Results
Financial > Government Benefits
Medicaid Waiver Waiting Lists: How to Access Services While You Wait (and How to Jump the Line)
...Medicaid Home and Community-Based...confirmation letter, and got placed...Without them, families piece together...rely on aging caregivers working past...real. But most families don't know...services faster, and one of those...Waivers Cover and Why the Wait...packages, and enrollment...for family caregivers Supported...employment and job coaching...modifications and assistive...offer waivers, and states can...
Special Needs > Epilepsy
Seizure First Aid: A Step-by-Step Guide for Families and Caregivers
...should call 911 or call the parent first. The file doesn't say. Non-parent caregivers are often expected to respond to seizures with no medical history, no training,...often expected to respond to seizures with no medical history, no training, and no clear threshold for when to act. If you're a teacher, babysitter, camp...
Special Needs > Cerebral Palsy
AAC for Children with Cerebral Palsy: Finding the Right Communication System
...many parents carry, and it's built on a misunderstanding...does. Augmentative and alternative communication...it, supports it, and often accelerates...one or two people and being understood...approximations, schools and families often assume...approximations, schools and families often assume AAC...parents or close caregivers. They may not hold...voice when it works and switch to her device...
Social Engagement > Support Groups
Online vs. In-Person Support Groups: Which Format Is Right for Your Family?
...times work, and the description...logistics, and geographic...connection and the kind...need most and what obstacles...depression and improve coping...outcomes for caregivers and parents...caregivers and parents navigating...illness and disability....engagement and honesty....emotions and forming deeper...accountability and sobriety...prevent many families from accessing...geography, and mobility...naptime or caregivers in areas...
Social Engagement > Support Groups
Finding Your People: A Complete Guide to Support Groups for Special Needs Families
...support group and finding one...joining, and evaluating...special needs families. Not inspiration,...structure, focus, and membership...diagnosis-agnostic and focus on shared...explicitly matches families by specific...conditions and need someone...context. Caregiver support groups...Association and Family Caregiver...and Family Caregiver Alliance run...programs for caregivers managing burnout,...isolation, and the logistics...
Parenting > Self-Care
The Respite Care Blueprint: How to Find, Fund, and Use Backup Care
...will or love. And yet most families...And yet most families raising children...support groups and clinic waiting...placement, and planned overnight...different need, and each has different...qualifying families. This article...each one, and how to prepare...caregiving for families who care for...give primary caregivers time to rest,...that prevents caregiver burnout, protects...stability, and keeps parents...
Lifestyle > Self-Care
How to Find and Access Respite Care: A Complete Guide for Special Needs Families
...it, how to pay for it, and whether it's okay to use...system has resources most families don't know exist. What...temporary relief for primary caregivers. Someone trained and qualified...caregivers. Someone trained and qualified steps in so...them. This works well for families whose children thrive...to Start Looking. Most families don't know where to look...
Health > Mental Health
When Medical Care Becomes Traumatic: PTSD in Disabled Children and Their Families
...both urgent and impenetrable....what's coming and begins to cry...bad days. For families navigating chronic...lAndscape. And for some, that...psychological and physiological...hospitals, and experience more...developing peers. Caregivers, meanwhile,...consenting, and witnessing,...their own fear and exhaustion....medical settings, and a nervous system...happen next, and limited autonomy...
Legal > Government Benefits
What to Do When Medicaid Cuts Your Child's In-Home Care
...needs. This is happening to families across multiple states...their adult son's in-home caregiver hours would be cut by...proposed pay cut for family caregivers only after hours of public...know about your rights and what to do next. What...Medicaid cuts to home and community-based services...when it takes effect, and your right to appeal....
Financial > Financial Planning
The Letter of Intent: How to Write the Most Important Document in Your Special Needs Plan
...Needs Trust and drafting a will....financial documents, and make decisions...Letter of Intent, and many families...Intent, and many families never write one....preferences, and goals? Legal...define authority and allocate resources....simple: trustees and guardians can...that gap. Why Families Skip It and Why...Families Skip It and Why That Matters....That Matters. Families delay writing...
Social Engagement > Friends and Family
Two Moms Couldn't Find Reliable Sitters for Their Kids with Autism. So They Built Their Own Network.
...behavior. Jen Ivey and Tessa Quinlan...sons were 14 and 12 in 2018 when...Connection of SW Cook and Will Counties,...specific: connecting families who need experienced...of whom are caregivers offering their...what they need. Caregivers post what they...offer. Ivey and Quinlan vet posts...what did not, and who handled a...who are bigger and stronger than...medical needs, and individuals with...
Financial > Grants
The Lifespan Respite Care Program Was Just Renewed: Here's What Caregivers Can Get From It
...spending package and largely unreported...adult family caregivers, and the 5...caregivers, and the 5 million...million child caregivers who provide...$10 million, and expands the...of eligible caregivers to include...checks to families directly,...38 states and Washington,...that match families with trained...where a family caregiver becomes ill...full-time care and need support....