Results
Special Needs > Cystic Fibrosis
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
...teen's CF care has been coordinated...pediatric team for years. Somewhere...to adult CF care is a documented...problems aren't medical. They're structural....to derail care. Parents who...early as 16 for patients who...pediatric care to 21 if the...directly with the care team. What...in Adult CF Care. Pediatric...Pediatric CF care is family-centered....clinic. Adult CF care assumes the...their own care. Your presence...
Global Insights > Healthcare
Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed
...too much for Medicaid....durable medical equipment....afford the care your child...your child needs. This is...coverage for one in...children with special health...health care needs,...health care needs, according...child who needed hospital-level...hospital-level care but could...qualify for Medicaid...Medicaid for the Medically...Medically Needy. Here's...institutional care without...qualify for Medicaid...their own medical and functional...
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
...been your anchor for years. The team knows...bladder and bowel care, tracks orthopedic...Bifida Clinical Care Guidelines say you...creates preventable care crises. Transition...their own complex medical needs, navigate insurance,...complex medical needs, navigate insurance,...realistic timeline for gradual skill transfer....taking over their care immediately. It's...
Special Needs > Cancer
Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports
...effects are the reason. For many childhood cancer survivors,...to a different kind of medical and developmental management,...roadmap. Here's what you need to know about recognizing...support system your survivor needs. What Late Effects Mean....surveillance is standard of care. If your child's oncology...discussed a survivorship care plan, ask...
Special Needs > Respiratory Health
Respiratory Health for Children with Disabilities: A Complete Family Guide
...doesn't just need an inhaler....inhaler. They need a care plan...They need a care plan that...accounts for muscle tone,...disability needs a school...both the medical equipment...children with special needs, how...with special needs, how to manage...to build a care team that...children. For kids with...watching for behavioral...You're looking for retractions...emotions. For children...
Special Needs > Down Syndrome
Your Early Intervention Roadmap for Down Syndrome: Therapy Options from Birth to Age Three
...diagnosis came with medical terminology, testing...enough to sit up. You need to know what those...without waiting months for someone to call you...Intervention Means for Down Syndrome. Early...mandated therapy for infants and toddlers...your baby qualifies for services from birth...processing, and self-care tasks like holding...practice reaching for toys or transition...
Special Needs > Diabetes
Managing Diabetes When Your Child Has Another Disability: A Dual Diagnosis Guide
...isn't just standard diabetes care with extra steps. The entire...match your child's profile. The medical system treats the two diagnoses...through adapted approaches for blood sugar monitoring, hypoglycemia...internal sensations with the need for action. When your child...internal sensations with the need for action. When your child also...
Special Needs > Diabetes
Your Child's 504 Plan for Diabetes: A Complete Guide for School Management
...what to ask for. A 504 plan...access to the medical care they...medical care they need...care they need during the...It's named for Section 504...Here's what needs to be in...504 Plan for Diabetes...504 plan for diabetes...It's about medical management...Your child needs access to...diabetes care (school nurse,...stored and care happens (nurse's...(scheduled and as needed) What..."We'll take care of...
Social Engagement > Support Groups
Finding Your People: A Complete Guide to Support Groups for Special Needs Families
You know you need support. Everyone...knowing you need a support...support groups for special needs...groups for special needs families....for special needs families....They're designed for parents raising...conditions and need someone who...understands the medical nuances, not...providing care: spouses,...children caring for aging parents...national programs for caregivers...long-term care. If you're...
Parenting > Self-Care
The Respite Care Blueprint: How to Find, Fund, and Use Backup Care
...with special needs...special needs don't...they need backup...backup care, even...even for a few..."respite care" mentioned...pay for it....Respite care isn't...in-home care, facility-based...different need, and...Respite Care Program...$500 for qualifying...respite care available,...backup care works...you need it....Respite Care Is....Respite care is temporary...caregiving for families...who care for...care for someone...complex medical needs....medical needs. The...away for a few...safety or care quality....
Medical > Psychiatry
Medication or Therapy? How to Decide What Your Special Needs Child Needs First
...you your child needs psychiatric support....whether you need both, or what...whether your child needs medication right...and coordinate care if multiple approaches...approaches are needed. Here's how...collaborative care looks like when...Psychiatrists are medical doctors who specialize...also monitor for side effects...every 4-8 weeks for medication checks....health but aren't medical doctors. They...
Medical > Pediatrics
From Referral to First Appointment: Cutting Through the Specialist Waitlist for Your Special Needs Child
...referral, but you don't have care. And you don't know what to...pediatrician gave you isn't enough. You need insurance pre-authorization...confirm it's been filed and ask for the reference number. If it's...number. If it's denied, you'll need your pediatrician to submit...don't require pre-authorization for in-network specialists, but...