Results
Legal > Government Benefits
Understanding Representative Payees: Who Manages Your Child's Disability Benefits
...change, matters for both immediate compliance and long-term planning as your child approaches adulthood....change, matters for both immediate compliance and long-term planning as your child approaches adulthood. What...needs" broadly: food, shelter, clothing, medical care, and personal items. You can use benefits for education...
Financial > Financial Planning
Medicaid Estate Recovery and Special Needs Trusts
...process states use to recoup costs they paid for long-term care and services. Federal law requires states...process states use to recoup costs they paid for long-term care and services. Federal law requires states to...states use to recoup costs they paid for long-term care and services. Federal law requires states to attempt...
Financial > Financial Planning
Leaving Money to a Child with a Disability in Your Will: Common Mistakes to Avoid
...beneficiary because you want them taken care of after you're gone. That's what any...need the money for housing, medical care, or long-term support. The program sees...money for housing, medical care, or long-term support. The program sees the asset...for housing, medical care, or long-term support. The program sees the asset...
Financial > Financial Planning
Housing Planning for Adults with Disabilities: Group Homes, Supported Living, and Home Ownership
...the foundation of a realistic long-term plan. Group Homes: Residential...foundation of a realistic long-term plan. Group Homes: Residential...structure, supervision, and care in a shared household, typically...resident, depending on the level of care required, staffing ratios, and...Higher-support models with nursing care or behavioral specialists run...
Financial > Financial Planning
Long-Term Care Insurance and Disability: Planning for Future Care Costs
...told long-term...long-term care...long-term care insurance...catastrophic care costs....standard long-term...long-term care...long-term care insurance...the care model...start care planning....what long-term...long-term care...long-term care insurance...disability care planning,...What Long-Term...Long-Term Care...Long-Term Care Insurance...Covers. Long-term...Long-term care...Long-term care insurance...custodial care when...home care, assisted...in-home care, and...
Career > Finding Jobs
Supported Employment Services: Job Coaching and Placement Assistance
...someone learn the work and stay employed long-term. That support comes in two main...learn the work and stay employed long-term. That support comes in two main forms:...learning phase Ongoing support includes long-term check-ins and problem-solving after...phase Ongoing support includes long-term check-ins and problem-solving after...
News > Advocacy
The Federal Agency That Funds Independence for People with Disabilities Is Being Eliminated. Here's What Families Need to Know.
...Independent Living, caregiver support programs,...disabilities. National Family Caregiver Support Program:...Program: Provides respite care, counseling, and training...family members who care for older adults and...programs: Including the Long-Term Care Ombudsman...Including the Long-Term Care Ombudsman Program...Including the Long-Term Care Ombudsman Program and...
Special Needs > Muscular Dystrophy
Muscular Dystrophy in 2026: What Families Need to Know About Gene Therapy and Daily Life
...eligibility-restricted, and still unfolding in terms of long-term outcomes. And while gene therapy is making...eligibility-restricted, and still unfolding in terms of long-term outcomes. And while gene therapy is making headlines,...while gene therapy is making headlines, respiratory care milestones, positioning routines, cardiac monitoring,...
Special Needs > Cancer
Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports
...constitute disabilities requiring long-term support. The survivorship...disabilities requiring long-term support. The survivorship phase...were to permanent change. The term "late effect" doesn't mean minor...surveillance is standard of care. If your child's oncology team...hasn't discussed a survivorship care plan, ask...
Social Engagement > Support Groups
Finding Your People: A Complete Guide to Support Groups for Special Needs Families
...emotional context. Caregiver support groups...anyone providing care: spouses, adult children...Association and Family Caregiver Alliance run...national programs for caregivers managing burnout,...the logistics of long-term care. If you're...logistics of long-term care. If you're not...logistics of long-term care. If you're not a...you're shouldering caregiving responsibilities,...
Research > Funding
Where Research Dollars Go: Understanding Funding Gaps Across Disability Conditions
...development, and pediatric outcomes. For families planning long-term care into adulthood, that 2.3% represents the...and pediatric outcomes. For families planning long-term care into adulthood, that 2.3% represents the entire...pediatric outcomes. For families planning long-term care into adulthood, that 2.3% represents the entire...
Parenting > Self-Care
The Respite Care Blueprint: How to Find, Fund, and Use Backup Care
...backup care, even for..."respite care" mentioned...Respite care isn't one...in-home care, facility-based...Respite Care Program...respite care available,...backup care works when...Respite Care Is. Respite...Respite care is temporary...relief caregiving for...families who care for someone...primary caregivers time...safety or care quality....prevents caregiver burnout,...over the long term. Research...the long term. Research...family caregiving consistently...