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Navigating the Challenges and Triumphs of Muscular Dystrophy
Special Needs > Muscular Dystrophy

Navigating the Challenges and Triumphs of Muscular Dystrophy

By Grace Willis
...Muscular...Dystrophy....Muscular...dystrophy...of...of...muscular...dystrophy...The...muscular...dystrophy...muscular...dystrophy...dystrophy...muscular...dystrophy...Muscular...dystrophy...the...the...body...of...Impact...on...Muscular...dystrophy...the...muscular...dystrophy....muscular...dystrophy...the...of...muscular...dystrophy...of...Impact...on...Muscular...dystrophy...the...
Protecting Bone Health in Non-Ambulatory Children: A Parent's Guide to Preventing Fractures
Medical > Orthopedics

Protecting Bone Health in Non-Ambulatory Children: A Parent's Guide to Preventing Fractures

By Dr. Jack Davis
...ambulatory peer, the first question...did wrong. The answer is...happened. The medical term...spends most of their day...doesn't receive the mechanical...can reduce the risk substantially...responds to the forces placed...forces placed on it. When you...step creates impact that signals...When that impact is absent,...absent, your body reallocates...bifida, spinal muscular atrophy, or...a factor of four...
Navigating Respiratory Health for Children with Special Needs
Special Needs > Respiratory Health

Navigating Respiratory Health for Children with Special Needs

By Dylan Hayes
...lung disease, and muscular disorders that affect...Respiratory issues can impact a child's overall...development, and quality of life. Symptoms to...wheezing, shortness of breath, and frequent...include information on medications, treatments,...are familiar with the plan. Your child's...emergency care Keep the written plan easily...keep backup supplies on hand. If your child...
Documenting Achievements When Performance Metrics Don't Capture Your Contributions
Career > Advancement

Documenting Achievements When Performance Metrics Don't Capture Your Contributions

By Dr. Evelyn Mercer
...going off the rails because...half. None of that shows...reviews focus on output...documentation gap. The contributions...just what the metrics...creation, or the invisible...benefit the entire...evidence of your impact....of your impact. You might...might do the cognitive...cognitive work of translating...reward the person...made sure the crisis...happened. The goal isn't...document the full scope...full scope of what you...deliver when the...
Temporary Accommodations During Medical Treatment or Recovery
Career > Accommodations

Temporary Accommodations During Medical Treatment or Recovery

By Liam Fitzgerald
...this situation. The Americans with...how to request the modifications you...Disability Under the ADA. The ADA defines...Under The ADA. The ADA defines disability...sleeping, or working. The key word is "substantially."...requires months of physical therapy...What matters is the impact on your...matters is the impact on your ability...matters is the impact on your ability to...
Parent Coaching in Early Intervention: How You Become Your Child's Best Teacher
Education > Early Intervention

Parent Coaching in Early Intervention: How You Become Your Child's Best Teacher

By Dr. Eileen Hart
...expected the therapist...appointment: the professional...examines the child, delivers...treatment, and the parent observes....differently, and the difference...in which the therapist...routines. The therapist...This isn't the therapist...less. It's the therapist...multiplying her impact by equipping...intervene in the hundreds...hundreds of moments each...Research on parent-mediated...twice a week. The reason is...
Ending the Diagnostic Odyssey: How Whole Genome Sequencing Is Changing Rare Disease Diagnosis
Special Needs > Rare Disorders

Ending the Diagnostic Odyssey: How Whole Genome Sequencing Is Changing Rare Disease Diagnosis

By Isabella Lewis
The average rare disease...pattern has a name in the rare disease community:...disease community: the diagnostic odyssey....billion base pairs of your child's DNA....genome, not just the protein-coding...covers. About 98% of your genome doesn't...WGS catches Them. The test looks for...flags variants of uncertain significance...whose clinical impact isn't yet understood....
Writing a Scholarship Essay About Your Disability: What Works (and What Doesn't)
Financial > Scholarships

Writing a Scholarship Essay About Your Disability: What Works (and What Doesn't)

By Sophie Turner
...journey. The committee...hundreds of essays...focused on what parents...instead of what you...disconnected from the stated...stated goal of the scholarship....goal of the scholarship....scholarship. The essay that...Lead with Impact, Not Diagnosis....Diagnosis. The opening...two" tells the committee...built. The diagnosis...at all. The committee...essay. The moment...Instead of "I overcame...write about the day you...new aide on...
The 13 Disability Categories Under IDEA: Who Qualifies for Special Education
Education > Special Education

The 13 Disability Categories Under IDEA: Who Qualifies for Special Education

By Isabella Johnson
...diagnosis. The pediatrician...language, the evaluations...meet with the school,...aren't the same thing....IDEA (the Individuals...under one of 13 specific...performance to the point...parts of that equation...Here's what the 13 categories...qualifies. The Two-Part...within one of the 13...one of the 13 categories...below. The disability...child with the same diagnosis...because of attention...parts of the test....parts of the test....educational impact through...reports. The question...
IEP Advocacy for Children with Rare Disorders: When No One Has Done This Before
Special Needs > Rare Disorders

IEP Advocacy for Children with Rare Disorders: When No One Has Done This Before

By Isabella Lewis
...disorder. The school district...services. IDEA (the Individuals...disabilities that impact their education,...regardless of whether...whether the diagnosis...anyone at the district...is based on educational...educational impact, not diagnosis...children based on how a disability...minutes of cognitive...accommodations based on that functional...limitation. The district...understand the metabolic...understand that the child can't...educational impact qualify...anything. The evaluation...
Returning to School After Childhood Cancer: What Families Need to Know
Special Needs > Cancer

Returning to School After Childhood Cancer: What Families Need to Know

By Aiden Moore
...full-time. But the transition...isn't going the way you...they read the same paragraph...right. The treatment...function. The neurological...Does to the Brain....crosses the blood-brain...involve the brain or...Radiation to the head or...compounds the impact....compounds the impact. The result...impact. The result...cluster of cognitive...memory takes the biggest...hold all the pieces...neurology. The brain's...software on a computer...
Recognizing Ableism: How Everyday Microaggressions Harm People with Disabilities
Social Engagement > Discrimination

Recognizing Ableism: How Everyday Microaggressions Harm People with Disabilities

By Chloe Davis
...specific form of ableism...falls below the threshold...threshold of legal discrimination...reduced sense of belonging...Understanding the three types...gives you the language...respond. The Three Types...Three Types of Disability...categories based on intent and...intent and impact. All three...regardless of whether...whether the person meant...these are the most obvious...form and the least common...communicate that the speaker...extraordinary. The person saying...

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