Results
Financial > Government Benefits
Show Me the Money and Failure to Thrive
...was born. I would drive to doctor's appointments, hoping...We are very fortunate to live in a large city in...Canada — we have access to the best medical care in...all the machines attached to Little Miss Adorable....costs would have been close to 2 million before she left...and a round of antibodies to prevent RSV infection (respiratory...
Health > Nutrition
The G-Tube Decision: What to Expect When Your Child Needs a Feeding Tube
...months or years coaxing your child to eat, tracking weight, fielding questions...vary, but the common threads include: Failure to thrive. This is the clinical term...the common threads include: Failure to thrive. This is the clinical term for...common threads include: Failure to thrive. This is the clinical term for when...
Special Needs > Autism Spectrum
Sleep and Autism: Evidence-Based Help for Children Who Can't Fall Asleep or Stay Asleep
You put your child to bed at 8:30. At 10:00 they're...you're lying on the floor next to their bed hoping your presence...chronic sleep problems, according to multiple studies tracking sleep...you're in isn't a parenting failure. Sleep regulation is neurologically...what the research shows and how to use both. Why Autistic Children...
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
...teaching your child to manage their own...Skills that take years to build, not months....handle everything" to "I understand what's...the focus shifts to hands-on skills....Recognizing shunt failure symptoms and knowing...and knowing when to go to the ER versus...knowing when to go to the ER versus when...the ER versus when to call the...
Social Engagement > Discrimination
Understanding Disability Discrimination: Your Rights and How to Take Action
...according to a 2022 Urban...knowing what to call it, which...applies, or where to file a complaint....you, and how to file complaints...practices, refusal to provide required...At work: Failure to provide...work: Failure to provide reasonable...termination, refusal to hire based...equal access to benefits and...employed compared to 65.5% of people...discharge plus failure to accommodate...plus failure to accommodate...treatment compared to non-disabled...
Research > Clinical Trials
The Questions Every Parent Should Ask Before Enrolling in a Clinical Trial
...was designed to obscure rather...they've agreed to. The consent process...the pressure to say yes can feel...answers. Here's what to ask before you...questions designed to filter out trials....trial compared to standard care?...What you need to know is how those...risks compare to what your child...trial, ask about failure rates or complications...procedures compared to what my child...
Parenting > Self-Care
The Respite Care Blueprint: How to Find, Fund, and Use Backup Care
...human biology, not a failure of will or love....don't know where to turn when they need...what it is, where to find it, or how to...to find it, or how to pay for it. Respite...offers vouchers up to $500 for qualifying...care available, how to access each one,...each one, and how to prepare so backup...primary caregivers time to rest, handle other...
Medical > Gastroenterology
When Picky Eating Signals a Medical Problem: Distinguishing ARFID and GI Disorders in Special Needs Children
...And you're starting to wonder if everyone...That number rises to 80 percent in special...asking your child to push through something...limitations severe enough to cause nutritional...outcomes: persistent failure to meet nutritional...persistent failure to meet nutritional...significant weight loss or failure to gain, marked nutritional...weight loss or failure to gain, marked nutritional...
Lifestyle > Recreation
Board Games That Build Skills: A Parent's Guide to Therapeutic Tabletop Play
...play that ends in tears felt like volunteering for failure. Then one Saturday you opened Outfoxed, a cooperative...mystery game, and watched your kids work together to catch the fox for 45 minutes without a single meltdown....know which games work for which disabilities, how to modify the ones collecting dust in the closet, or...
Health > Mental Health
Caregiver Burnout in Special Needs Parenting: Recognition, Prevention, and Recovery
...school email that starts with "We need to talk about..." The insurance denial...therapy appointment you drive 40 minutes to because it's the only provider within...experiencing burnout. That number is not a failure of individual resilience. It is a predictable...resilience. It is a predictable response to sustained demand without sufficient...
Global Insights > Laws
How to Be a More Effective Advocate for Your Child with a Disability
...alternatives to suggest. You...know what else to do. This isn't...This isn't a failure of love or commitment....are expected to advocate effectively...You don't need to become a legal...but you need to know the basics:...is required to provide, what...is entitled to, and what happens...have the right to examine all...records related to your child....you can appeal to court within...
Global Insights > Culture
Understanding Disability Culture: Identity, Community, and Pride for Families New to the Conversation
...shifted or when. This isn't a failure of understanding. It's a collision...disability as something happening to a person, something to fix, accommodate,...happening to a person, something to fix, accommodate, or overcome....accepting definitions handed to them by medical providers or...IDEA, humor that's specific to the experience, pride events...