Results
Financial > Government Benefits
Show Me the Money and Failure to Thrive
...was born. I would drive to doctor's appointments, hoping...We are very fortunate to live in a large city in...Canada — we have access to the best medical care in...all the machines attached to Little Miss Adorable....costs would have been close to 2 million before she left...and a round of antibodies to prevent RSV infection (respiratory...
Health > Nutrition
The G-Tube Decision: What to Expect When Your Child Needs a Feeding Tube
...months or years coaxing your child to eat, tracking weight, fielding questions...vary, but the common threads include: Failure to thrive. This is the clinical term...the common threads include: Failure to thrive. This is the clinical term for...common threads include: Failure to thrive. This is the clinical term for when...
Career > Discrimination
Failure to Accommodate as Discrimination: When Denials Violate the ADA
...legitimate reason to deny the request....law. Here's how to tell the difference,...accommodations to qualified employees...is a change to the job, work...that allows you to do your job....reassignment to a vacant position....doesn't have to be the exact...it does have to be effective....They're required to engage in an...conversation to identify what...they refuse to participate in...
Career > Advancement
Speaking Up When Disability Isn't the Problem But Gets Blamed Anyway
...attributes it to your disability....nothing to do with it,...nothing to do with it....you need to have. Why...Default to Disability...It's easier to point to...to point to disability...disability than to admit a workflow...problem to an employee's...reframes the failure as an individual...managers to see disability...deadline due to poor communication..."we need to clarify expectations."...more likely to hear "maybe...attribution. How to Recognize...
Career > Advancement
Skills Transferability: Reframing Disability Experience as Professional Assets
...background noise to your professional...whether you know how to name them in language...You've anticipated failure points and built...organizations claim to want when they...cleanly. You know how to manage competing...enough of that bias to hesitate before...systems you've built to function day-to-day....to function day-to-day. What processes...have you designed to work around...
Assistive Tech > Mobility
Mobility Equipment Maintenance: Keeping Wheelchairs and Walkers Safe
...child's wheelchair to work reliably...they can get to school, participate...where they need to go. Most wheelchair...checks prevent failures and which ones...are just nice-to-have vendor recommendations...often you need to do it and what...do it and what failures each check prevents....chairs harder to push and draining...brakes and try to roll the chair....adjustment. Brake failure on a ramp or...
Assistive Tech > Mobility
Manual Wheelchair Backup: Why Power Chair Users Still Need a Push Chair
...take that long or longer, what happens to school, therapy appointments, and getting...school, therapy appointments, and getting to the bathroom independently? A manual...batteries, and electronics exposed to daily wear. They're driven over curbs,...Common breakdowns include: Battery failure: Batteries degrade after 12–18 months...
News > Advocacy
A Federal Appeals Court Just Ruled Florida Violated the ADA by Putting Children with Disabilities in Nursing Homes. Here's What Families Need to Know.
...authorizations leading to institutional placement...Medicaid program fails to provide adequate private...staffing gap. It's systemic failure to deliver services the...gap. It's systemic failure to deliver services the state...weren't enough nursing hours to cover the gap. Another mother...nursing shortages forced her to miss work providing care...
Special Needs > Spina Bifida
Recognizing Shunt Failure in Spina Bifida: Signs Every Parent Should Know
...watching for failure. About 80-90%...depend on a shunt to manage hydrocephalus,...recognize it. Shunt failure doesn't always...discharge. Some failures present acutely...when it's time to act. Acute Shunt...Acute Shunt Failure: Hours Matter....Matter. Acute failure typically follows...but they tend to cluster and escalate...doesn't respond to the usual relief....They're harder to rouse, less interested...
Special Needs > Autism Spectrum
Sleep and Autism: Evidence-Based Help for Children Who Can't Fall Asleep or Stay Asleep
You put your child to bed at 8:30. At 10:00 they're...you're lying on the floor next to their bed hoping your presence...chronic sleep problems, according to multiple studies tracking sleep...you're in isn't a parenting failure. Sleep regulation is neurologically...what the research shows and how to use both. Why Autistic Children...
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
...teaching your child to manage their own...Skills that take years to build, not months....handle everything" to "I understand what's...the focus shifts to hands-on skills....Recognizing shunt failure symptoms and knowing...and knowing when to go to the ER versus...knowing when to go to the ER versus when...the ER versus when to call the...
Social Engagement > Discrimination
Understanding Disability Discrimination: Your Rights and How to Take Action
...according to a 2022 Urban...knowing what to call it, which...applies, or where to file a complaint....you, and how to file complaints...practices, refusal to provide required...At work: Failure to provide...work: Failure to provide reasonable...termination, refusal to hire based...equal access to benefits and...employed compared to 65.5% of people...discharge plus failure to accommodate...plus failure to accommodate...treatment compared to non-disabled...