Results
Special Needs > Muscular Dystrophy
Muscular Dystrophy in 2026: What Families Need to Know About Gene Therapy and Daily Life
...eligibility-restricted, and still unfolding in terms of long-term outcomes. And while gene therapy is making...eligibility-restricted, and still unfolding in terms of long-term outcomes. And while gene therapy is making headlines,...while gene therapy is making headlines, respiratory care milestones, positioning routines, cardiac monitoring,...
Special Needs > Cancer
Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports
...constitute disabilities requiring long-term support. The survivorship...disabilities requiring long-term support. The survivorship phase...were to permanent change. The term "late effect" doesn't mean minor...surveillance is standard of care. If your child's oncology team...hasn't discussed a survivorship care plan, ask...
Social Engagement > Support Groups
Finding Your People: A Complete Guide to Support Groups for Special Needs Families
...emotional context. Caregiver support groups...anyone providing care: spouses, adult children...Association and Family Caregiver Alliance run...national programs for caregivers managing burnout,...the logistics of long-term care. If you're...logistics of long-term care. If you're not...logistics of long-term care. If you're not a...you're shouldering caregiving responsibilities,...
Research > Funding
Where Research Dollars Go: Understanding Funding Gaps Across Disability Conditions
...development, and pediatric outcomes. For families planning long-term care into adulthood, that 2.3% represents the...and pediatric outcomes. For families planning long-term care into adulthood, that 2.3% represents the entire...pediatric outcomes. For families planning long-term care into adulthood, that 2.3% represents the entire...
Parenting > Self-Care
The Respite Care Blueprint: How to Find, Fund, and Use Backup Care
...backup care, even for..."respite care" mentioned...Respite care isn't one...in-home care, facility-based...Respite Care Program...respite care available,...backup care works when...Respite Care Is. Respite...Respite care is temporary...relief caregiving for...families who care for someone...primary caregivers time...safety or care quality....prevents caregiver burnout,...over the long term. Research...the long term. Research...family caregiving consistently...
Career > Finding Jobs
From Assessment to Offer: Using Vocational Evaluation to Find the Right Job Match
...this sequence matters more than it does in standard career planning. A role that looks manageable on paper...which physical work environments are sustainable long-term. Work environment tolerances. Noise level,...physical work environments are sustainable long-term. Work environment tolerances. Noise level, supervision...
Career > Discrimination
When Your Employer Retaliates: Recognizing and Responding to Workplace Retaliation After Requesting Accommodations
...to respond when it's violated is the practical knowledge most workers need long before they expect to. What Counts as Retaliation. The ADA explicitly prohibits...accommodation, files a complaint, or opposes discriminatory practices. The legal term is "adverse employment action," and it covers more than termination. Actions...
Career > Finding Jobs
Exploring Career Opportunities That Fit Your Unique Skills and Interests
...shine. Consider taking a career assessment test to get...abilities. Research Different Career Paths. Once you have...exploring different jobs and career fields that utilize them....different jobs entail. Look for careers that have a positive...before committing to it long-term. Even if an opportunity...before committing to it long-term. Even if an opportunity...
Financial > Housing Assistance
Navigating the Housing Landscape for Individuals with Special Needs
...housing options. Financial planning is key to ensure long-term stability. Special needs trusts and ABLE accounts...options. Financial planning is key to ensure long-term stability. Special needs trusts and ABLE accounts...has unique housing requirements. It's important to carefully evaluate individual needs and preferences....
Education > Higher Education
New Transitional Living Program for Young Adults with Special Needs
...individualized program focused on meeting their long-term goals. Residents may enroll in...program focused on meeting their long-term goals. Residents may enroll in classes...local college campuses, and pursue career or work opportunities in the community,...pursuing a variety of academic and career possibilities. Key areas of focus...
News > Employment
Study: No Daily Activities for Adults with Disabilities
...who were less able to provide care. Researchers said these adults...they are the ones not receiving care. Additionally, the siblings...difficult for families to provide long-term care for these adults....for families to provide long-term care for these adults. Research...families to provide long-term care for these adults. Research...
Financial > Housing Assistance
Suitable Housing Options for Your Special Needs
...investment and annual costs. Use a business approach to carefully plan for your child’s future well beyond your...child. Make sure to allocate sufficient resources to long-term housing needs of your child, and to implement...Make sure to allocate sufficient resources to long-term housing needs of your child, and to implement the...