Results
Lifestyle > Self-Care
Recognizing Caregiver Burnout vs Normal Stress
...yourself. Is this just what special needs parenting looks like,...yourself. Is this just what special needs parenting looks like, or is...problem is using tools designed for one condition on a state that...spikes during an IEP meeting, a medical emergency, or a week of bad...depletion that's been building for months or years. Rest doesn't...
Lifestyle > Self-Care
Sharing Caregiving Responsibilities: Division of Labor for Couples
...doesn't stay invisible for long. It becomes a...raising children with special needs, and research...children with special needs, and research confirms...a shared framework for dividing the work....first or notices the need most consistently....school communication, medical appointments, equipment...includes remembering what needs to happen, anticipating...
Lifestyle > Self-Care
20-Minute Daily Connection Rituals for Couples Raising Special Needs Children
...you're managing therapies, IEPs, medical appointments, and everything...comes with raising a child with special needs, your marriage can start...raising a child with special needs, your marriage can start to...some version of "make time for date nights," which feels both...that understands your child's needs is hard. Finding the energy...
Financial > Financial Planning
Medicaid Estate Recovery and Special Needs Trusts
...establish special needs trusts,...special needs trusts,...can pay for during...recreation, medical equipment....they paid for long-term...long-term care and services....any age. For individuals...Medicaid for decades,...probate. Special needs trusts...Special needs trusts...not all special needs trusts...special needs trusts...first-party special needs trust...special needs trust holds...state for Medicaid...invalid for Medicaid...
Financial > Financial Planning
Leaving Money to a Child with a Disability in Your Will: Common Mistakes to Avoid
...want them taken care of after you're...limit of $2,000 for individuals. Benefits...income and assets. For SSI, the asset...limit is $2,000 for an individual,...individual, $3,000 for a couple. Medicaid...matter if they need the money for housing,...need the money for housing, medical...money for housing, medical care, or long-term...housing, medical care, or long-term support....
Special Needs > Spina Bifida
Teaching Bowel and Bladder Independence in Spina Bifida: A Guide for Parents
...caths, all the bowel care, and the idea of...steps your child needs to get there. Why...management aren't just medical tasks. They're the...They're the foundation for social participation,...schedule doesn't need to leave class three...three times a day for the nurse. A young...independently doesn't need to coordinate their...participating in their own care by age 8 to 10 have...
Special Needs > Mobility Limitations
Appealing a Power Wheelchair Insurance Denial: A Step-by-Step Guide
...insurance company needs to see and how...wheelchair claims for specific, predictable...They're following medical necessity criteria...policies, not denying care arbitrarily. Understanding...Insufficient medical documentation:...meet the child's needs Prior authorization...evidence you'll need to provide in...insurer and ask for clarification...anything. What You Need Before You Start....
Special Needs > Cystic Fibrosis
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
...teen's CF care has been coordinated...pediatric team for years. Somewhere...to adult CF care is a documented...problems aren't medical. They're structural....to derail care. Parents who...early as 16 for patients who...pediatric care to 21 if the...directly with the care team. What...in Adult CF Care. Pediatric...Pediatric CF care is family-centered....clinic. Adult CF care assumes the...their own care. Your presence...
Global Insights > Healthcare
Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed
...too much for Medicaid....durable medical equipment....afford the care your child...your child needs. This is...coverage for one in...children with special health...health care needs,...health care needs, according...child who needed hospital-level...hospital-level care but could...qualify for Medicaid...Medicaid for the Medically...Medically Needy. Here's...institutional care without...qualify for Medicaid...their own medical and functional...
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
...been your anchor for years. The team knows...bladder and bowel care, tracks orthopedic...Bifida Clinical Care Guidelines say you...creates preventable care crises. Transition...their own complex medical needs, navigate insurance,...complex medical needs, navigate insurance,...realistic timeline for gradual skill transfer....taking over their care immediately. It's...
Special Needs > Cancer
Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports
...effects are the reason. For many childhood cancer survivors,...to a different kind of medical and developmental management,...roadmap. Here's what you need to know about recognizing...support system your survivor needs. What Late Effects Mean....surveillance is standard of care. If your child's oncology...discussed a survivorship care plan, ask...
Special Needs > Respiratory Health
Respiratory Health for Children with Disabilities: A Complete Family Guide
...doesn't just need an inhaler....inhaler. They need a care plan...They need a care plan that...accounts for muscle tone,...disability needs a school...both the medical equipment...children with special needs, how...with special needs, how to manage...to build a care team that...children. For kids with...watching for behavioral...You're looking for retractions...emotions. For children...