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The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.
News > Research

The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.

By Lucas Johnson
The U.S. Food and Drug Administration granted Regenerative...granted Regenerative Medicine Advanced Therapy (RMAT) designation to GS-100 on April...14, 2026, an investigational gene therapy developed by Grace Science for NGLY1...and review of regenerative medicine therapies that show preliminary clinical evidence...
Dietary Therapy for Epilepsy: A Parent's Guide to Ketogenic and Modified Atkins Diets
Special Needs > Epilepsy

Dietary Therapy for Epilepsy: A Parent's Guide to Ketogenic and Modified Atkins Diets

By Emily Thompson
...enough. Now you're hearing about dietary therapy from other parents online, and you...intervention that's been used for drug-resistant epilepsy since the 1920s....For many of these families, dietary therapy becomes the next conversation with...commit to these protocols. How Dietary Therapy Works for Seizures. The ketogenic...
A New Epilepsy Treatment Reports Over 90% Seizure Reduction in Initial Patients
Special Needs > Epilepsy

A New Epilepsy Treatment Reports Over 90% Seizure Reduction in Initial Patients

By Emily Thompson
For families managing drug-resistant epilepsy, the standard list of options is a familiar and often...finding the relief they needed. That backdrop matters for understanding why a therapy currently in clinical trial is drawing real attention from the epilepsy...
Unveiling Breakthroughs in Muscular Dystrophy Treatment
Research > Drug Development

Unveiling Breakthroughs in Muscular Dystrophy Treatment

By Liam Richardson
...Are Developed. Making a new drug is a long process. It can take...they make and test different drug compounds. The most promising...on to animal testing. If a drug seems safe and effective, it...safety and benefits of the drug. The FDA looks at all the data...Promising Research Areas. Gene therapy is one exciting area of research...
What is Recreation Therapy?
Therapies > Other

What is Recreation Therapy?

By SpecialNeeds.com Editor
...Recreation therapists plan...(such as drug use), or...Recreation therapy, also called...also called therapeutic recreation,...to other therapies, such...occupational therapy, because...recreation therapists can help...Recreation therapy skills are...Recreation therapy improves...recreation therapy like? As...with other therapies, recreation...recreation therapy might involve...
Turning Basic Research into Better Treatments
Research > Drug Development

Turning Basic Research into Better Treatments

By SpecialNeeds.com Editor
...the world of medical research, starting with developing a myelin repair therapeutic for multiple sclerosis faster than the status quo. This brief video...myelin repair for MS, a new and comprehensive model for medical research and drug development that significantly shortens the time to market for new medicines...
FDA Expands VYVGART Approval to All Adults With Myasthenia Gravis. Here's What Families Need to Know.
News > Research

FDA Expands VYVGART Approval to All Adults With Myasthenia Gravis. Here's What Families Need to Know.

By Lucas Johnson
The U.S. Food and Drug Administration approved a label expansion for VYVGART and VYVGART Hytrulo...roughly 20% of the gMG population, many of whom had no FDA-approved targeted therapy specific to their antibody subtype. Generalized myasthenia gravis is a chronic...
Investing in the Future of Special Needs Research and Innovation
Research > Funding

Investing in the Future of Special Needs Research and Innovation

By Kelsey James
...for this research helps develop new therapies, assistive technologies, and educational...most. Advancing Medical Treatments and Therapies. Research also propels forward our...other fields have led to targeted drug therapies and interventions for conditions...other fields have led to targeted drug therapies and interventions for conditions...
Trump Just Signed 100% Tariffs on Brand-Name Drugs. What Disability Families Need to Know About Their Medications.
News > Advocacy

Trump Just Signed 100% Tariffs on Brand-Name Drugs. What Disability Families Need to Know About Their Medications.

By Henry Peterson
...(Drugs designated under the Orphan Drug Act for rare diseases affecting fewer...people) Nuclear medicines Plasma-derived therapies Fertility treatments Cell and gene...Fertility treatments Cell and gene therapies Antibody drug conjugates Medical...treatments Cell and gene therapies Antibody drug conjugates Medical countermeasures...
EU Drug Regulators Recommend First Treatment to Slow Disability Progression in Non-Relapsing Secondary Progressive MS
News > Research

EU Drug Regulators Recommend First Treatment to Slow Disability Progression in Non-Relapsing Secondary Progressive MS

By Lucas Johnson
European drug regulators recommended approval of...Commission approval within months. If the drug later gains FDA approval, it would...process that current relapse-focused therapies don't address. An estimated 400,000...now, there hasn't been an FDA-approved drug specifically proven to slow that progression....
Updating Your Letter of Intent: What Changes Require Revisions
Financial > Financial Planning

Updating Your Letter of Intent: What Changes Require Revisions

By James Williams
...schools, started a new medication, and their physical therapist retired. The document sitting in your file drawer...your child had an adverse reaction to a specific drug class, that detail protects them when you're not...the diagnosis is confirmed. New specialists or therapists also warrant an...
How to Choose Safe CBD Products: Purity Testing and Quality Verification
Health > Alternative Medicine

How to Choose Safe CBD Products: Purity Testing and Quality Verification

By Kelsey James
...read one. That gap matters more in this category than almost anywhere else in the supplement aisle. The FDA does not regulate CBD as a supplement or a drug, which means there is no standard requiring accurate labeling, no enforced potency range, and no mandatory contaminant screening. A 2017 study in JAMA...

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