Results
Financial > Financial Planning
Guardianship vs Supported Decision-Making: How to Choose the Right Option When Your Child Turns 18
...decision-making (SDM) is a formal agreement in which your child appoints a team of supporters to help them make decisions. The supporters don't make decisions...sibling, a trusted friend, or a professional to help with specific areas: healthcare, education, finances, or daily living decisions. Your child decides who...
Special Needs > Muscular Dystrophy
Empowering Families in the Muscular Dystrophy Journey
...just for them. Building a Healthcare Team. Children with muscular...them. Building a Healthcare Team. Children with muscular dystrophy...muscular dystrophy need a team of healthcare providers to...muscular dystrophy need a team of healthcare providers to manage their condition....manage their condition. The team may include: Pediatrician...
Special Needs > Cancer
Supporting Cancer Patients with Special Needs Through Early Detection
...Regular check-ups with a healthcare provider can help detect...work closely with their healthcare team to determine the...with their healthcare team to determine the appropriate...promptly reported to a healthcare provider for further...sensory impairments. Healthcare providers should also...difficulty traveling to healthcare facilities. These alternative...
Global Insights > Healthcare
Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed
...child needs. This is the gap where working families fall through. Medicaid is the only source of coverage for one in three children with special health care needs, according to KFF. But most working families assume they don't qualify because their household income exceeds the state's standard Medicaid...
Global Insights > Healthcare
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
...outcomes gap that follows. Research from Harvard, the NIH, and the Agency for Healthcare Research and Quality documents what happens when young adults with neurodevelopmental...who had pediatric disabilities. Fewer than half of children with special healthcare needs aged 12 to 17 receive adequate transition support, according to...
Therapies > Animal
Animal-Assisted Therapy for Special Needs Children: A Parent's Guide to All Your Options
...incorporates a trained animal into treatment sessions. The animal is part of the therapeutic plan. Goals are documented. Progress is measured. This is healthcare, not enrichment. Animal-Assisted Activities (AAA) are less structured. A trained animal visits a school, hospital, or care facility to provide comfort...
Social Engagement > Discrimination
When Care Becomes Bias: Navigating Disability Discrimination in Healthcare
...of disabled adults report unfair treatment in healthcare settings, compared to 10% of adults without disabilities....symptoms seriously. This article shows you how healthcare discrimination manifests, how to document it...file complaints that create accountability. How Healthcare Discrimination Shows Up. Discrimination in medical...
Social Engagement > Discrimination
Understanding Disability Discrimination: Your Rights and How to Take Action
...of adults with disabilities reported experiencing unfair treatment in healthcare, at work, or when applying for public benefits, according to a 2022 Urban...most common workplace discrimination allegations filed with the EEOC. In healthcare: Denial of care, substandard treatment compared to non-disabled patients,...
Legal > Healthcare
How to Appeal an Insurance Denial for Speech, OT, or ABA Therapy
Step-by-step guide to appealing therapy denials: internal appeals, external review, MHPAEA protections, and what to do if all appeals fail.
Parenting > Adulthood
Supported Decision-Making vs. Guardianship: What Every Parent Should Know Before Their Child Turns 18
...type of guardianship granted. Full guardianship removes all decision-making rights. Limited guardianship restricts specific areas like finances or healthcare while preserving others. But in both cases, the mechanism is the same: the court determines the person can't make decisions, and assigns those decisions...
News > Employment
The Complete Guide to Working While on Disability Benefits: What SSI and SSDI Recipients Need to Know
You've heard the warnings: work too much and you'll lose your disability benefits. The check stops, the healthcare disappears, and you're left trying to survive on part-time wages that were never meant to replace full support. It's not wrong to be cautious. But...
News > Advocacy
Self-Advocacy for Adults with Disabilities: How to Speak Up in Medical Work and Daily Life
...and accommodations in housing. Section 504 of the Rehabilitation Act covers programs that receive federal funding, including most schools and many healthcare providers. Those aren't suggestions. They're laws with enforcement mechanisms. When someone tells you "we can't do that," the first question is whether...