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Discover informative articles and resources tailored to special needs individuals and their families.

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The Letter of Intent: How to Write the Most Important Document in Your Special Needs Plan
Financial > Financial Planning

The Letter of Intent: How to Write the Most Important Document in Your Special Needs Plan

By James Williams
...caregiving or decision-making roles after you: trustees, guardians, case managers, extended family members....you: trustees, guardians, case managers, extended family members. The letter answers questions that legal...carries no legal weight. The reason is simple: trustees and guardians can follow legal instructions without...
Appointing a Trustee for Your Trust Fund
Legal > Advocacy

Appointing a Trustee for Your Trust Fund

By SpecialNeeds.com Editor
...Appointing a Trustee for Your Special...the use of a trustee. A trustee is...a trustee. A trustee is a person or...spending. Trustees can be any capable...in charge. A trustee can also be an...Choosing the right trustee is just as important...trustworthy. A trustee can be a loved...as a trusted family member or friend....choose as your trustee, your best choice...
Trustee Selection: Choosing Who Will Manage Your Child's Special Needs Trust
Financial > Financial Planning

Trustee Selection: Choosing Who Will Manage Your Child's Special Needs Trust

By James Williams
...who'll manage it. The trustee controls distributions,...jeopardize benefits. A bad trustee can drain the trust...for that job. What a Trustee Does. The trustee...trustee Does. The trustee isn't a ceremonial...trust terms, even from family members If the trustee...family members If the trustee makes a mistake (distributes...exposure is why some family members...
Special Needs Planning for Divorced or Blended Families
Financial > Financial Planning

Special Needs Planning for Divorced or Blended Families

By James Williams
...ex-spouse's choices don't inadvertently disqualify your child from SSI. You need trustee arrangements that give both parents visibility without giving either unilateral...Third-party special needs trusts protect SSI and Medicaid eligibility by keeping family contributions outside the child's countable assets. But when parents are...
Setting Up a Special Needs Trust Fund
Financial > Financial Planning

Setting Up a Special Needs Trust Fund

By SpecialNeeds.com Editor
...You can set up and use a trust fund now, appointing yourself as the trustee (the administrator of the special needs trust fund). By setting up a trust...want the money spent when you are gone. Furthermore, many families have family members that would like to leave their child with special needs some wealth...
Third-Party Special Needs Trusts: When Family Funds the Trust
Financial > Financial Planning

Third-Party Special Needs Trusts: When Family Funds the Trust

By James Williams
...the vehicle designed for exactly this situation: family money, intended to support someone who relies on...them through estate plans. Siblings or extended family members name them as beneficiaries of life insurance...disqualifying the beneficiary from those programs. The trustee manages the funds and uses them for expenses that...
Pooled Special Needs Trusts: Lower-Cost Alternative to Individual Trusts
Financial > Financial Planning

Pooled Special Needs Trusts: Lower-Cost Alternative to Individual Trusts

By James Williams
...establish through an attorney, plus annual trustee fees and tax preparation. For families...upfront, and the nonprofit handles the trustee work. The core benefit remains the...sub-account, but the nonprofit acts as trustee for all participants. Each sub-account...typically parents, grandparents, or other family members. These...
Extended Family Relationships When a Child Has Disabilities
Lifestyle > Relationships

Extended Family Relationships When a Child Has Disabilities

By Alice Whitman
...navigating two needs at once: wanting support from your family, and needing to protect your child from attitudes...That tension doesn't always resolve neatly. When Family Members Grieve the Diagnosis. Grandparents especially...use euphemisms. "Emma has Down syndrome" gives family members specific information to work with. "Emma...
Minnesota Just Disenrolled 61% of Its Medicaid Disability Providers. Other States Are Running the Same Audit. Here's What Families Need to Do Now.
News > Advocacy

Minnesota Just Disenrolled 61% of Its Medicaid Disability Providers. Other States Are Running the Same Audit. Here's What Families Need to Do Now.

By James Williams
...at Superior Steps, an autism treatment facility in Rochester. "We decided to enroll her full-time in ABA therapy, which was transformative for our family," Barry told the Post Bulletin. Superior Steps was disenrolled. Josh Berg runs Accessible Space Inc., which provides Integrated Community Supports...
How Much Caregiving Responsibility Is Too Much for a Sibling
Lifestyle > Relationships

How Much Caregiving Responsibility Is Too Much for a Sibling

By Alice Whitman
...you keep an eye on your brother while I make dinner?" becomes an unspoken family role that nobody questioned until it was already entrenched. Here's how...Parentification is ongoing, emotionally burdensome, and carries the weight of family stability on a child's shoulders. Markers That Signal a Problem. The sibling...
Sibshops: Support Programs for Siblings of Children with Disabilities
Lifestyle > Relationships

Sibshops: Support Programs for Siblings of Children with Disabilities

By Alice Whitman
Your daughter asks why her brother gets to skip family dinners when he's overstimulated, but she doesn't. Your son tells his teacher...that drives you crazy?" or "What's something only you understand about your family?" These conversations happen organically. Kids aren't forced to share, but...
Sensory-Friendly Movie Screenings for Families with Autism
Lifestyle > Recreation

Sensory-Friendly Movie Screenings for Families with Autism

By Franklin Morris
...without disrupting others. They're family screenings where neurodivergent children...10am and feature recently released family films, typically animated releases...films, typically animated releases or family-friendly live action. The program has...AMC, these screenings feature current family releases with modified lighting and...

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