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The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
Special Needs > Cystic Fibrosis

The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management

By Franklin Morris
...increased hospitalizations, declining lung function, and medication non-adherence during these years. The problems aren't medical. They're structural. Adult...function, and medication non-adherence during these years. The problems aren't medical. They're structural. Adult clinics operate differently, insurance coverage...
Transitions: Honesty Is the Best Policy
Lifestyle > Independence

Transitions: Honesty Is the Best Policy

By SpecialNeeds.com Editor
...important to teach your children early on about their medical conditions and to be honest about the consequences...and to be honest about the consequences of non-adherence. Early education is critical. Children need to...need to learn the facts and details about their medical conditions, including care requirements. Many...
Successful Transitions: Start Early
Education > Early Intervention

Successful Transitions: Start Early

By SpecialNeeds.com Editor
...behave, and move. For children who have special medical needs, there are also milestones for their illness...wise parents lovingly lay the responsibility for medical adherence on their child in small, age-appropriate...parents lovingly lay the responsibility for medical adherence on their child in small, age-appropriate increments...
Understanding SSI Resource Limits and What Assets Count
Legal > Government Benefits

Understanding SSI Resource Limits and What Assets Count

By James Williams
...vehicles are resources unless you can prove a specific exemption (for instance, if the second vehicle is modified for a disability and required for medical treatment). Vacation home...
SNAP Benefits for Families Receiving Disability Benefits
Legal > Government Benefits

SNAP Benefits for Families Receiving Disability Benefits

By James Williams
...resource limit, can deduct out-of-pocket medical expenses over $35/month from their...over-income on paper may qualify once medical expenses are factored in. Why SNAP...don't count, regardless of value. Medical expense deduction. Out-of-pocket medical...medical expense deduction. Out-of-pocket medical costs over $35/month can be deducted...
Understanding Representative Payees: Who Manages Your Child's Disability Benefits
Legal > Government Benefits

Understanding Representative Payees: Who Manages Your Child's Disability Benefits

By James Williams
...annual Representative Payee Report with SSA Notifying SSA if you can no longer serve SSA defines "current needs" broadly: food, shelter, clothing, medical care, and personal items. You can use benefits for education expenses, therapy not covered by insurance, adaptive equipment, and recreational activities...
Medicaid Estate Recovery and Special Needs Trusts
Financial > Financial Planning

Medicaid Estate Recovery and Special Needs Trusts

By James Williams
...establish special needs trusts, they often focus on what the trust can pay for during the beneficiary's lifetime: therapies, education, recreation, medical equipment. What gets less attention is what happens to the trust when the beneficiary dies. Medicaid estate recovery rules determine whether the state...
Leaving Money to a Child with a Disability in Your Will: Common Mistakes to Avoid
Financial > Financial Planning

Leaving Money to a Child with a Disability in Your Will: Common Mistakes to Avoid

By James Williams
...your child inherits money directly, it counts as a countable asset the moment they receive it. It doesn't matter if they need the money for housing, medical care, or long-term support. The program sees the asset and terminates eligibility. Once benefits stop, reinstating them requires spending down the...
Long-Term Care Insurance and Disability: Planning for Future Care Costs
Financial > Financial Planning

Long-Term Care Insurance and Disability: Planning for Future Care Costs

By James Williams
...deductible. Benefit periods range from two years to lifetime coverage, though lifetime policies are increasingly rare. LTC insurance doesn't cover medical treatment. It covers...
Power of Attorney vs. Guardianship: Less Restrictive Alternatives for Age 18
Financial > Financial Planning

Power of Attorney vs. Guardianship: Less Restrictive Alternatives for Age 18

By James Williams
...to them automatically. If your child can't manage complex financial or medical decisions independently, you're left with a choice you may not have seen...right to: Sign contracts or leases Open bank accounts or manage money Make medical decisions, including refusing treatment Vote (in some states) Choose where...
Job Offer Negotiation When You Need Accommodations
Career > Interviewing

Job Offer Negotiation When You Need Accommodations

By Liam Richardson
...immediately or perform the role as currently structured. Raise accommodations during the offer call if: Your start date needs to shift to accommodate medical appointments, equipment setup, or transition logistics The role requires adjustments to work location, schedule, or core responsibilities You need...
Behavioral Interview Questions and Disability: Reframing Work Experience
Career > Interviewing

Behavioral Interview Questions and Disability: Reframing Work Experience

By Liam Richardson
...Action, Result. The format forces specificity about what happened, what needed doing, what you did, and what came of it. If you've coordinated your own medical care across multiple specialists, advocated for accommodations in an educational setting, led a support group, or solved logistical problems that required...

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