Results
Special Needs > Cystic Fibrosis
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
...independently, recognize early signs of infection, and communicate directly with the care team. What Changes in Adult CF Care. Pediatric CF care is family-centered. Parents sit in on appointments, manage medication schedules, and coordinate with the clinic. Adult CF care assumes the patient manages their...
Social Engagement > Dating and Relationships
A Parent's Guide to Supporting Your Teen with Special Needs in Their First Relationships
...happening to them if someone crosses a boundary. A child who knows the correct words can report abuse precisely, and be understood. A child who only knows family-specific euphemisms can't. By age 8 or 9, you should be having...
Research > Drug Development
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
...fully predict. You need a framework: not a sales pitch, not a fear campaign, but a structured way to evaluate whether this trial makes sense for your family. Here's how to think through that decision. What Phase Is the Trial, and What Does That Mean? Trials move through three phases before FDA approval....
Parenting > Adulthood
Housing Options for Adults with Disabilities: From Supported Living to Independence
...continuum for adults with disabilities runs from 24-hour staffed group homes to fully independent apartments. In between are supported living arrangements, family care homes, and independent living programs with varying levels of staff support. The right fit depends on your child's support needs, not on what...
Health > Treatment
Getting Your Child to Take Medicine: Evidence-Based Strategies That Actually Work
...particularly those with autism or sensory sensitivities, getting medicine into your child can become a daily battle that impacts treatment outcomes and family stress levels. The stakes aren't small. Research shows that over 30% of medication errors in pediatric care occur at home, often because doses are...
Global Insights > Healthcare
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
...medication side effects mattered for this population, and how to adjust care plans for cognitive or communication differences. Adult providers (internists, family medicine doctors, specialists in adult systems) were trained on adult-onset conditions. Their residencies didn't include cerebral palsy or fragile...
Special Needs > Muscular Dystrophy
Muscular Dystrophy in 2026: What Families Need to Know About Gene Therapy and Daily Life
...last appointment. Maybe another parent brought it up in a support group. Maybe you saw a headline and wondered if this changes everything for your family. Here's what's real in 2026: ELEVIDYS, the first FDA-approved gene therapy for Duchenne muscular dystrophy, now has expanded approval. More boys qualify....
Financial > Grants
How to Get a USDA Section 504 Grant or Loan to Make Your Home Accessible
The wheelchair ramp your family needs costs $4,000. The bathroom remodel to make it accessible costs another...apply. What the USDA Section 504 Program Covers. The official name is Single Family Housing Repair Loans and Grants. It has two components: loans and grants....
Legal > Government Benefits
Maryland Is Cutting $250 Million in Disability Services. Families Have Days to Push Back.
...committee meets Friday, March 27, to reconcile differences between the two chambers. That's the final decision point before the budget is locked. If your family depends on DDA services in Maryland, you have days to influence the outcome. What the DDA Is and Who It Serves. The Developmental Disabilities Administration...
Financial > Housing Assistance
Using ABLE Accounts to Pay for Housing Without Losing SSI or Medicaid
You've saved money in an ABLE account specifically so your family member with a disability can cover essential expenses without losing benefits. But when rent is due and you're ready to withdraw funds, the question...
Financial > Government Benefits
Medicaid Waiver Waiting Lists: How to Access Services While You Wait (and How to Jump the Line)
...service packages, and enrollment caps. Waiver services typically include: Personal care assistance (bathing, dressing, toileting) Respite care for family caregivers Supported employment and job coaching Adult day programs Home modifications and assistive technology Residential habilitation Federal law...
Education > Early Intervention
What Happens When Early Intervention Ends at Age 3: The Transition to Preschool Special Education
...You've spent the last year or two building routines around home visits, family goals, and a team that knows your child. Now you're hearing that everything...changes at age 3, and you're not sure what that means for the services your family relies on. Here's what's happening. Part C of IDEA covers early intervention...