Special Needs

Articles

...ability to advocate for the child and access...those at risk for developmental,...It is important for each family to...important for each family to consider what...the best match for their family. Often...match for their family. Often family members...family. Often family members draw upon...close relative, or family friend. An individual's...drug-exposed and at risk for learning and behavior...

...people land. The housing continuum for adults with disabilities runs from...are supported living arrangements, family care homes, and independent living...sense, and how Medicaid funding works for each option. What the Housing Continuum...handling medication management, meal preparation, personal care, and daily structure....

...backup care, even for a few hours. You...it, or how to pay for it. Respite care...vouchers up to $500 for qualifying families....relief caregiving for families who care...families who care for someone with a disability,...simply step away for a few hours without...burnout, protects family stability, and keeps...term. Research on family caregiving consistently...

...guidance on genetic testing for children with global developmental...terms at appointments without preparation. Here's what genetic testing...disability. It's not a test for one condition. It's a search...search across thousands of genes for patterns that match known genetic...there's a genetic explanation for what you're already...

You walk into an IEP meeting prepared to advocate for your child. The team thanks you for coming, presents...to advocate for your child. The team thanks you for coming, presents their plan, and slides the signature...annual review Bring anyone you want: an advocate, a family member, a friend who understands your child's needs...

...now touches something real for you. The Individuals with Disabilities...and the people responsible for ensuring it reaches students,...here's where it gets important for your family: the structure...it gets important for your family: the structure around that...of IDEA, which funds teacher preparation programs, technical assistance...

...unknown journey with no preparation and no road map. What...let go of their dreams for their child and for their...dreams for their child and for their own lives. They...care and funding required for their child. They must...support—from friends, family, caregiv- ers, and others...integrate their child into family activities, how to transition...

Planning for health care decision...components: 1. Preparation of a written advance...agent to speak for you when you cannot...you cannot speak for yourself regarding...care desires to family members and medical...It is important for you to appoint...agent to speak for you when you are...unable to speak for yourself with respect...care decisions for...

...has been coordinated by the same pediatric team for years. Somewhere between age 18 and 21, that ends....between ages 18 and 21. Some transition as early as 16 for patients who are developmentally ready. Others extend...What Changes in Adult CF Care. Pediatric CF care is family-centered. Parents sit in on appointments, manage...

...building frameworks for things other parents...other parents take for granted. First relationships...internet had a forum for whatever else came...safety, creating space for social connection...longer to internalize for kids with developmental...have been building for years. Start using...anatomical terms for body parts when your...child who only knows family-specific euphemisms...

...email about a study recruiting for your child's condition. You've...you don't fully understand, for a drug that may or may not work,...whether this trial makes sense for your family. Here's how to think...this trial makes sense for your family. Here's how to think through...people. Researchers are looking for a signal that the drug does...

...liquid antibiotic drips onto the floor. For families with children who have disabilities,...that impacts treatment outcomes and family stress levels. The stakes aren't small....guide covers evidence-based strategies for the most common medication challenges:...medication. M&Ms and Skittles work well for this progression. The progression works...