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Global Insights > Advocacy
How to Document Your Disability for IEP Advocacy Without Oversharing
...the IEP meeting, and the folder in front...pediatrician, therapy notes, and a printout of your..."bring everything," and now you're wondering...establish eligibility and design services,...design services, and it's narrower than...goes in the folder and what stays in a drawer...qualifying disability, and that the disability...the legal standard, and a school psychologist...
Career > Finding Jobs
Networking Events for Professionals with Disabilities: Finding Accessible Opportunities
...between stated policy and actual practice...you a day of work and a nonrefundable...session format, and participant expectations....noisy environments, and explain your accommodations...interpretation, and accessible presentation...accommodation requests and plan capacity accordingly....industry trends, and advancement don't...Career Conferences and Events. Disability:IN...Disability:IN Global Conference & Expo...
News > Research
The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.
The U.S. Food and Drug Administration...improvements in motor function and cognitive skills in...multiple body systems and is characterized by...is characterized by global developmental delay,...movement disorders, and alacrima, which is the...expedite the development and review of regenerative...address issues faster and keep the trial moving...
Global Insights > Healthcare
Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed
...deductible resets every January, and by February you're already thousands...in. You're working full-time and still can't afford the care your...Medicaid based on their own income and assets, not yours. Your household...offer Katie Beckett waivers, and those that do set their own medical...that do set their own medical and functional eligibility...
Global Insights > Healthcare
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
Your child turns 21 and loses their pediatrician....from Harvard, the NIH, and the Agency for Healthcare...Healthcare Research and Quality documents what...physically active, and they die younger. The...according to Got Transition and MACPAC. The primary...framework that works, and what to do when the...for this population, and how to adjust care plans...
Global Insights > Employment
Why More People with Disabilities Are Becoming Their Own Boss and How to Start
...employment gap between people with and without disabilities hasn't changed...exhausting accommodations processes, and workplaces designed without flexibility...entire ecosystem of funding and support that most families have...growing, what resources exist, and the concrete first steps to take....someone else to change the system. And even when accommodations are...
Global Insights > Employment
When (and How) to Tell an Employer About Your Disability: A Decision Guide
...disability at work. It's when, to whom, and in what context. The timing changes...you have, what your employer can ask, and what happens next. Disclosure is a strategic...depends on what you need, where you work, and what legal framework governs your employment....questions if those questions are job-related and consistent with business necessity....
Global Insights > Education
What U.S. Parents Can Learn from How Other Countries Educate Students with Disabilities
...parts of the U.S. system are policy choices, not inevitabilities. How Nordic Countries Reduced the Need for Individual Negotiations. Finland, Sweden, and Norway don't have IEP equivalents in the way U.S. parents recognize them. They have individualized support plans, but the baseline is different. Every...
Global Insights > Education
Inside Inclusive Classrooms: What Co-Teaching Models Actually Look Like
...it looks like when it works, and what it looks like when it doesn't....six distinct delivery models, and most classrooms cycle through...Understanding which model you're seeing, and whether it's being used effectively,...depending on class size, space, and teacher rapport. One Teach, One...common errors to watch for, and when to pull a small group for...
Global Insights > Culture
Person-First or Identity-First? What Parents Should Know About Language in the Disability Community
...community members capitalize the D and talk about Deaf culture, not...became standard in the 1980s and 1990s as a deliberate push against...norm in medical, educational, and policy settings. Person-first...intervention programs, school systems, and therapy clinics still teach person-first...encounter. But language evolves, and the people most affected by it...
Global Insights > Culture
Beyond Inspiration Porn: How to Talk to Your Child About Disability Representation in Movies and TV
...porn, the tragic burden narrative, the magical cure, and the overwhelming likelihood that the disabled character...story isn't a full character with wants, conflicts, and agency. They're a narrative device designed to inspire,...is simple: if you removed the disabled character and replaced them with a motivational poster, would the...
Global Insights > Advocacy
Teaching Your Child to Self-Advocate: Age-by-Age Strategies from Elementary Through High School
...child learns to name what they need and ask for it in situations they can handle....means understanding their own needs and being able to name them in simple terms....recognize when something isn't working and how to communicate that to a trusted...focus, what makes them overwhelmed, and what they need when they're struggling....