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Robin Borakove, "Angels Among Us”
For over 40 years, living with...blog, Creator of the charity, (ASDS) Autism Spectrum Disorder...(ASDS) Autism Spectrum Disorder Supports, Philanthropist , Inspirational...power of positive attitude. The support of her family, doctor and her...attitude. The support of her family, doctor and her unrelenting...
Special Needs > Autism Spectrum
Taming the Stigma of Autism
...spectrum disorders (ASD) than with childhood...positive outcomes for many children some...and immediate need for some help. Families...world where their family is “different,” with...Granted there are support groups for parents...are support groups for parents and siblings...sense of community, support and hope for families...support and hope for families across the...
Social Engagement > Dating and Relationships
A Parent's Guide to Supporting Your Teen with Special Needs in Their First Relationships
...changes is the support structure they...building frameworks for things other parents...other parents take for granted. First...internet had a forum for whatever else came...creating space for social connection...to internalize for kids with developmental...been building for years. Start using...anatomical terms for body parts when...who only knows family-specific euphemisms...
Research > Drug Development
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
...email about a study recruiting for your child's condition. You've...you don't fully understand, for a drug that may or may not work,...whether this trial makes sense for your family. Here's how to think...this trial makes sense for your family. Here's how to think through...people. Researchers are looking for a signal that the drug does...
Parenting > Adulthood
Housing Options for Adults with Disabilities: From Supported Living to Independence
...land. The housing continuum for adults with disabilities runs...supported living arrangements, family care homes, and independent...with varying levels of staff support. The right fit depends on your...fit depends on your child's support needs, not on what you think...how Medicaid funding works for each option. What the Housing...
Global Insights > Healthcare
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
...and the Agency for Healthcare Research...without transition support. They're screened...They're screened for cancer less often....wasn't designed for adults who had...adequate transition support, according to Got...start preparing for this gap years...effects mattered for this population,...adjust care plans for cognitive or communication...providers (internists, family medicine doctors,...
Special Needs > Muscular Dystrophy
Muscular Dystrophy in 2026: What Families Need to Know About Gene Therapy and Daily Life
...parent brought it up in a support group. Maybe you saw a...this changes everything for your family. Here's what's...changes everything for your family. Here's what's real in...FDA-approved gene therapy for Duchenne muscular dystrophy,...still define daily life for most families. This guide...gene therapy approved for boys with Duchenne muscular...
Legal > Government Benefits
Maryland Is Cutting $250 Million in Disability Services. Families Have Days to Push Back.
...before the budget is locked. If your family depends on DDA services in Maryland,...Maryland's Medicaid waiver programs for people with intellectual and developmental...include personal care, residential support, day programs, job coaching, and respite...with thousands of people waiting years for services. The new cuts will reduce...
Therapies > Speech
Speech Therapy for Special Needs Children: A Complete Guide for Parents
...be understood by anyone outside the family. You've been told "wait and see" but...but certain patterns signal the need for professional assessment. By 18 months,...speech-language pathologist privately. For school-based services, submit a written...services, submit a written request for evaluation to your child's school district....
Special Needs > General Special Needs
Supporting Your Other Children: A Family Guide When One Child Has Special Needs
...cancels weekend plans for the third time this...children need formal support structures designed...structures designed for siblings, not just...not just better family time management....report that childhood family stress related to...home. But sibling support programs, therapists...exist specifically for this population,...achievements and deep love for them. They also...
Special Needs > Hearing Impairments
Communication Options for Deaf and Hard of Hearing Children: A Family Decision Guide
...Deaf adult you meet at a family event speaks passionately...communication approaches for deaf and hard of hearing...child's needs and your family's reality. What Communication...themselves. It's the foundation for how they'll learn to read,...school, and connect with family and community. Some approaches...choose shapes the kind of support your child receives in...
Special Needs > General Special Needs
Special Needs Trusts in 2026: What the New Rule Changes Mean for Your Family
...because ABLE wasn't an option for your adult child, it might...window, they can now use ABLE for tax-advantaged savings...eliminated the "in-kind support and maintenance" (ISM)...maintenance" (ISM) rule for food in September 2024....Special Needs Trust paid for food, SSA could reduce...advised not to use SNT funds for groceries, restaurant meals,...