Results
Assistive Tech > Mobility
Trexo Robotic Gait Trainer: What Families Should Know About the Technology
...therapy sessions and the progress...changes carefully. And still, you find...research says, and what it realistically...designed for home and clinical use....as 18 months and up to 100 pounds....weight support, and a base unit that...moves through. Caregivers operate it via...step length, and the amount of...United States and has Health Canada...muscular dystrophy, and other conditions...
News > Technology
A Louisville Rehab Center Just Opened One of the Country's Most Advanced Assistive Technology Labs. Here's What Families Need to Know.
...support system and multi-terrain...wheelchair and mobility device...cord injuries and complex physical...augmentative and alternative...communication devices, and adaptive technology...environment, and goals with specific...current abilities and challenges with...the person and their caregivers...person and their caregivers on how to use...practice walking and balance activities...10-200 pounds and includes...
Financial > Financial Planning
Families Provide $1 Trillion in Unpaid Care Each Year. Here's What Medicaid Cuts Mean for That Burden.
...the primary caregiver for a child...million family caregivers provide 49.5...federal, state, and local Medicaid...unpaid burden to families. And 7.3 million...to families. And 7.3 million...million family caregivers ages 18-64 rely...Disability Families. AARP's "Valuing...caregiving families already live....nationwide and exceeds total...disability families, this isn't...
Financial > Government Benefits
Medicaid Waiver Waiting Lists: How to Access Services While You Wait (and How to Jump the Line)
...Medicaid Home and Community-Based...confirmation letter, and got placed...Without them, families piece together...rely on aging caregivers working past...real. But most families don't know...services faster, and one of those...Waivers Cover and Why the Wait...packages, and enrollment...for family caregivers Supported...employment and job coaching...modifications and assistive...offer waivers, and states can...
Special Needs > Epilepsy
Seizure First Aid: A Step-by-Step Guide for Families and Caregivers
...should call 911 or call the parent first. The file doesn't say. Non-parent caregivers are often expected to respond to seizures with no medical history, no training,...often expected to respond to seizures with no medical history, no training, and no clear threshold for when to act. If you're a teacher, babysitter, camp...
Special Needs > Cerebral Palsy
AAC for Children with Cerebral Palsy: Finding the Right Communication System
...many parents carry, and it's built on a misunderstanding...does. Augmentative and alternative communication...it, supports it, and often accelerates...one or two people and being understood...approximations, schools and families often assume...approximations, schools and families often assume AAC...parents or close caregivers. They may not hold...voice when it works and switch to her device...
Social Engagement > Support Groups
Online vs. In-Person Support Groups: Which Format Is Right for Your Family?
...times work, and the description...logistics, and geographic...connection and the kind...need most and what obstacles...depression and improve coping...outcomes for caregivers and parents...caregivers and parents navigating...illness and disability....engagement and honesty....emotions and forming deeper...accountability and sobriety...prevent many families from accessing...geography, and mobility...naptime or caregivers in areas...
Social Engagement > Support Groups
Finding Your People: A Complete Guide to Support Groups for Special Needs Families
...support group and finding one...joining, and evaluating...special needs families. Not inspiration,...structure, focus, and membership...diagnosis-agnostic and focus on shared...explicitly matches families by specific...conditions and need someone...context. Caregiver support groups...Association and Family Caregiver...and Family Caregiver Alliance run...programs for caregivers managing burnout,...isolation, and the logistics...
Parenting > Self-Care
The Respite Care Blueprint: How to Find, Fund, and Use Backup Care
...will or love. And yet most families...And yet most families raising children...support groups and clinic waiting...placement, and planned overnight...different need, and each has different...qualifying families. This article...each one, and how to prepare...caregiving for families who care for...give primary caregivers time to rest,...that prevents caregiver burnout, protects...stability, and keeps parents...
Lifestyle > Self-Care
How to Find and Access Respite Care: A Complete Guide for Special Needs Families
...it, how to pay for it, and whether it's okay to use...system has resources most families don't know exist. What...temporary relief for primary caregivers. Someone trained and qualified...caregivers. Someone trained and qualified steps in so...them. This works well for families whose children thrive...to Start Looking. Most families don't know where to look...
Health > Mental Health
When Medical Care Becomes Traumatic: PTSD in Disabled Children and Their Families
...both urgent and impenetrable....what's coming and begins to cry...bad days. For families navigating chronic...lAndscape. And for some, that...psychological and physiological...hospitals, and experience more...developing peers. Caregivers, meanwhile,...consenting, and witnessing,...their own fear and exhaustion....medical settings, and a nervous system...happen next, and limited autonomy...
Legal > Government Benefits
What to Do When Medicaid Cuts Your Child's In-Home Care
...needs. This is happening to families across multiple states...their adult son's in-home caregiver hours would be cut by...proposed pay cut for family caregivers only after hours of public...know about your rights and what to do next. What...Medicaid cuts to home and community-based services...when it takes effect, and your right to appeal....