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Sibshops: Support Programs for Siblings of Children with Disabilities
Lifestyle > Relationships

Sibshops: Support Programs for Siblings of Children with Disabilities

By Alice Whitman
Your daughter asks why her brother gets to skip family dinners when he's overstimulated, but she doesn't...."What's something only you understand about your family?" These conversations happen organically. Kids...Sibshops aren't therapy groups. There's no formal counseling or clinical intervention. The goal is connection...
The Federal Agency That Funds Independence for People with Disabilities Is Being Eliminated. Here's What Families Need to Know.
News > Advocacy

The Federal Agency That Funds Independence for People with Disabilities Is Being Eliminated. Here's What Families Need to Know.

By Henry Peterson
...by and for people with disabilities. National Family Caregiver Support Program: Provides respite care,...Caregiver Support Program: Provides respite care, counseling, and training for family members who care for...Provides respite care, counseling, and training for family members who care for older adults and people with...
Navigating the Early Intervention System for Children with Special Needs
Parenting > Early Intervention

Navigating the Early Intervention System for Children with Special Needs

By Lucas Johnson
...Occupational therapy Behavioral support and therapy Family education and counseling Services are usually...Behavioral support and therapy Family education and counseling Services are usually provided in the child's...special education services later in life Enhance family well-being and coping skills Increase the likelihood...
Importance of Early Intervention for Children with Orthopedic Disabilities
Medical > Orthopedics

Importance of Early Intervention for Children with Orthopedic Disabilities

By Sophia Miller
...unique needs of each child and family. They may include: Physical...technology and adaptive equipment Counseling and support for the family...Counseling and support for the family These services are usually...Act (IDEA). The Role of the Family. Families play a central role...to create an Individualized Family Service Plan (IFSP). This plan...
Genetic Counseling After Diagnosis: What Families with Autism, CP, and Developmental Disabilities Should Know
Research > Genetics

Genetic Counseling After Diagnosis: What Families with Autism, CP, and Developmental Disabilities Should Know

By Clara Bloom
...families hear "genetic counseling" and think it's something...if you're planning a family and want to understand...completely. Genetic counseling after diagnosis isn't...might apply to your family. Most parents don't pursue...parents don't pursue counseling at this stage because...They're not. What Genetic Counseling Does After a Diagnosis....
States Are Cutting Medicaid Family Caregiver Wages. Here's What Self-Directing Families Need to Do Now.
Legal > Government Benefits

States Are Cutting Medicaid Family Caregiver Wages. Here's What Self-Directing Families Need to Do Now.

By James Williams
If you're caring for a disabled family member through a Medicaid self-directed...Maryland just announced it's cutting family caregiver wages by more than 25% and...Program (CDPAP) in New York, Cash & Counseling programs in some states, participant-directed...structure is the same. Medicaid pays family members or friends chosen by the person...
Congress Just Proposed the First-Ever National Hotline for IDD Caregivers. Here's What Families Can Do Right Now.
News > Advocacy

Congress Just Proposed the First-Ever National Hotline for IDD Caregivers. Here's What Families Can Do Right Now.

By Amelia Harper
...The bill, officially designated as H.R. 8620, would provide peer-to-peer counseling, emotional support, and access to a national database of caregiver resources....Caregiver burnout is a documented crisis. A 2025 AARP study found that 23% of family caregivers report feeling their own health has declined as a result of...
CMS Ended the Fast-Track Renewal Path for the Section 1115 Waivers That Fund Home Care in Seven States
News > Advocacy

CMS Ended the Fast-Track Renewal Path for the Section 1115 Waivers That Fund Home Care in Seven States

By Amelia Harper
If your family's home care, respite hours, or day supports arrive through Medicaid, there is a piece of paper somewhere in your state capital with an expiration date...
Illinois Lawmakers Sent the Governor a Bill Requiring Private Equity to Disclose Disability Group Home Purchases
News > Advocacy

Illinois Lawmakers Sent the Governor a Bill Requiring Private Equity to Disclose Disability Group Home Purchases

By Henry Peterson
...the same staff for a while. The purchase agreement is private, the new owner's plans are private, and in most states no one is required to tell the family anything at all. Illinois is close to changing that for its own residents. A bill passed by the General Assembly this spring and sent to Gov. JB Pritzker...
Oregon Is Weighing Cuts to Physical Therapy, Prosthetics, and Autism Care for Medicaid Members
News > Advocacy

Oregon Is Weighing Cuts to Physical Therapy, Prosthetics, and Autism Care for Medicaid Members

By Amelia Harper
If your child gets occupational therapy through the Oregon Health Plan, or your family relies on a prosthetic limb, a wheelchair seating evaluation, or an ABA program, those services now appear by name on a state document about where...
30 States Failed to Meet Federal Special Education Requirements This Year. Here's How to Use Your State's Rating to Push Back.
Education > Special Education

30 States Failed to Meet Federal Special Education Requirements This Year. Here's How to Use Your State's Rating to Push Back.

By Ms. Charlotte Perkins
...child's school. This month, the federal Department of Education handed every family in the country a way to check anyway. On July 9, the department released...produced this year's ratings. Robyn Linscott, director of education and family policy at The Arc of the...
How Much Does Animal Therapy Cost and Will Insurance Cover It?
Therapies > Animal

How Much Does Animal Therapy Cost and Will Insurance Cover It?

By Emma Turner
...search with no idea what's negotiable. I've walked enough families through this same math to know the sticker price almost never reflects what the family ends up paying once every funding channel gets checked. Here's what animal-assisted therapy costs by modality, and where the money to cover it tends...

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