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Guardianship vs Supported Decision-Making: How to Choose the Right Option When Your Child Turns 18
Financial > Financial Planning

Guardianship vs Supported Decision-Making: How to Choose the Right Option When Your Child Turns 18

By James Williams
...decision-making (SDM) is a formal agreement in which your child appoints a team of supporters to help them make decisions. The supporters don't make decisions...sibling, a trusted friend, or a professional to help with specific areas: healthcare, education, finances, or daily living decisions. Your child decides who...
Empowering Families in the Muscular Dystrophy Journey
Special Needs > Muscular Dystrophy

Empowering Families in the Muscular Dystrophy Journey

By Grace Willis
...just for them. Building a Healthcare Team. Children with muscular...them. Building a Healthcare Team. Children with muscular dystrophy...muscular dystrophy need a team of healthcare providers to...muscular dystrophy need a team of healthcare providers to manage their condition....manage their condition. The team may include: Pediatrician...
Supporting Cancer Patients with Special Needs Through Early Detection
Special Needs > Cancer

Supporting Cancer Patients with Special Needs Through Early Detection

By Aiden Moore
...Regular check-ups with a healthcare provider can help detect...work closely with their healthcare team to determine the...with their healthcare team to determine the appropriate...promptly reported to a healthcare provider for further...sensory impairments. Healthcare providers should also...difficulty traveling to healthcare facilities. These alternative...
Work-Based Learning and Internships Through VR Programs
Career > Skills Training

Work-Based Learning and Internships Through VR Programs

By Dr. Mia Wilson
...classroom instruction with paid work experience. VR can fund the training costs, equipment, and accommodations while you earn wages in fields like IT, healthcare, manufacturing, or skilled trades. Job tryouts. Short-term placements (usually 1-4 weeks) where you test...
Job Corps for Adults with Disabilities: Free Career Training and Support
Career > Skills Training

Job Corps for Adults with Disabilities: Free Career Training and Support

By Dr. Mia Wilson
...federally-funded residential training program that covers tuition, housing, meals, healthcare, and job placement at no cost to you, and it's required by law to provide...than 70 trades. The program covers everything: tuition, room and board, healthcare, transportation to the center, work clothing, and a living allowance while...
Apprenticeships and On-the-Job Training for People with Disabilities
Career > Skills Training

Apprenticeships and On-the-Job Training for People with Disabilities

By Dr. Mia Wilson
...federally recognized programs that combine paid on-the-job training with classroom instruction. They exist in trades like plumbing, electrical work, healthcare, IT, and advanced manufacturing. You earn a wage from day one. When you complete the program, you earn a nationally recognized credential. And by...
Ticket to Work Program: Using SSA Benefits to Find Employment
Career > Finding Jobs

Ticket to Work Program: Using SSA Benefits to Find Employment

By Oliver Bennett
...job opportunities because trying to work feels like gambling with your healthcare and income stability. Losing Medicare or Medicaid coverage while testing...counseling, and placement support from approved service providers. Your healthcare coverage continues. Medical disability reviews pause while you're making...
Writing a Medical Necessity Letter for Workplace Accommodations
Career > Accommodations

Writing a Medical Necessity Letter for Workplace Accommodations

By Liam Fitzgerald
HR asked you to provide medical documentation for your accommodation request. Or you're a healthcare provider and your patient's employer wants a letter confirming their need for workplace modifications. Either way, you're not entirely sure what...
Healthcare Decision-Making Rights: From Consent to Guardianship Alternatives
Legal > Healthcare

Healthcare Decision-Making Rights: From Consent to Guardianship Alternatives

By Isabella Johnson
...are legal tools that preserve autonomy while keeping you in the loop for healthcare decisions, and the window to use them is open right now. The catch is...lack capacity and you're the legal guardian, or unless they've signed a healthcare power of attorney naming you as their agent, providers can refuse to share...
Supported Decision-Making: An Alternative to Guardianship
Legal > Advocacy

Supported Decision-Making: An Alternative to Guardianship

By Ethan Parker
...disability retains all legal rights. The supporter doesn't make decisions for them. The principal identifies specific areas where they want help: healthcare, finances, housing, employment, education. They choose supporters they trust: parents, siblings, friends, mentors. Those supporters help them understand...
Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed
Global Insights > Healthcare

Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed

By Ivy Sullivan
...child needs. This is the gap where working families fall through. Medicaid is the only source of coverage for one in three children with special health care needs, according to KFF. But most working families assume they don't qualify because their household income exceeds the state's standard Medicaid...
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
Global Insights > Healthcare

The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care

By Ivy Sullivan
...outcomes gap that follows. Research from Harvard, the NIH, and the Agency for Healthcare Research and Quality documents what happens when young adults with neurodevelopmental...who had pediatric disabilities. Fewer than half of children with special healthcare needs aged 12 to 17 receive adequate transition support, according to...

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