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Dietary Therapy for Epilepsy: A Parent's Guide to Ketogenic and Modified Atkins Diets
Special Needs > Epilepsy

Dietary Therapy for Epilepsy: A Parent's Guide to Ketogenic and Modified Atkins Diets

By Emily Thompson
...enough. Now you're hearing about dietary therapy from other parents online, and you...intervention that's been used for drug-resistant epilepsy since the 1920s....For many of these families, dietary therapy becomes the next conversation with...commit to these protocols. How Dietary Therapy Works for Seizures. The ketogenic...
A New Epilepsy Treatment Reports Over 90% Seizure Reduction in Initial Patients
Special Needs > Epilepsy

A New Epilepsy Treatment Reports Over 90% Seizure Reduction in Initial Patients

By Emily Thompson
For families managing drug-resistant epilepsy, the standard list of options is a familiar and often...finding the relief they needed. That backdrop matters for understanding why a therapy currently in clinical trial is drawing real attention from the epilepsy...
Unveiling Breakthroughs in Muscular Dystrophy Treatment
Research > Drug Development

Unveiling Breakthroughs in Muscular Dystrophy Treatment

By Liam Richardson
...Are Developed. Making a new drug is a long process. It can take...they make and test different drug compounds. The most promising...on to animal testing. If a drug seems safe and effective, it...safety and benefits of the drug. The FDA looks at all the data...Promising Research Areas. Gene therapy is one exciting area of research...
What is Recreation Therapy?
Therapies > Other

What is Recreation Therapy?

By SpecialNeeds.com Editor
...Recreation therapists plan...(such as drug use), or...Recreation therapy, also called...also called therapeutic recreation,...to other therapies, such...occupational therapy, because...recreation therapists can help...Recreation therapy skills are...Recreation therapy improves...recreation therapy like? As...with other therapies, recreation...recreation therapy might involve...
Turning Basic Research into Better Treatments
Research > Drug Development

Turning Basic Research into Better Treatments

By SpecialNeeds.com Editor
...the world of medical research, starting with developing a myelin repair therapeutic for multiple sclerosis faster than the status quo. This brief video...myelin repair for MS, a new and comprehensive model for medical research and drug development that significantly shortens the time to market for new medicines...
Investing in the Future of Special Needs Research and Innovation
Research > Funding

Investing in the Future of Special Needs Research and Innovation

By Kelsey James
...for this research helps develop new therapies, assistive technologies, and educational...most. Advancing Medical Treatments and Therapies. Research also propels forward our...other fields have led to targeted drug therapies and interventions for conditions...other fields have led to targeted drug therapies and interventions for conditions...
Trump Just Signed 100% Tariffs on Brand-Name Drugs. What Disability Families Need to Know About Their Medications.
News > Advocacy

Trump Just Signed 100% Tariffs on Brand-Name Drugs. What Disability Families Need to Know About Their Medications.

By Henry Peterson
...(Drugs designated under the Orphan Drug Act for rare diseases affecting fewer...people) Nuclear medicines Plasma-derived therapies Fertility treatments Cell and gene...Fertility treatments Cell and gene therapies Antibody drug conjugates Medical...treatments Cell and gene therapies Antibody drug conjugates Medical countermeasures...
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
Research > Drug Development

Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework

By Dr. Jenna Collins
...don't fully understand, for a drug that may or may not work, with...side effects, and whether the drug is tolerated. This is the highest-risk...the highest-risk phase. The drug may not work at all; safety...looking for a signal that the drug does what it's supposed to do....3,000 participants or more. The drug has shown promise in earlier...
Fragile X Drug Trials: The First Real Breakthroughs and What They Mean for Families
Research > Drug Development

Fragile X Drug Trials: The First Real Breakthroughs and What They Mean for Families

By Dr. Jenna Collins
If you've been following Fragile X drug research for any length of time, you've probably learned to hold good news...it carefully rather than cautiously. In 2024, Zatolmilast became the first drug to produce unequivocally positive results in a Phase 2 trial for Fragile...
The Drug Development Pipeline for Special Needs: What Parents Need to Know About How Treatments Go from Lab to FDA Approval
Research > Drug Development

The Drug Development Pipeline for Special Needs: What Parents Need to Know About How Treatments Go from Lab to FDA Approval

By Dr. Jenna Collins
...headline about a promising autism drug entering Phase 2 trials, and...market. Understanding where a drug sits in the development pipeline...specific question about whether a drug is safe enough and effective...Human Testing Begins. Before a drug is tested in people, it goes...file an Investigational New Drug (IND) application, which is...
Managing Multiple Medications for Children with Medical Complexity: A Parent's Safety Guide
Health > Treatment

Managing Multiple Medications for Children with Medical Complexity: A Parent's Safety Guide

By Henry Bennett
...question no one else is tracking: do all of these still make sense together? Children with medical complexity face a five times higher risk of adverse drug events than children on single medications. Over 30% of medication errors happen at home, not in hospitals. The system assumes someone is watching the...
CBD for Children with Special Needs: Separating Marketing from Medicine
Health > Alternative Medicine

CBD for Children with Special Needs: Separating Marketing from Medicine

By Kelsey James
...between FDA-approved CBD and the CBD products you see in stores or online. The FDA has approved exactly one CBD medication: Epidiolex, a prescription drug used to treat seizures in Dravet syndrome and Lennox-Gastaut syndrome, two rare forms of epilepsy. Epidiolex is pharmaceutical-grade, meaning every...

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