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Private Foundations Funding Disability Research: A Guide for Advocates and Families
Research > Funding

Private Foundations Funding Disability Research: A Guide for Advocates and Families

By Kelsey James
...condition-specific players and broad-scope innovators. Simons Foundation SFARI remains the anchor for autism research. Their grants range from exploratory pilot studies to multi-year investigator awards. Application cycles open annually in the fall, with letters of intent...
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
Research > Drug Development

Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework

By Dr. Jenna Collins
...Phase 2 tests effectiveness in 100 to 300 people. Researchers are looking for a signal that the drug does what it's supposed to do. It's still exploratory. Many drugs that pass Phase 1 fail here. Phase 3 is large-scale confirmation, typically 1,000 to 3,000 participants or more. The drug has shown...
How to Fight an Insurance Denial for Your Child's Autism or ADHD Evaluation
Health > Diagnosis

How to Fight an Insurance Denial for Your Child's Autism or ADHD Evaluation

By Daniel Evans
...and ADHD require documented impact on daily functioning. Without evidence of those impairments in the authorization request, the evaluation looks exploratory rather than diagnostic. Timing also matters. If your child is already receiving services through an IEP based on a school assessment, the insurer...
Building a Sustainable Airway Clearance Routine for Your Child with CF
Special Needs > Cystic Fibrosis

Building a Sustainable Airway Clearance Routine for Your Child with CF

By Franklin Morris
...not optional maintenance. The techniques fall into three main categories: high-frequency chest wall oscillation vest therapy, oscillating positive expiratory pressure devices like Aerobika or Acapella, and manual chest physiotherapy. Each does the same job of loosening and moving mucus, but the day-to-day...

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