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Special Needs > Muscular Dystrophy
Muscular Dystrophy in 2026: What Families Need to Know About Gene Therapy and Daily Life
...Maybe you saw a headline and wondered if this changes everything for your family. Here's what's real in 2026: ELEVIDYS, the first FDA-approved gene therapy...and school accommodations still define daily life for most families. This guide covers both: how to evaluate gene therapy as an option, and how to manage...
Parenting > School Years
Leading Pediatric Expert Offers Eight Step Technique for Managing Children’s Behavioral Problems
...a child's misbehavior can create chaos, disorder and discontent within a family that often leads to guilt, disappointment and frustration that can cloud...frustration. For frustrated parents ready to tear their hair out, Dr. Ira Chasnoff, MD, president of Children’s Research Triangle and leading researcher in the...
Special Needs > General Special Needs
Life Not Otherwise Specified (NOS)
...professionals. I'd love to say that at seven years old he has now earned the infamous “MD” initials, but sadly that's not the case. His most recent initial accomplishment...of all time! These initials opened up a whole new world for my son and my family. This was a designation that allowed us to pursue options, options that were...
Special Needs > Muscular Dystrophy
The Wheelchair Transition in Muscular Dystrophy: Preparing Your Child Emotionally and Practically
Prepare your child with MD for full-time wheelchair use: framing the conversation, home modifications, and power wheelchair selection.
News > Sports
Brenna Huckaby Is Chasing Her Fourth Paralympic Gold in Milan
...Rouge, training hard enough to dream about a scholarship to LSU. Instead, she lost her leg below the knee. Three years later, a rehabilitation trip at MD Anderson Cancer Center put a snowboard under her feet. The hospital used to run ski outings for kids recovering from cancer, rooted in the belief that...
Health > Nutrition
Proper Digestion, Proper Development
...building blocks that are especially needed by children with autism, aspergers, schizophrenia, ADD, ADHD, and bipolar disorder. Dr. Natasha Campbell-McBride, MD states in her book "Gut and Psychology Syndrome" that she has "yet to meet a child with autism, ADHD/ADD, asthma, eczema, allergies, dyspraxia or dyslexia,...
Special Needs > Muscular Dystrophy
The Problem of MD Chronic Joint Pain
...minimal side-effect solution to chronic joint pain for the Muscular Dystrophy (MD) patient? The answer is yes, and the main "medicine" in this treatment is...pain
There are not many answers to treating degenerative joint disease in MD. The goal of any treatment should be to choose options that the patient will...
News > Sports
Brenna Huckaby Medaled at Her Third Winter Paralympics. She Sued Her Way Into Her Second.
...knee at 14 after an osteosarcoma diagnosis. She'd been a competitive gymnast in Baton Rouge, dreaming of an LSU scholarship. A rehabilitation trip at MD Anderson used ski and snowboard outings for recovery. She found snowboarding at 17 because it reminded her of a balance beam. She moved to Utah. Won...
Health > Mental Health
Bullying Leading Cause of Depression
...problems, not much research has been completed about the impact of bullying on children with special needs. In a study led by Margaret Ellis McKenna, M.D., researchers followed subjects aged 8 to 17 years with a variety of diagnoses, including ADHD, cystic fibrosis, diabetes, sickle cell disease, obesity,...
Special Needs > Autism Spectrum
Conference: Vista Del Mar Autism Conferences
...Special Guest back by popular demand: Eustacia Cutler Speakers: Ricki Robinson, M.D., M.P.H. and Sue Rubin, Nonverbal Woman with Autism and Self-advocate "I...Center Funding Available WRC # PW5788 Guest Speakers Ricki Robinson, M.D., M.P.H. is Co-Director of Descanso Medical Center for Development and Learning...