Results
Social Engagement > Friends and Family
The Complete Guide to Family Relationships for Families Raising Children with Special Needs
...your child's diagnosis, you notice...asking how the appointment...problems. they're the same problem...finite, and right now nobody...Everyone Feels the Strain at Once....Once. A child's diagnosis doesn't just...reorganizes the whole family...without a map. The fix isn't finding...The fix isn't finding more hours...more hours in the day. It's deciding,...of attention right now, and telling...
Lifestyle > Self-Care
ARCH National Respite Locator: How to Find Emergency Backup Care
...It's 9 p.m. The babysitter...her wrist. The need isn't...happening right now. Finding...right now. Finding emergency...from calling the teenager down...teenager down the street. You...schedules. The ARCH National...50 states. The organization...providers. The network includes...regardless of diagnosis. What they...down. How the Locator Works....Locator Works. The ARCH Respite...state, and the tool returns...
Social Engagement > Support Groups
Finding Your People: A Complete Guide to Support Groups for Special Needs Families
...says so: the therapists,...therapists, the pediatrician,...pediatrician, the well-meaning...group and finding one that...This is the practical...guide to finding, joining,...one-size-fits-all. The structure,...depending on who the group serves....groups are the most common....Others are diagnosis-agnostic...specific diagnosis, which matters...understands the medical nuances,...not just the emotional...isolation, and the logistics...
Special Needs > Cerebral Palsy
The Challenges Of Parenting A Child With Cerebral Palsy
The Challenges...for parents. The first challenge...terms with the diagnosis,...terms with the diagnosis, and then learning...can about the condition....as adapting the home, or finding...the home, or finding the right school...or finding the right school...finding the right school or childcare....friendship. The Impact Of Cerebral...Cerebral Palsy On The Family. Cerebral...impact on the lives of those...
Parenting > Support Groups
Finding Support And Resources For Parents Of Children With Special Needs
Dealing With The Diagnosis.... Dealing With The Diagnosis. It can be...like they are the only ones...dealing with the diagnosis...dealing with the diagnosis and that no...special needs. The Emotional...challenges. One of the most difficult...aspects is finding support and...be helpful. Finding The Right...helpful. Finding The Right Support...Finding The Right Support And...like you are the only one who...
Special Needs > Cerebral Palsy
Symptoms of Cerebral Palsy
...baby and finding out a year...difficult to diagnose until the...diagnose until the infant is...child has the disorder...disorder right after birth,...not until the brain begins...can be diagnosed. The symptoms...diagnosed. The symptoms...five, as the brain and...develop. The most common...is that the child will...controlling the head, rolling...mean that the child has...side of the body, making...reliant on the other side....
Lifestyle > Self-Care
Building a Support System: Who to Ask for What Kind of Help
...isn't the hard part....part. The hard part...asking the right person...asking the right person...person for the right kind...for the right kind of...advice on finding a feeding...listen, the conversation...nowhere. The problem...support to the people...match the ask to...ask to the person's...Support: The People...pivot to the bright...side. The person...child's diagnosis to understand...redirect the conversation...
Research > Clinical Trials
How to Find and Evaluate Clinical Trials for Your Child's Disability
...ClinicalTrials.gov is the central...trial in the U.S. that...federal funding is required...overwhelming. The search...search the database,...database, what the trial phases...where the major research...enroll. By the end, you'll...trial is the right fit....is the right fit. How...ClinicalTrials.gov. The basic search...names, but the advanced...seeing. Use the Advanced...Enter the specific...specific diagnosis: autism...syndrome. The database...nothing, try the clinical...rather than the colloquial...
Research > Genetics
Chromosomal Microarray vs. Whole Genome Sequencing: Which Genetic Test Is Right for Your Child?
...genetic testing. The referral says...to schedule, the genetic counselor...out whether the $300 test is...insurance for the $3,000 one....$3,000 one. The short answer:...disorders. CMA is the test that finds...(WES) reads the protein-coding...about 1-2% of the total. It's...It's good at finding point mutations...pairs. It's the most comprehensive...also produces the highest volume...
Education > Accommodations
Short Takes on the Disabilities: What Students Must Know If They Have Dyslexia or ADD To Get The Help They Need
...for life. With the right support,...life. With the right support, however,...most of us, the first step in...first step in finding is getting diagnosed...finding is getting diagnosed and learning...ourselves. Take the time to learn...weaknesses and about the strengths that...entitled to special rights in school, such...read some of the articles for...this space in the...
News > Advocacy
Your Doctor's Patient Portal Has 18 Days to Become Accessible. Here's What Disability Families Need to Know Before It Gets Delayed.
The Department...Medicaid funding to have...Unlike the ADA Title...rule that the Department...April 20, the HHS Section...could face the same fate...systems right now. If...complaint with the HHS Office...for Civil Rights. What Changed....Changed. The HHS Section...established for the first time...federal funding from HHS....from HHS. The rule requires...10, 2027. The rule also...accessible diagnostic equipment...
Legal > Government Benefits
Federal Medicaid Cuts Are Threatening Arizona's IDD Home Care Program. Here's What 58,000 DDD Families Need to Do.
...program through the Division of...increase from the 44,000 enrolled...budget cuts. The OBBBA legislation...federal Medicaid funding over 10 years,...you're one of the 58,000 Arizona...know and do right now. Why HCBS...care, and some diagnostic services....federal Medicaid funding. Home and Community-Based...Community-Based Services, the programs that...benefits to close the gap. HCBS programs...programs are often the largest optional...