Special Needs

Articles

In February 2025, a medical team at UCSF delivered the first personalized CRISPR therapy to an infant...Knowing where that infrastructure exists and what questions to ask your care team matters more than following every breakthrough announcement. What CRISPR...

...between are supported living arrangements, family care homes, and independent living programs with varying...medication management, meal preparation, personal care, and daily structure. The provider owns or leases...safety genuinely requires continuous oversight: medical complexity, behaviors that need trained staff intervention,...

...specialist visits, or durable medical equipment. The deductible...still can't afford the care your child needs. This...children with special health care needs, according to KFF....needed hospital-level care but could be treated at...require institutional care without home-based support,...that do set their own medical and functional eligibility...

...coordinates bladder and bowel care, tracks orthopedic concerns....2023 Spina Bifida Clinical Care Guidelines say you should have...four-year gap creates preventable care crises. Transition planning...to manage their own complex medical needs, navigate insurance, advocate...about them taking over their care immediately. It's about moving...

...normal. It's a transition to a different kind of medical and developmental management, one that most families...is high enough that surveillance is standard of care. If your child's oncology team hasn't discussed...child's oncology team hasn't discussed a survivorship care plan, ask...

...catastrophic imagination. Visibility shrinks, not because parents don't care, but because the child in treatment has immediate medical needs that consume...because parents don't care, but because the child in treatment has immediate medical needs that consume available attention. A sibling who was getting help...

...asthma doesn't just need an inhaler. They need a care plan that accounts for muscle tone, positioning,...disability needs a school team that understands both the medical equipment and the communication supports. This guide...to manage them in daily life, and how to build a care team that works together instead of in silos. Understanding...

...parent first. The file doesn't say. Non-parent caregivers are often expected to respond to seizures...are often expected to respond to seizures with no medical history, no training, and no clear threshold for...babysitter, camp counselor, or family member who cares for a child with epilepsy, this is what you need...

Your baby has Down syndrome. The diagnosis came with medical terminology, testing timelines, and a stack of referrals you're still sorting...language. OT focuses on fine motor skills, sensory processing, and self-care tasks like holding a spoon or transitioning to solids. The therapies work...

...developmental, cognitive, or physical disability isn't just standard diabetes care with extra steps. The entire approach changes because communication barriers...self-reporting and cognitive skills that may not match your child's profile. The medical system treats the two diagnoses separately, but you're managing them in...

...child's access to the medical care they need during the...access to the medical care they need during the school...modifications. It's about medical management during school...Who provides diabetes care (school nurse, trained...supplies are stored and care happens (nurse's office,...reassurances. "We'll take care of...

...or didn't get needed care as a result. This is...whether you receive care, how you're treated...you're treated during care, and whether providers...Up. Discrimination in medical settings isn't always...subtler, embedded in how care is delivered or denied....Strategic denial of care. A practice says they're...need. Substandard care based on perceived...