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Special Needs > Cystic Fibrosis
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
...for years. Somewhere between age 18 and 21, that ends. The transition to adult CF care is a documented high-risk period: studies show increased hospitalizations, declining lung function, and medication non-adherence during these years. The problems aren't medical. They're structural. Adult clinics operate...
Parenting > General
The System Navigator's Toolkit: Coordinating Multiple Specialists and Services
...specialty, contact, last visit) Allergies and adverse reactions Emergency contacts and care instructions Recent major events (surgeries, hospitalizations, evaluations) Keep it in Google Docs or a similar cloud platform. Update it after every major appointment. When a new provider asks for intake...
Medical > Pediatrics
When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs
How the medical home model coordinates care for children with complex needs, reducing hospitalizations and family stress.
Parenting > The Early Years
Preparing Your Child for a Hospital Stay
...unfamiliar at best and frightening at worst. However, parents can make a child's stay easier by implementing three strategies before and during hospitalization: Provide age appropriate details. Allow realistic control. Use soft language rather than hospital lingo. Age Appropriate Details How much...