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Research > Genetics
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
In February 2025, a medical team at UCSF delivered the first personalized...major children's hospitals, will determine which conditions move from "in development" to "available" over...it powerful for rare disorders. Many of these conditions are caused by a single mutation in a known gene....
Education > Special Education
The 13 Disability Categories Under IDEA: Who Qualifies for Special Education
...child has a diagnosis. The pediatrician used clear medical language, the evaluations are complete, and you've...This happens more often than parents expect. A medical diagnosis and special education eligibility aren't...with Disabilities Education Act) requires two conditions, not one. Your child must be identified under...
Special Needs > Cancer
Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports
...normal. It's a transition to a different kind of medical and developmental management, one that most families...that 95% experienced at least one chronic health condition by age 45, and 80% had conditions classified as...chronic health condition by age 45, and 80% had conditions classified as severe or life-threatening. Not...
Special Needs > Respiratory Health
Respiratory Health for Children with Disabilities: A Complete Family Guide
...disability and a respiratory condition, you're not managing two separate...that understands both the medical equipment and the communication...the most common respiratory conditions affecting children with special...the Most Common Respiratory Conditions. Asthma. Asthma is the most...common chronic respiratory condition in children. For kids with...
Special Needs > Rare Disorders
IEP Advocacy for Children with Rare Disorders: When No One Has Done This Before
...a student with this condition. When you request an...They don't diagnose medical conditions. They assess...don't diagnose medical conditions. They assess educational...Impairment," which covers conditions that limit strength,...exists specifically for conditions that don't fit neatly...here. If your child's condition is so rare that it's...
Social Engagement > Support Groups
Finding Your People: A Complete Guide to Support Groups for Special Needs Families
...with disabilities or chronic health conditions. Some are condition-specific: autism,...chronic health conditions. Some are condition-specific: autism, Down syndrome,...matters when you're dealing with rare conditions and need someone who understands...need someone who understands the medical nuances, not just the emotional context....
Research > Genetics
Understanding Genetic Testing for Autism, Cerebral Palsy, and Developmental Disabilities: A Parent's Guide
...provides answers. For others, it rules out specific conditions. And for many, the results are inconclusive. Here's...clinical trials testing new therapies. It can guide medical monitoring for related health issues that appear...health issues that appear with certain genetic conditions. And if a genetic variant is identified, siblings...
Research > Funding
Where Research Dollars Go: Understanding Funding Gaps Across Disability Conditions
...results for your child's condition. The list is short....13-to-1 ratio for two conditions affecting similar population...funding lines. Rare conditions with smaller coalitions...conditions with smaller coalitions don't generate that...infrastructure than medical need. Within each condition's...medical need. Within each condition's funding envelope, allocation...
Parenting > Diagnosis
Genetic Testing for Developmental Delays: What the New AAP Guidelines Mean for Your Family
...disability. It's not a test for one condition. It's a search across thousands of...patterns that match known genetic conditions. About 40% of children with global...identify a variant, it can change the medical plan, connect families to condition-specific...medical plan, connect families to condition-specific resources, and sometimes...
News > Employment
How to Get a Federal Job with a Disability: A Complete Guide to Schedule A Hiring
...Severe physical disabilities: conditions that substantially limit...disabilities: mental health conditions documented by a licensed...disability" is broad. It includes conditions like cerebral palsy, muscular...mobility impairments. If your condition substantially limits a major...these sources: A licensed medical professional: physician,...
Medical > Psychiatry
Medication or Therapy? How to Decide What Your Special Needs Child Needs First
...working. What Psychiatrists Do. Psychiatrists are medical doctors who specialize in mental health. They...in mental health. They can diagnose psychiatric conditions, prescribe medication, and monitor how medications...doctoral-level training in mental health but aren't medical doctors. They can't prescribe medication in most...
Medical > Psychiatry
The Hidden Mental Health Crisis: Why Teenagers with Disabilities Need Psychiatric Care (And How to Access It)
...issues related to their underlying condition. They're treatable mental health...close that gap. Why Mental Health Conditions Are More Common and Often Missed....layers: chronic pain, social isolation, medical trauma from repeated procedures,...and for some, knowledge that their condition is progressive. Depression doesn't...