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News > Research
Robin Borakove, "Angels Among Us”
For over 40 years, living with...blog, Creator of the charity, (ASDS) Autism Spectrum Disorder...(ASDS) Autism Spectrum Disorder Supports, Philanthropist , Inspirational...power of positive attitude. The support of her family, doctor and her...attitude. The support of her family, doctor and her unrelenting...
Special Needs > Autism Spectrum
Taming the Stigma of Autism
...spectrum disorders (ASD) than with childhood...positive outcomes for many children some...and immediate need for some help. Families...world where their family is “different,” with...Granted there are support groups for parents...are support groups for parents and siblings...sense of community, support and hope for families...support and hope for families across the...
Lifestyle > Relationships
Extended Family Relationships When a Child Has Disabilities
...at once: wanting support from your family,...support from your family, and needing to...resolve neatly. When Family Members Grieve the...They're grieving for you, for your child,...grieving for you, for your child, and...child, and sometimes for expectations they...advocating fiercely for accessible playground...syndrome" gives family members specific...
Lifestyle > Relationships
How Much Caregiving Responsibility Is Too Much for a Sibling
...whether the help you're asking for has quietly become an expectation...request to watch a sibling for 20 minutes. It's the 10-year-old...dinner?" becomes an unspoken family role that nobody questioned...age-appropriate, and leaves room for the child to say no. Parentification...burdensome, and carries the weight of family stability on a child's shoulders....
Lifestyle > Relationships
Sibshops: Support Programs for Siblings of Children with Disabilities
...why her brother gets to skip family dinners when he's overstimulated,...understand. Sibshops are designed for exactly this. They're structured...this. They're structured peer support programs where siblings of...by Don Meyer at the Sibling Support Project, a program of the Arc...only you understand about your family?" These conversations happen...
Financial > Financial Planning
Housing Planning for Adults with Disabilities: Group Homes, Supported Living, and Home Ownership
...mechanisms that pay for adult housing, whether...they turn 21. Housing for adults with disabilities...sources, and levels of family financial responsibility....around-the-clock staff support. The model provides...variations. Higher-support models with nursing...primary funding source for group home placements....cover residential support services, including...
Career > Advancement
Remote Work and Career Mobility: Expanding Advancement Opportunities
...scheduling flexibility. For employees with...you could uproot for the right opportunity....out employees for whom relocation...housing, and leaving support systems that took...You can compete for a director position...accessible housing, and family support already...housing, and family support already exist....who got tapped for high-profile projects...openings appeared. For employees who couldn't...
News > Advocacy
The Federal Agency That Funds Independence for People with Disabilities Is Being Eliminated. Here's What Families Need to Know.
...Administration for Community...Centers for Independent...caregiver support programs,...protections for people with...depend on for navigation...community-based support, and advocacy...Centers for Independent...advocate for their rights....run by and for people with...National Family Caregiver...Caregiver Support Program:...training for family members...training for family members who...who care for older adults...
Financial > Financial Planning
Families Provide $1 Trillion in Unpaid Care Each Year. Here's What Medicaid Cuts Mean for That Burden.
...the primary caregiver for a child or adult with...number to it: 59 million family caregivers provide...families. And 7.3 million family caregivers ages 18-64...18-64 rely on Medicaid for their own health insurance,...What the Numbers Mean for Disability Families....Medicaid spending. For disability families,...absorbing because paid support...
News > Advocacy
After High School: What Families Need to Know About Transition Planning
You've been navigating IEPs for years. You know the drill:...education. No more IEP. The support structure that's been there...to adult services, your family hits what advocates call...IEP that prepares them for life after high school....supposed to be preparing them for what comes next: college,...need to hold a job? What supports will they need to live...
Social Engagement > Dating and Relationships
A Parent's Guide to Supporting Your Teen with Special Needs in Their First Relationships
...changes is the support structure they...building frameworks for things other parents...other parents take for granted. First...internet had a forum for whatever else came...creating space for social connection...to internalize for kids with developmental...been building for years. Start using...anatomical terms for body parts when...who only knows family-specific euphemisms...
Research > Drug Development
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
...email about a study recruiting for your child's condition. You've...you don't fully understand, for a drug that may or may not work,...whether this trial makes sense for your family. Here's how to think...this trial makes sense for your family. Here's how to think through...people. Researchers are looking for a signal that the drug does...