Results
Legal > Advocacy
Guardianship and Developmental Disabilities
...high-functioning, she can sign a power of attorney and a health care proxy designating her parents as agents to...high-functioning, she can sign a power of attorney and a health care proxy designating her parents as agents to make...can sign a power of attorney and a health care proxy designating her parents as agents to make legal,...
Legal > Healthcare
Planning for Health Care Decision Making
Planning for health care decision...health care decision...durable health care power...health care power of...attorney, or health care proxy....health care proxy....health care proxy. 2. Appointing...regarding health care decisions....health care decisions....clarify your health care desires...health care desires...your own health care decisions....health care decisions....to make health care decisions...health care decisions...
Career > Interviewing
Behavioral Interview Questions and Disability: Reframing Work Experience
...disability-related leave, years spent managing your own health infrastructure, volunteer roles instead of salaried...proof you can do the work. The STAR method doesn't care whether your example comes from a Fortune 500 office...came of it. If you've coordinated your own medical care across multiple specialists, advocated for accommodations...
Financial > Financial Planning
Families Provide $1 Trillion in Unpaid Care Each Year. Here's What Medicaid Cuts Mean for That Burden.
...trillion in unpaid care looks like: the...billion hours of care each year, valued...problem. Home care costs have surged...for their own health insurance, coverage...losing paid home care. You're at risk...billion hours of care per year is the...out-of-pocket health care spending...out-of-pocket health care spending nationwide...but the cost of care you're absorbing...
News > Lifestyle
Teaching Life Skills for Independence: A Parent's Roadmap
...where your child is right now. Life skills organize into six domains: Self-care: Bathing, grooming, dressing, toileting, eating independently. Household...management: Reading clocks, following schedules, estimating how long tasks take. Health management: Recognizing illness, taking medication, describing symptoms,...
Special Needs > Cystic Fibrosis
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
Your teen's CF care has been coordinated...transition to adult CF care is a documented...have to derail care. Parents who start...extend pediatric care to 21 if the adult...directly with the care team. What Changes...Changes in Adult CF Care. Pediatric CF care...care. Pediatric CF care is family-centered....clinic. Adult CF care assumes the patient...manages their own care. Your presence...
Health > Treatment
Getting Your Child to Take Medicine: Evidence-Based Strategies That Actually Work
...aren't small. Research shows that over 30% of medication errors in pediatric care occur at home, often because doses are missed, spit out, or refused entirely....child can't or won't take their medication, you're managing a gap in their care, not just a difficult moment. This guide covers evidence-based strategies...
Global Insights > Healthcare
Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed
...and still can't afford the care your child needs. This is the...three children with special health care needs, according to KFF....children with special health care needs, according to KFF. But...child who needed hospital-level care but could be treated at home....would require institutional care without home-based support,...
Special Needs > Cancer
Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports
...Late Effects Mean. Late effects are health problems that appear months or years...95% experienced at least one chronic health condition by age 45, and 80% had conditions...enough that surveillance is standard of care. If your child's oncology team hasn't...team hasn't discussed a survivorship care plan, ask...
Special Needs > Respiratory Health
Respiratory Health for Children with Disabilities: A Complete Family Guide
...with cerebral palsy and asthma doesn't just need an inhaler. They need a care plan that accounts for muscle tone, positioning, and coordination challenges...with special needs, how to manage them in daily life, and how to build a care team that works together instead of in silos. Understanding the Most Common...
Social Engagement > Support Groups
Finding Your People: A Complete Guide to Support Groups for Special Needs Families
...parents raising children with disabilities or chronic health conditions. Some are condition-specific: autism,...cast a wider net. These serve anyone providing care: spouses, adult children caring for aging parents...burnout, isolation, and the logistics of long-term care. If you're not a parent but you're shouldering caregiving...
Research > Funding
Where Research Dollars Go: Understanding Funding Gaps Across Disability Conditions
...changing it. How NIH Allocates Research Funding. The National Institutes of Health distributes roughly $47 billion annually across 27 institutes and centers....motor development, and pediatric outcomes. For families planning long-term care into adulthood, that 2.3% represents the entire knowledge base informing...