it matters. The...It's about moving from "my parents handle everything"...
Assistive Tech > Mobility
Adaptive Equipment for Cerebral Palsy: A Complete Guide by Age
...first year. By the time a child is five, the list can include...gets a direct answer: why does my child need all of this?...direct answer: why does my child need all of this?...direct answer: why does my child need all of this? Cerebral...Understanding what each category does, and when it enters the...doubt about what your child needs, ask for an occupational...
Special Needs > General Special Needs
The Challenges Of Parenting A Child With Williams Syndrome
...Syndrome: What Does It Mean For...It Mean For My Child? When...Mean For My Child? When your...When your child is diagnosed...loss of the child you thought...that your child is still the...parenting a child with Williams...support your child needs. This...support to your child and help them...advocate for your child. This means...you see your child thriving....parenting a child with Williams...
Special Needs > Down Syndrome
The Challenges Of Parenting A Child With Down Syndrome
...Is It And How Does It Affect My Child?...Does It Affect My Child? Down syndrome...Does It Affect My Child? Down syndrome...and affects a child's physical and...potential. parenting a child with Down syndrome...advocate for your child's rights and ensure...Of Parenting A Child With Down Syndrome....of parenting a child with Down syndrome...and love their child brings far outweighs...
Special Needs > Autism Spectrum
Autism: What Is It And How Does It Affect My Child?
...reach out for help if you think your child might be on the spectrum. How Does Autism...child might be on the spectrum. How Does Autism Affect My Child? Autism is a...the spectrum. How Does Autism Affect My Child? Autism is a neurological disorder...spectrum. How Does Autism Affect My Child? Autism is a neurological disorder that...